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  • Lupus
    Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. Lupus affects about 5 in 10,000 people. Most often, lupus starts in people in their 20s and 30s. It occurs 10 times more often in women than in men.
Submitted by PatientsEngage on 15 January 2015

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. Lupus affects about 5 in 10,000 people. 

Who is affected by lupus?

Most often, lupus starts in people in their 20s and 30s. It occurs 10 times more often in women than in men. The disease is more common in some ethnic groups, mainly blacks and Asians. Other risk factors include exposure to sunlight, certain medications, infection with Epstein-Barr virus, and exposure to certain chemicals. In Asia, countries such as *India and Japan have a lower incidence of lupus whereas Shanghai has higher prevalence.

*Osio-Salido E, Manapat-Reyes H, Epidemiology of systemic lupus erythematosus in Asia, Lupus, 2010 Oct;19(12):1365-73.

Air pollution, especially the particulate matter released when fossil fuels and other materials are burned, has been associated with lupus risk.

 

Condition

Stories

  • Make Lupus Visible To Improve Awareness and Access To Healthcare
    On World Lupus Day, we ask Lupus patient advocates about their experience in Lupus management and what they think of the theme this year which focusses on "Let's make Lupus visible"   Vachasamrita 1.  What has been the last year like in terms of challenges in handling Lupus? I have been living with 8 years of Lupus, but since mine is a case of juvenile Lupus, it’s been aggressive with rare reactions and drug intolerances. Last year has been more about about handling the…
  • Profile pic of the author Shambhavi in a red dress framed in a blue and lavender background with a butterfly on the top left corner
    "I am okay if Lupus is in the body, I am just not okay if it is in the head"
    Shambhavi Chaudhary is a gutsy young lady living with Lupus who decided that life is too beautiful to allow a condition, however debilitating, to take control of her. Accordingly, she started pursuing a normal and active routine and also went vocal on social media to inspire her fellow Lupies. Is Lupus considered a rare condition? Or an autoimmune condition difficult to diagnose? Lupus, interestingly, is not a rare condition. According to the Lupus Foundation of America 1.5 million…
  • Upcoming Webinar: Lupus and Women's Health
    Knowing more about Lupus helps you make better informed choices and manage it well. Don't miss out on the webinar series on managing the various aspects of living with Lupus   Lupus is an autoimmune disease in which the immune system attacks its own tissues, causing widespread inflammation and tissue damage in the affected organs. It can affect the joints, skin, brain, lungs, kidneys, and blood vessels. With the support of Biocon Biologics, we bring a series of webinars with…
  • मैं लुपस और शोग्रेन्स के बावजूद माँ बनी
    मणिपुर की 37 वर्षीया वाइखोम बिमोलता को दो ऑटोइम्यून बीमारियाँ हैं - लुपस और शोग्रेन्स। इस लेख में वे इस स्थिति में अपनी जटिल चिंता-ग्रस्त गर्भावस्था और सफल मातृत्व के सफर के बारे में बताती हैं। उनकी उम्मीद है कि इस से ऐसी महिलाओं को प्रोत्साहन मिलेगा जो ऐसी ही स्थिति में हैं और माँ बनाना चाहती है। आप ऑटोइम्यून इंफ्लेमेटरी डिजीज लुपस से पीड़ित एक युवा मां हैं। क्या आप हमें बता सकती  हैं कि आपको लुपस  का निदान कब मिला और आपके शुरुआती लक्षण क्या थे? मुझे लुपस नेफ्रैटिस का निदान 2016 में…
  • Picture of Dr. Nolkha and overly with the topic Understanding Basics of Lupus/ SLE and his credentials
    What is Lupus and Other Frequently Asked Questions
    In this webinar we spoke with Dr. Nilesh Nolkha, Consultant Rheumatologist and Clinical Immunologist addressed some of the most common questions on Lupus as part of the “Know Lupus” series.  Dr. Nilesh Nolkha answers the following questions (marked with timestamps on the youtube recording) 03:52 What is Lupus? 05:30 What are the signs and symptoms of Lupus 10:00 How is Lupus diagnosed? Are there any tests for this? 12:00 What are the treatment options for Lupus? 16:05 Can a Lupus patient…
  • I Became a Mother Despite Lupus And Sjogren's
    Waikhom Bimolata, 37, from Manipur, recounts her journey from being diagnosed with two autoimmune diseases Lupus and Sjogren's, her complex anxious-ridden pregnancy and successful motherhood. Here, she hopes to encourage other aspiring mothers in similar situation. You are a young mother with autoimmune inflammatory disease Lupus. Could you tell us when were you diagnosed with it and what were your early symptoms? I was diagnosed with Lupus nephritis in 2016. My early symptoms included fatigue…
  • A man with lupus nephritis on a snow capped mountain
    Lupus Has Certainly Made Me Tougher
    Naveen, 27, from Noida was diagnosed with Lupus Nephritis out of the blue. It left him shocked and in immense physical pain, followed by a series of emergency visits to the hospital, each more critical than the previous one. Through all this, Naveen has emerged as a positive-minded warrior who takes each day as a gift. Please tell us a bit about the condition you were diagnosed with. What was the experience and what were the early symptoms? The diagnosis came a year after my symptoms first…
  • Text of Body Image, Self Esteem and Rheumatic Conditions and the names and profile pictures of patient advocates Kirtida Oza, Neetu Wadhwa, Vachasamrita, Ami Shah and Mental health therapist Arouba Kabir
    Webinar Video: Body Image, Self Esteem and Rheumatic Conditions
    Rheumatic conditions like Lupus, Anklosing Spondylitis, Scleroderma and Sjogren's Syndrome affect people in a myriad ways. These often create body image issues and impact self esteem. We spoke with patient leaders Kirtida Oza, Neetu Wadhwa, Vachasamrita, Ami Shah and Mental health therapist Arouba Kabir on the common issues faced by persons with Rheumatic Conditions and how they can reclaim their self esteem. Kirtida, founder Sjogren's India Neetu Wadhwa, co-founder Scleroderma India…
  • How can rheumatic patients manage lupus, scleroderma auto immune conditions during covid
    Webinar: How to Manage Rheumatological Conditions During Covid-19 Pandemic
    This webinar held on 30th March, 2020 was an informative session with Dr Sapan C Pandya on how patients who are living with a rheumatological conditions can manage their condition during this current pandemic and lockdown period. Are people with Rheumatic diseases more vulnerable than others to the COVID infection? There is no evidence that people who have immunosuppressant diseases will get the corona virus infection more than others. They may be more susceptible for complications once they…
  • Stay Positive and Believe in Yourself
    Usha Ravi Eppaturi, 49 has been living with Lupus for a long time and it took a while for her diagnosis. She talks about Lupus as well as other challenges with which she lives but remains undaunted. Please tell us a bit about your condition Identified with auto immune condition Lupus, with a relapse of AVN (Avascular Necrosis) which has left me with 3 artificial implants i.e. both my hip joints and right shoulder joint. When were you diagnosed? Diagnosed in September 1986 when I was 16 years…