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Rushabh, a person with GNE Myopathy on a wheelchair in an outdoor setting with text overlay of Cherishing the gift of life with GNE Myopathy
Persons with disability should be considered an asset, not a liability
Says Rushabh Desai, 34, an investment adviser, who has been living with rare genetic disorder GNE Myopathy for the last 16 years. Here he shares his thoughts on the importance of being financially and emotionally independent and empowering oneself…
A family of parents holding a young child with overlay text on blue background that says My Child Has Alagille Syndrome and Congenital Heart Defect
Accept The Rare Disease Diagnosis And Educate yourself
Suchismita Haldar is a full time caregiving mom to her 3 year old son who was diagnosed with Alagille Syndrome at birth. She talks about her journey as well as the awareness campaign she conducts. At what age was your son diagnosed with Alagille…
Two blind women conducting tactile breast examination
Blind Women Can Lead The Way In Early Breast Cancer Detection
Discovering Hands initiative in India is a project that empowers visually challenged women to find a foothold in the medical world as Medical Tactile Examiners in the area of breast cancer by examining women for early detection and hence a reduction…
Image of the author in a red jacket and woollen caps with the text Recovery after Traumatic Brain Injury
Writing Helped Me Recover Faster After Brain Injury
Rohit Gupta, 32, who suffered Traumatic Brain Injury, was in coma for six months with bleak chances of survival. But he defied all odds, recovered miraculously, authored a book, and is helping create awareness about TBI, stigma and social isolation…
A graphic of a man in despair against a rollercoaster in the background, diabetes ribbon and patientsengage logo and text overlay of Diabetes: Emotional Rollercoaster
Overcoming The Emotional Rollercoaster Of Diabetes
NR* an ex-athlete, 60+ year old ex-consultant was diagnosed with diabetes 23 years ago. While his diabetes is under control with oral medication, his journey has been replete with ups and downs. In this article, he shares the highlights of his…
A profile picture of Aubrey Millet in a blue shirt framed in blue with a blue diabetes ribbon and patientsengage logo and the text I controlled my diabetes
My Taste Buds Have Got Used To No Sugars
Aubrey Millet, 75, achieved remission from type 2 diabetes over two years ago. Here we catch up with him again to find out how he continues to maintain a strict control on his diet and abstains from all forms of sweets.     You have…
Learning to Live and Thrive with Bipolar Disorder
Aparna Piramal Raje, writer, educator and adviser, has been living with bipolar disorder for 20 years. In her latest book ‘Chemical Khichdi’ she brings us close to her manic depression, her vulnerability and therapies that have helped her succeed.…
Woman standing on the beach with a cane in hand and overlay of text in white on purple background - I lost my sight, not my vision, Rare neuro condition experience
Learn About Your Condition To Manage It Better
Kavya Poornima Balajepalli lost her eyesight at 21 after a brief period of intense headaches due to Idiopathic Intracranial Hypertension (IIH), a rare neurological disorder. Here she talks about her struggles after loss of vision, how she manages…
Profile pic of Author Anjana with the cover of her book
Stay Positive, Supportive And Calm When Parenting Child With Diabetes
Anjana Tripathi was shocked to find her daughter diagnosed with type 1 diabetes at an early age of 14. Their world underwent a sea change trying to adjust to the needs of the condition. She shares here all the challenges that they as a family…