The theme for World Hemophilia Day this year is “Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy”. By raising awareness and bringing hemophilia and other inherited bleeding disorders to the attention of policymakers, we can increase sustainable and equitable access to care and treatment.
We speak with 4 leading voices committed to advocacy and education for hemophilia at the national level and dedicated to…
Glaucoma is a leading cause of blindness in India. If managed well, you can prevent loss of vision and maintain a good quality of life. PatientsEngage has partnered with IHOPE to bring to you insights on how to manage glaucoma effectively. Our panelists for this discussion on 18th April were Viji Venkatesh, Glaucoma patient advocate Dr. Sirisha Senthil, Head VST Glaucoma Centre, LV Prasad Eye Institute Many people don’t understand this disease or know about it. Even members of the…
Dr Mihir Parekh, child psychologist and special educator, has recently opened Urja Mart, a supermarket handled by youngsters with Down’s syndrome and on the Autism spectrum. Here, he talks about how the initiative will help them gain real world experience and employability skills. Dr Parekh, you have recently opened a supermarket, Urja Mart, managed by youngsters with special needs. Could you tell us a little about your unique initiative? Urja Mart is a training mart for children with special…
Diabetic retinopathy is a complication of diabetes and can cause blindness if left undiagnosed and untreated. It affects persons with any kind of diabetes - Type 1, Type 2 and gestational. Dr. Raja Narayanan, Principal Investigator IHOPE and Consultant Opthalmologist, Vitreo Retinal Diseases answers questions on the risk factors, treatment and prevention of Diabetic Retinopathy. The video below covers the following topics: - What is Diabetic Retinopathy - Symptoms of Diabetic…
Mr Ramendra Kumar will speak with Aparna Mittal, founder PatientsEngage on his tryst with Colon cancer, his coping strategies for dealing with the challenges of treatment and how his love for films helps keep the spirits up. Mr. Ramendra Kumar, a motivational speaker and award winning author was diagnosed with Colon cancer in Nov 2021. Since then he has been coping with the challenges of colon cancer and the treatment. Read about Ramendra Kumar Part 1 and Part 2 or watch the video…
This year on International Women's Day we focus on two aspects, the health related inequities that impact women both as patients and as caregivers. Reflect, share and let us know your thoughts. Did you know that there are many health related inequalities that impact women. There are a few that are captured in the infographic below. Let us recognise these and pledge to take steps to change this On International Women's day, let us reflect on the biases we still need to break. The…
Renal cell carcinoma is the most common type of adult kidney cancer, making up about 85% of diagnoses. And yet it is rarely talked about. Kidney Cancer is also an area which has seen significant progress in treatment options. Key takeaways from the webinar are given below. An expert panel talked about kidney cancer and answered questions and concerns that patients have. The panelists are Dr. KL Jayakumar, MD Radiation Oncology. Professor and HOD, Sreemookambika Cancer center,…
PatientsEngage and EHA Consortium invite you to an interactive webinar series on Patient Centred Access to Quality Cancer Care. In the first of the series aligned to the UICC theme of "Close the Care Gap", we are very privileged to have an esteemed and diverse panel who will highlight the challenges faced in equitable access to quality cancer care and identify the areas where we still need to make progress. The panelists are Dr. CS Pramesh, Director Tata Memorial Hospital; Convener National…
Stepping Out For Social Inclusion: A Dialogue For Inclusive Society Socialisation is necessary for everyone. However persons with disabilities and their families face barriers and challenges with respect to social acceptance and inclusion. We speak with parents of young adults with developmental challenges to understand how they have navigated the social barriers over the years, what has worked, what has not worked. When :20th Jan 2022 4PM IST Panelists: - Akila Vaidyanathan - Ruchika Sethi…
