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Epilepsy warrior Vinay Jani a man in purple and white fitness wear and the epilepsy ribbon on the left
Fighting Back With Determination
Vinay Jani, 37 from Delhi has been battling epilepsy from a young age of 21. He talks of how he has tackled the condition with fortitude, specially in the face of large scale ignorance. I have focal seizures (complex partial) in which I lose my…
Stock pic of mother and child on a beach against a sunset with overlay text Living with Lupus
"My Daughter Was Diagnosed With Lupus At 5 Years"
Priya, an HR professional, based in Thiruvanathapuram, Kerala and mother to Divya (names changed to maintain anonymity), 9 year old with a diagnosis of Juvenile Lupus shares their experience of the complexities of this condition in a young child and…
Profile pic of a woman in red and green kurta and dupatta and text My experience with Vascular Parkinsons Disease
My Struggle For A Diagnosis Lasted 24 Years
Gulshan Pruthi, 56 from Delhi took 24 years to get a diagnosis of Vascular Parkinsonism after consulting various doctors, doing multiple tests, trying different therapies. She narrates her experience and how she copes with this rare condition. When…
A young woman in white top sitting sideways framed with a purple border with the lupus butterfly symbol and the the text Living with Lupus and patientsengage logo
Treat Lupus As A Phase Of Life
Shreya Shukla, 26 years, runs her own Digital Marketing Agency, based in Kanpur, UP and lives with a diagnosis of Juvenile Lupus. She shares her experience of the complexities of Lupus at such a young age, from delayed and wrong diagnosis to…
Picture of Hrishita, a young woman in a pink and blue kurta framed in a purple frame with the text Living with Lupus
Living With Lupus Is Complicated
Hrishita Gupta, 23 years old is a teacher in Siliguri and has lived with a Juvenile Lupus diagnosis since 2014. She shares her experience of managing this complicated condition and how she copes with Systemic Lupus Erythematosus (SLE). Diagnosis I…
Alphonse Roy, Lupus and Sjogrens patient with text on blue strip : Living with invisible illnesses
Living with Lupus and Sjogrens
A. Alphonse Prabhu Roy, 60, was diagnosed at a young age with two chronic autoimmune disorders, Lupus and Sjogren’s Syndrome, with multiple complex symptoms, the most challenging being dry mouth and brain fog. Narrating his experience, he said both…
Multiple Myeloma RSB India
Cherishing Every Moment After A Multiple Myeloma Diagnosis
Rajat Subhra Biswas, 56 years old from Kolkata has lived with multiple myeloma and has even gone through a BMT surgery. He talks about his journey. I was diagnosed with multiple myeloma in September 2018. I am currently in remission. What were the…
Vibha in a dress with a blue strip and the text Learn and Be Proactive
Learning To Live and Love With A Chronic Illness
Vibha Gupta, 49 originally from Delhi and now in Chicago, USA, lives with multiple chronic illnesses like Sjogren's and heart failure. She shares her journey of learning about her illness, the lifestyle changes that help her cope and why she thinks…
Profile picture of the author Rajeev with a blue strip and overlay text Living with Parkinson's Surprises
Are Violent Dreams or Facial Masking Signs of Parkinson's?
Rajeev K Gupta, who lives with Parkinson’s, recounts his own experiences with many surprising and not so well-known non-motor symptoms of PD like sleep behaviour disorders which can be a nightmare and others like facial masking, speech problems,…