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Submitted by PatientsEngage on 8 July 2019
Webinar recording of panel discussion on Living Better with Parkinsons focussed on early stages

An insightful panel discussion with persons with Parkinson's Disease and the Head of therapy and research at PDMDS on the early stages of Parkinson;s Disease with in our ‘Living Better’ series. In partnership with PDMDS.

This session focussed how patients dealt with their diagnosis, the various activities they engage in, the challenges posed due to their symptoms, changes in lifestyle, how it affects relationships, and perspectives in life.

We spoke with persons with Parkinsons and Head of therapy & research at the PDMDS on strategies and activities that help manage Parkinson's better. 

Persons with Parkinsons: Gargi Ahluwalia, Mario Pinto, and Kiran

Head of Therapy and research, PDMDS: Nicole D'Souza 

Date Time: Apr 12, 2019 4 PM India

Follow the link below for an insightful and interesting session with the following panelists on the following topics:

  • The moment of diagnosis is often a momentous inflection point/ unforgettable event for Parkinson’s patients. What were the symptoms or event that led to a doctor’s diagnosis
  • What was your reaction to the diagnosis? Who was the first person you told about it? How did you move from shock and denial to acceptance?
  • Parkinson’s requires pro-active management with a multi-disciplinary therapy approach. Nicole on the various types of therapies and activities that can help persons with Parkinsons?
  • How do you incorporate the various activities into your daily and weekly schedule?
  • What is your approach to handling social obligations – parties, social engagements, weddings - and still ensure that you get adequate sleep, have your meds on time and have the time for the exercises 
  • Tell us about some of your other symptoms (handwriting, speech, constipation) and how you manage 
  • How do you motivate yourself to keep doing all the exercises and therapy activities?  
  • Role of family, support group, activity groups 
  • Are there any myths or misconceptions you have faced? The most annoying thing someone said to you 
  • How do you cope emotionally? What do you think as you look to the future?
  • And finally your advice to others struggling to cope with the condition – what can they do to feel more empowered and in control