Skip to main content
Submitted by PatientsEngage on 28 October 2018

Stroke Rehabilitation and Recovery is a long drawn out process which can be exhausting and de-motivating for both the survivors and their family members. We have compiled some of the best tips from patients, family caregivers and professionals.

Stroke survivor Javed Ameer's 3 most important tips for rehabilitation for a cerebral stroke patient are:

  • Be ‘physical’. Cycle, walk, jog, run, exercise………
  • Accept your fate and state. Mentally. Faster you do it, better for your peace of mind!
  • Reading can take you places (my choice has been travelogues), music and meditation help but remember you are there absolutely alone. Don’t even expect anything from anyone. Each one of us have our own battles. Get up and go. As I said ‘be physical’.

Read Javed Ameer's Recovery Journey With Stroke - Challenges and Tips

She fainted and lost her vision, speech all at once due to a stroke but she eventually resumed painting. Her motto in life is: 

  • Always count your blessings! My family doctor taught me that. Don’t lament on what is gone. He made me understand that loss of an eye was insignificant in the greater picture. I should be happy to have my loving family, my life and having recovered a stroke and tumour with minimal damage.

Read the rest of her lived experience here and if she could have prevented it

Tips for Stroke Caregivers by Deepa Samant Soman, who looks after her father who was paralysed after a stroke

Vasant Samant, a supremely independent man, lost all that was dear to him when he suffered a stroke and was paralysed on the left side of his body. Into 10 years of his stroke, his daughter, Deepa Soman, noted down 10 lessons to caregivers drawn from her experience of inspiring and being inspired.

  • Keep them as an integral, participative part of an equation and not on the periphery.
  • Connect with the patient’s friends, relatives, colleagues, caregivers, doctors, therapists. Enlist and co-opt their partnering. Make the recovery a ‘shared goal’. Everyone is working to the same cause of reclaiming ‘wholeness’. Acknowledge and cherish.
  • Positivity begets energy to stay invested in the long haul of the road to recovery.  Celebrate wins, big and small milestones. Make every moment count.

Read Deepa's reflection on her father's recovery and hacks recommended for caregivers. 

After a stroke nearly 20-40 per cent patients develop communication problems or aphasia.

Aphasia is the inability to comprehend and formulate language because of damage to specific language areas in the brain. Dr Sujata Gandhi, Speech Therapist, Nanavati Hospital, advises that speech and language therapy is the best way to restore normalcy and quality of life and shares the following guidelines for communicating with people with Aphasia

  • Respect the patient’s age - do not treat or speak to them like a child.
  • Do not ridicule or laugh at the errors or mistakes that they make.
  • Speak slowly and clearly. Do not shout.
  • Be patient and encouraging.

For more on understanding how to deal with Aphasia and other speech related issues click here 

Mood disturbances, like depression and anxiety disorders, are common post-stroke. 

35% to 60% of stroke survivors experience cognitive impairment with impairments in concentration, slowness of thought and response, memory, planning and doing things, perception, communication and language.Porrselvi A.P. a cognitive and psychosocial interventions specialist recommends

  • Screen for cognitive and mood disturbances within 6 weeks post-stroke
  • Start rehab as early as possible as most of the recovery post-stroke takes place in the first three months. 

Read here for more on "Healing The Mind After A Stroke" by Porrselvi A.P

 

