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Submitted by Pankajsethi on 3 June 2016

Hello Friends

I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and other people who seek information and help on Thalassemia.

lets seek this discussion topic to introduce our self, So we all can know each other and can create a good network to work on global platform, also the other Discussion topic will not get effected wit it. 

Let's share a bit about us here so we really get some inspiration from all of you. 

To start with let me introduce myself. 

 Name: Pankaj Sethi

Age 29

Country /City India (Mumbai)

Thal Major (chelating: Desferal & Kelfer (L1))

yta.mum@gmail.com / 9768004545 

Job / Profession : Own's Travel Agency  

Thank you All, hope to see your all active. 

Karishmas

Sun, 02/19/2023 - 19:50

Hello everyone, I a new member of this community. My 10 year old son is a thalassemia major. I wanted to understand can we enjoy a normal life expectany if we do regular blood transfusion and chelation?
Also is there any WhatsApp group of Thalassemia Mumbai

Dear Karishmas

Sorry for a very late response. Will get back on the whatsapp group for thalassemia mumbai shortly 

You can read some of our patient stories. They do live well and productive lives with regular transfusion and chelation. There is also an article for Bone marrow transplant https://www.patientsengage.com/conditions/bone-marrow-transplant-right-…
 

 

PatientsEngage

Sun, 06/18/2023 - 17:57

There is a YTA whatsapp group in Mumbai. You can contact Sangeeta Wadhwa and she will add you to the group

Emailing you her whatsapp number