Knowing more about Lupus helps you make better informed choices and manage it well. Don't miss out on the webinar series on managing the various aspects of living with Lupus
Lupus is an autoimmune disease in which the immune system attacks its own tissues, causing widespread inflammation and tissue damage in the affected organs. It can affect the joints, skin, brain, lungs, kidneys, and blood vessels.
With the support of Biocon Biologics, we bring a series of webinars with…
Lupus
Rheumatic conditions like Lupus, Anklosing Spondylitis, Scleroderma and Sjogren's Syndrome affect people in a myriad ways. These often create body image issues and impact self esteem. We spoke with patient leaders Kirtida Oza, Neetu Wadhwa, Vachasamrita, Ami Shah and Mental health therapist Arouba Kabir on the common issues faced by persons with Rheumatic Conditions and how they can reclaim their self esteem. Kirtida, founder Sjogren's India Neetu Wadhwa, co-founder Scleroderma India…
This webinar held on 30th March, 2020 was an informative session with Dr Sapan C Pandya on how patients who are living with a rheumatological conditions can manage their condition during this current pandemic and lockdown period. Are people with Rheumatic diseases more vulnerable than others to the COVID infection? There is no evidence that people who have immunosuppressant diseases will get the corona virus infection more than others. They may be more susceptible for complications once they…
Dr. Chethana Dharmapalaiah, Rheumatologist at Aster CMI, Bengaluru shares her experiences on sharing a Lupus diagnosis with her patients, the stories of hope amidst all the despair. I have been practising as a rheumatologist since more than a decade. I was barely exposed to a handful of patients with rheumatoid arthritis and an even lesser number of patients with lupus during my undergraduate training. No doubt the awareness has increased now amongst doctors across specialties and the…
The patient-led Lupus Trust India is creating a holistic support network for Lupus patients in India. As they prepare for awareness campaigns for World Lupus Day, watch this space for the resources they are putting together. Contributed by Suzanne Sangi Ask any Lupus patient in India how they felt right after their diagnosis, and you’re sure to hear them say “It’s the first time I heard about Lupus” or “It felt like I was the only one”. Why? Because in India, nobody talks about this…
On World Kidney Day, Dr Jayesh Lele, earlier National Secretary, Indian Medical Association, helps us understand why women are more likely to have an increased risk of kidney diseases than men. The theme for World Kidney Day 2018 is ‘Kidneys & Women's Health: Include, Value, Empower’. It aptly highlights the importance of women’s kidneys health and the need to create awareness amongst women as well as give them equal access to healthcare all over the country. Researchers have shown…
Texan Chuck Dandridge became the first adult in the U.S. to receive a newly modified stem cell transplant that uses genetically engineered blood cells from a family member. This was announced by researchers at UT Southwestern Medical Center’s Harold C. Simmons Comprehensive Cancer Center where the procedure was performed. PatientsEngage interviewed Dr. Madhuri Vusirikala, Director of UT Southwestern’s National Marrow Donor Program, part of the stem cell transplant program. 1.…
