Graves Disease, Celiac Disease, Hashimoto Thyroiditis, Lupus, and other Auto Immune Conditions. If you would like us to add more, please suggest
This is an autoimmune disease. Please add this also.
On World Scleroderma Day, Scleroderma India had organised an online conference. One session was a detailed discussion by Dr. Kaushik Bhojani, senior Rheumatologist, Mumbai on the effect of Scleroderma on the sexual health of Scleroderma patients and how they can address it to improve quality of life. This session is also applicable to persons living with Sjogren’s Syndrome and Myositis. Scleroderma is primarily a disease of women although it can affect men and, in some cases, quite severely. So…
Rashne Dubash, 76 year old from Mumbai shares her journey of living with Rheumatoid Arthritis for over two decades. She talks about her symptoms, how she manages her health and the lessons learnt. Rashne Dubash is an energetic vibrant person who does not want any disease to curb her lifestyle. She continues to be active, refuses to retire and loves her life. She used to work as an administrator for a school and now works for a design firm. Please tell us a bit about your condition? I have…
Maxwell Gomes, 34 is living with a debilitating condition called Ankylosing Spondylitis in Kolkata which is so painful that it can even paralyse a person. Delayed diagnosis just makes it worse. Maxwell talks about how he manages AS as well as a host of other related issues. How would you like to introduce yourself? I am Maxwell Gomes, 34yrs from Kolkata, suffering from Ankylosing Spondylitis – HLA B27 positive. I’m suffering since 2013, but I was only diagnosed as late as in August 2015. I work…
Sjögren’s India and PatientsEngage invite you to the Sjögren's Dialogues, an interactive webinar focussing on Exploring Neurological and Mental Health Complexities associated with living with Sjogren's Syndrome. Sjögren’s India and PatientsEngage invite you to the Sjögren's Dialogues, an interactive webinar series where patients and healthcare professionals engage constructively to understand lesser discussed aspects of a complex condition called Sjögren's Syndrome. This year, the focus is…
शुष्क त्वचा से कई लोग प्रभावित होते हैं पर शोग्रेन्स सिंड्रोम वाले लोगों में शुष्क त्वचा एक विशेष चुनौती है। नीचे देखें शोग्रेन्स इंडिया द्व्रारा प्रकाशित एक पर्चा जिसमें शुष्क त्वचा से बचाव और उसके उपचार के लिए कुछ टिप्स हैं। शोग्रेन्स सिंड्रोम से उत्पन्न शुष्क त्वचा की विशेष देखभाल जरूरी है। खुजली, लालिमा, फटना या गलना – यह सब शुष्क त्वचा के लक्षण हैं। शुष्क त्वचा का प्रमुख कारण है शोग्रेंस द्वारा शरीर में प्रतिरोधक क्षमता की कमी और इससे नमी पैदा करने वाली ग्रंथियों का निष्क्रिय…
Ashwini Nalhe, 33 from Nagpur has been battling Scleroderma and a few other auto immune conditions for over 10 years now. These are rare conditions which people don’t know about, hence don’t understand. But this has torn Ashwini’s life apart in more senses than one, and yet she has learnt to pick up the pieces and move on. Please tell us a bit about yourself and your condition. I am an engineer and also a lawyer by profession. I have been suffering from a set of autoimmune,…
Aakansha Khadiya is a fun loving foodie who loves trying out different cuisines, loves dancing and travelling and yet has to grapple with a condition which is not understood, is difficult to diagnose but affects the body in various ways. Please tell us a bit about your condition I am suffering from a number of autoimmune diseases namely Scleroderma, Raynaud’s Phenomenon, Sjogren’s Syndrome since the past 14 years. When were you diagnosed? I was diagnosed with Scleroderma at 17 just after…
42 साल की नीतू स्क्लेरोडर्मा होने से पहले एक सॉफ्टवेयर कंसलटेंट थीं, पर स्क्लेरोडर्मा ने उनके जीवन को और उनकी पहचान को बदल दिया। इस लेख में वे स्क्लेरोडर्मा होने के अनुभव और उस की चुनौतियों के बारे में बात करती हैं और साझा करती हैं कि कौन से जीवन शैली के बदलाव उनके लिए कारगर रहे हैं। वे अब स्क्लेरोडर्मा इंडिया की सह-संस्थापक हैं। यह 2019 में किए गए एक इंटरव्यू का अनुवाद है | कृपया हमें अपनी स्थिति के बारे में कुछ बताएं, आपको निदान कब मिला और आपके शुरुआती लक्षण क्या थे? जनवरी 2006 में…
Rashmi Bhasin,48 suffers from a rare autoimmune condition called Scleroderma, as well as a host of other issues. It hasn’t been easy for her, but she doesn’t like ‘giving up’, which keeps her going through difficult times. Who is Rashmi, the person Rashmi as a person is very outgoing, loves travelling, meeting people, loves baking and cooking, is a movie buff and loves online shopping. Ready to do anything for anyone. Loves children. Loves animals. Please tell us a bit about your condition…
On World Lupus Day, we ask Lupus patient advocates about their experience in Lupus management and what they think of the theme this year which focusses on "Let's make Lupus visible" Vachasamrita 1. What has been the last year like in terms of challenges in handling Lupus? I have been living with 8 years of Lupus, but since mine is a case of juvenile Lupus, it’s been aggressive with rare reactions and drug intolerances. Last year has been more about about handling the…
I have a auto immune disease known as Phemphegus vulgaris
Scientists have successfully treated a patient with disfiguring sarcoidosis, a chronic disease that can affect multiple organs, with tofacitinib. a drug approved for rheumatoid arthritis. Sarcoidosis is an inflammatory…
Research shows that Iron deficiency, measured through the size variation of red blood cells, is correlated with increased fatigue in systemic lupus erythematosus (SLE) patients,. The association seems to be independent of age, ethnicity,…
Chandra Mohan, a Houston based Indian origin professor and his colleagues have received a private grant of USD 600,000 for their brilliant and pathbreaking research to develop a new…
what meds are good I'm looking into armour cause the synthetic ones don't do anything for me? also stem cell trails in the us, do anyone knows any?
diet for health
arthritis friendly kitchen ebook download
Hello Friends
I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and…
There is an increase in diagnosis of auto immune conditions in India -
Rheumatoid arthritis, Ankylosing spondylitis, Lupus, Thyroiditis (Hashimoto’s disease), Inflammatory bowel disease
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A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are…-
A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are…
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A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are…
