Youth Thalassemic Alliance

  • Youth Thalassemic Alliance
    1209 member(s)

    Our Motto 1. To assist patients suffering from thalassemia in securing medical treatment, including hospitalization and in securing transfusion of blood. 2. To monitor closely the medication, growth and thalassemia management. 3. To conduct blood donation camps in general and for thalassemia patients in particular 4. To organize and assist in organizing screening and medical camps for thalassemia patients. 5. To conduct on regular basis, or as may be found necessary, counseling or guiding centers or activities for thalassemia patients. 6. To organize social events for thalassemia patients. 7. To create awareness about thalassemia in the society in general by organizing and conducting lectures, publishing pamphlets, books and literature and through electronic media.

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  • Plea from a Person with Thalassaemia for Life Saving Drugs
    Bangalore based Dr. Namitha A. Kumar, a person with Thalassaemia, reports on the acute shortage across the country of Desferal, a survival drug for patients with thalassemia. On behalf of the patient community, she implores the Union Government to intervene to address uncertainty and ensure clear communication on continued supply of the drug to patients. Thalassemia major patients in India are more than 100,000(1 lakh) in number. We depend on monthly or bi-monthly blood transfusions to survive…
  • Let’s donate blood and save lives
    Give blood. Give now. Give often.  On World Blood Donor Day, Dr Nikhil Nasikkar, a frequent blood donor, points out the acute shortage of blood in our hospitals and implores potential donors to donate blood generously to save people who die every year due to its scarcity. Most middle and low income countries have low blood donation rates. I first donated blood on my 19th birthday. My friends were pestering me to cut a cake and throw a party. But I am not much into…
  • An image of a person in a white shirt and blue denims holding a red placard with text in white Give Blood Save Life
    Blood Donation Guidelines
    Donate Blood. Save Lives. Can you donate blood or platelets? How should you prepare before a blood or platelet donation and what care do you need after a blood donation. All in one place. Dr. Shital Patel explains.  Eligibilities for Blood Donation Must be currently in good health with no active infection. Donor must be between 18-60 years of age. Donor must be no less than 45 kgs in body weight. Donor’s haemoglobin level must be no less than 12.5g/dl for females and 13.0g/dl for males.…
  • How I Live with My Thalassaemia
    World Thalassaemia Day 2016 Thirty-year-old Imran, born with Thalassaemia Major, does not see himself as a tragic victim at the mercy of his illness, but leads a high-spirited life with friends, food and music and a job at a leading software firm in Mumbai. My name is Imran Mohammad Ali. I was born with Thalassaemia Major, an inherited blood disorder which causes the body to produce abnormal haemoglobin red blood cells. I need to get blood transfusion regularly to keep me…
  • Stock image of blood drop against a red background and text overlay on blue strip How to prevent thalassemia
    How to prevent Thalassaemia
    A simple health check up for Thalassaemia carrier status before starting a family can save your child from becoming a patient of Thalassaemia Major, unending cycle of injections, suffering and misery, says haematologist Dr Mamta Manglani. What is Thalassaemia? Thalassemia syndromes are a group of genetic haemoglobin disorders. The haemoglobin molecule is abnormal and therefore, does not allow the red blood cell to survive for its life span, leading to anemia in these…
Want to know where to get free blood transfusion
I am Ankur. I am thalassemia major. I live in Bangalore. I want to know where to get blood transfusion for free in Mumbai near by Virar because by grand parents live in Mumbai. So I want to go to Mumbai summer. So I want to where I can get blood…
Diet consideration for Thalassaemia
Are these special diet considerations for people with Thalassaemia? What are the things you think about on a day to day basis? When you go out to eat?
Introduction
Hello Friends I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and…

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