Condition

Stories

  • आपातकाल के लिए तैयार रहें
    टॉप 7 इमरजेंसी की स्थितियों के बारे में आवश्यक जानकारी
    मेडिकल इमरजेंसी (आपातकालीन स्थिति) कभी भी, किसी भी समय हो सकती है और हमें तुरंत जोखिम में डाल देती हैं। इस लेख में देखें कि ऐसी सात शीर्ष इमरजेंसी के बारे में आपको क्या जानना चाहिए और जानें कि इन्हें बिगड़ने से रोकने के लिए आपको तुरंत क्या करना चाहिए। 1. दिल का दौरा (हार्ट अटैक) सबसे आम और जान को खतरे में डालने वाली इमरजेंसी में से एक है - दिल का दौरा (हार्ट अटैक)। इसे चिकित्सकीय भाषा में मायोकार्डियल इन्फ्रक्शन (एमआई) कहते हैं। तत्काल कार्रवाई से हम हार्ट अटैक के केस में जीवन बचा सकते हैं और इस…
  • A person calling emergency services and the text Be Prepared For Emergencies
    Top 7 Emergencies Everyone Should Know About
    Medical emergencies work on their own timeline. They do not discriminate and when the time comes, time is of essence. Here are the top 7 emergencies everyone should know about and what you should do immediately.    HEART ATTACK One of the most life threatening and commonly encountered emergencies is heart attacks or in medical terms Myocardial Infarction (MI). Immediate action can change the outcome and save lives. What to expect: A heart attack occurs when the plaque mostly made of…
  • स्ट्रोक रीहैब (पुनर्वास): मेरी सबसे बड़ी प्रेरणा आंतरिक है
    स्ट्रोक रीहैब (पुनर्वास): मेरी सबसे बड़ी प्रेरणा आंतरिक है
    सोनल गोरेगांवकर को माउंट एवरेस्ट के बेस कैंप तक चढ़ने के वक्त एक स्ट्रोक हुआ जिससे उनकी बोलने की क्षमता चली गई। इस स्थिति को ग्लोबल एफेशिया (व्यापक वाचाघात) कहा जाता है। इस लेख में उनके सामान्य जीवन को फिर से शुरू करने और काम पर वापस लौटने के लिए आवश्यक उनके धैर्य और दृढ़ संकल्प की कहानी है, और उनके साथ किए गए एक वीडियो साक्षात्कार पर आधारित है। मैं सोनल गोरेगांवकर हूं। मुझे सब लोग बहुत प्यार करते हैं । । मेरा परिवार और दोस्तों के अनुसार मैं एक सहानुभूति रखने वाली, दूसरों का खयाल करने वाली…
  • Shailaja profile picture in a yellow blouse and sari
    गर्भावस्था के दौरान स्ट्रोक होना मेरे लिए एक चेतावनी था
    38 वर्षीया शैलजा बुवनेश्वरी एस को अपनी दूसरी गर्भावस्था के दौरान बिना किसी भी चेतावनी के अचानक स्ट्रोक हुआ। वे इस लेख में बताती हैं कि वे कैसे धीरे-धीरे ठीक हुईं और अपने बच्चों और परिवार की देखभाल करने के लिए उन्होंने कैसे अपनी ताकत फिर से प्राप्त की। कृपया हमें अपनी स्थिति के बारे में कुछ बताएं: मुझे अपनी दूसरी गर्भावस्था के 27वें सप्ताह के दौरान टीआईए (ट्रांसिएंट इस्कीमिक अटैक्स या अस्थायी स्थानिक अरक्तता) हुआ था। यह एक प्रकार का मिनी-स्ट्रोक (अल्प आघात) है। मेरा थ्रोम्बोलिसिस किया गया (रक्त…
  • Stroke During My Pregnancy Was A Wakeup Call
    Shailaja Buvaneswari S,38 suffered a stroke during her second pregnancy, a sudden attack without any warnings, whatsoever. She talks about how she slowly recovered and got back her strength to look after her children and family. Please tell us a bit about your condition: I had a TIA (Transient Ischemic Attack) during my 27th week of pregnancy (second). I was thrombolysed and the baby was monitored for the next one week while I was given mild physiotherapy in the hospital. I was discharged after…
  • Payal in a brown dress holding her mother in a yellow kurta and white dupatta from behind
    पिताजी के स्ट्रोक के बाद पूरा परिवार मेरी माँ (प्राथमिक देखभालकर्ता) का समर्थन कर रहा है
    पायल के पिताजी को स्ट्रोक हुआ, और उस के बाद के वर्षों में पायल ने उनमें होने वाली शारीरिक और मानसिक गिरावट को करीब से देखा है। पायल और उनकी माँ पिताजी की दैनिक देखभाल में सक्रिय भूमिका निभाते हैं और देखभाल समय के साथ कठिन हो रही है। हमें अपने पिताजी की स्थिति के बारे में बताएं मेरे पिताजी को 15 साल पहले ब्रेन स्ट्रोक हुआ था और वे दिन-ब-दिन धीरे-धीरे बिगड़ते जा रहे हैं। उन्होंने अपनी अधिकांश याददाश्त खो दी है और अपने बच्चों के नाम तक याद करने के लिए संघर्ष करते हैं। अकेले रहने पर वे अकसर इधर-उधर…
  • An image with a hand crushing cigarette butts on the left and hands holding a heart to indicate how quitting tobacco saves the heart
    How Quitting Tobacco Improves Heart Health
    Tobacco increases risk of multiple heart diseases. But people who quit tobacco reduce their risk of dying from a heart disease significantly. Read more to understand the consequences of tobacco consumption and the benefits of quitting tobacco. Tobacco can affect the heart and the entire cardiovascular system including the blood vessels. According to the WHO and World Heart Federation, 1.9 million people die from tobacco-related heart diseases every year. Even occasional intake of tobacco and…
  • Rima standing behind her father who is in a wheelchair and has a pillow on his lap
    Writing Made My Father Come Alive In The Novel
    Rima Pande in her debut novel, His Voice, writes a fictionalised narrative about the teeming thoughts swirling in her father’s mind for two years as he lay conscious but paralysed and unable to speak due to two successive strokes in a month. There are great insights into caregiving. Read it. Could you tell us a little bit about the experience that led to your writing ‘His Voice’? My father had two successive strokes within a month, leaving him paralyzed and unable to speak or communicate in any…
  • Stroke Rehabilitation: My Biggest Motivation Is My Inner Self
    Sonal Goregaonkar suffered a stroke while climbing the Everest base camp, which took away her ability to speak, a condition known as Global Aphasia. This is a story of her grit and determination to regain a normal life and get back to work based on a video interview with her. I am Sonal Goregaonkar. I am a loveable soul. My family and friends describe me as an understanding, caring person and an ambitious person. My key pillars of my stroke recovery was my faith in myself, my faith in my…
  • Image Description: An elderly person with a walker and supported by a caregiver
    बुजुर्गों में अकसर दिखने वाले ऐसे 12 लक्षण जो गंभीरता से लेने चाहियें
    वजन का बेवजह घटना, याददाश्त की समस्याएँ, कमजोरी और गहरी थकान जैसे लक्षणों को "सामान्य उम्र बढ़ने" की प्रक्रिया न समझें - ये किसी गंभीर समस्या का संकेत हो सकते हैं । इस लेख में डॉ शीतल रावल ऐसे 12  लक्षणों के बारे में बता रही हैं जो बुजुर्गों में अकसर पाए जाते हैं पर जिन्हें अनदेखा करने के बजाय आपको डॉक्टर की राय लेनी चाहिए।  वही लक्षण जो एक युवा व्यक्ति में एक कारण से हो सकते हैं वे बुजुर्गों में दूसरे कारणों से हो सकते हैं।  युवा व्यक्ति में शायद वे इतने गंभीर न हों, पर बुज़ुर्ग…