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  • A young woman in white top sitting sideways framed with a purple border with the lupus butterfly symbol and the the text Living with Lupus and patientsengage logo
    लुपस को जीवन का एक अंश मानें
    26 वर्षीय श्रेया शुक्ला, कानपुर (उत्तर प्रदेश) में अपनी खुद की डिजिटल मार्केटिंग एजेंसी चलाती हैं। उन्हें जुवेनाइल लुपस (बचपन में होने वाला लुपस) है। इस लेख में वे साझा करती हैं कि कम उम्र में लुपस होने का उनका अनुभव साझा क्या था – इस में उनके विलंबित और गलत निदान से लेकर अपनी स्थिति का प्रबंधन और स्वतंत्रता प्राप्त करने की यात्रा और अनेक जटिलताओं का वर्णन शामिल है। लक्षण और निदान नवंबर 2008 में, जब मैं 12 साल की थी, मुझे शरीर में दर्द, जोड़ों में दर्द और हल्का बुखार हुआ, और जब मैंने अपने…
  • Picture of the writer, an elderly woman with Rheumatoid arthritis and Long covid sitting in front of a window and the text overlay Long Covid Experience
    Living With The Disequilibrium of Long Covid
    74 year old Jacqueline Colaco, who has lived with Rheumatoid Arthritis for many years, shares her experience of dealing with Covid, Long Covid, dry eyes, hearing loss, fatigue and its impact on her overall health and quality of life. My encounter with the Covid delta strain manifested one morning in January 2022, when I experienced acute weakness and a mighty cough. The nurse on duty at the Senior Citizen Home where I reside, immediately referred to my doctor, who advised immediate…
  • Stock image of woman holding her neck which has an image of a thyroid gland superimposed
    Thyroid FAQs: Frequently Asked Questions about Thyroid Conditions
    The thyroid gland plays a crucial role in controlling vital functions. There are multiple thyroid disorders. PatientsEngage addresses some of common and frequently asked questions on thyroid related issues. The thyroid gland is one of the most essential glands in the body. It is fundamental to the functioning of several organs, such as the kidneys, liver, brain, heart, and even skin. The thyroid is a butterfly-shaped gland at the lower-front part of the neck, just below the Adam's apple. It is…
  • A stock pic of a side profile of a woman against a sunset and the text Living with Lupus
    "Lupies Need Much Strength And Mental Support"
    Amita*, a 20 year old working woman from Mumbai, with a diagnosis of Juvenile Lupus shares her experience of dealing with this condition, the emotional and financial toll it took on her and how she has come to realise the importance of medication adherence.  Symptoms, Diagnosis and Treatment It was around 2018 when I was pursuing my SSC and one day when I came home my mom saw a bald patch in my hair. Like a bunch of hair somebody had cut it off. So we panicked and after visiting a…
  • Headshot of Neetu Wadhwa Scleroderma Patient Advocate in a rose frame
    Remembering Patient Advocate Neetu Wadhwa
    Neetu Wadhwa, co-founder Scleroderma India, a patient advocate committed to improving lives of those affected by Scleroderma. As we relive the memories of our interactions with Neetu, let us resolve to continue to champion for the rights and wellbeing of patients and their families. Rashmi Bhasin, Trustee and Core Committee Member, Scleroderma India  Today marks one year to the untimely passing of our dear NEETU.  She was a Warrior in true sense.  I always remember her smiling…
  • Young woman with Lupus in a hat in profile against a lake and mountains
    Manage Lupus In Partnership With A Rheumatologist
    Debalina, a 25 year old student based in Kolkata, with a delayed diagnosis of Juvenile Lupus, no referral to a Rheumatologist and potentially inadequate treatment plan for 10 long years. She shares her experience of the complexities of this condition and the need for Lupus awareness for timely and appropriate treatment. Diagnosis & Treatment I had no specific symptoms till I was 13. Till about 2008, I experienced headache from time to time when exposed to sunlight. Doctors thought I had a…
  • Silhouette of a young woman dancing and the sun shining through her scarf dupatta and the text living with lupus
    Lupies: Looks Are Not Everything
    Aqsa, a 17 year old from Mumbai, shares her journey of navigating Juvenile Lupus as a young teenager, including understanding the disease and seeking the right treatment. Key learnings are accepting the side effects of medications and the importance of family and social support. Symptoms, Diagnosis and Treatment I was first diagnosed when I was 12-13 years old and in 7th grade. I had swelling on my feet, but was too young to understand the disease. I went to Judo classes and had joint pain,…
  • A young woman with Lupus wearing specs and a grey full sleeves shirt standing in front of a water body
    Lupus Has Made Me A Stronger Person
    Thanusree, 27 years old from Chennai has lived with a Juvenile Lupus diagnosis since 2010. She shares her experience of the challenges of getting a diagnosis and managing the emotional ups and downs of SLE. Symptoms and Diagnosis In 2010, during my 10th grade when I was 14, I had a blood clot and was advised a blood test which we took lightly and did after 2 weeks. However the day after the blood test, the lab called me and told my parents that I need to be admitted immediately in the ICU as…
  • Stock pic of mother and child on a beach against a sunset with overlay text Living with Lupus
    "My Daughter Was Diagnosed With Lupus At 5 Years"
    Priya, an HR professional, based in Thiruvanathapuram, Kerala and mother to Divya (names changed to maintain anonymity), 9 year old with a diagnosis of Juvenile Lupus shares their experience of the complexities of this condition in a young child and how she tries to let her daughter maintain a "normal" routine.  Symptoms and Diagnosis: My daughter Divya was born in 2014. She was first diagnosed with Lupus SLE on June 15 2019 (her grandmother’s birthday) when she was 5 years old. Divya was…
  • A young woman in white top sitting sideways framed with a purple border with the lupus butterfly symbol and the the text Living with Lupus and patientsengage logo
    Treat Lupus As A Phase Of Life
    Shreya Shukla, 26 years, runs her own Digital Marketing Agency, based in Kanpur, UP and lives with a diagnosis of Juvenile Lupus. She shares her experience of the complexities of Lupus at such a young age, from delayed and wrong diagnosis to managing the condition and her journey to independence. Symptoms and Diagnosis In November 2008, when I was 12, I had body ache, joint pain and mild fever and when I consulted my doctor, I was treated first for Chikungunya. Prior to this in 2007, I had had…
This is an autoimmune disease. Please add this also.
I have a auto immune disease known as Phemphegus vulgaris
Scientists have successfully treated a patient with disfiguring sarcoidosis, a chronic disease that can affect multiple organs, with tofacitinib. a drug approved for rheumatoid arthritis. Sarcoidosis is an inflammatory…
Research shows that Iron deficiency, measured through the size variation of red blood cells, is correlated with increased fatigue in systemic lupus erythematosus (SLE) patients,. The association seems to be independent of age, ethnicity,…
Chandra Mohan, a Houston based Indian origin professor and his colleagues have received a private grant of USD 600,000 for their brilliant and pathbreaking research to develop a new…
what meds are good I'm looking into armour cause the synthetic ones don't do anything for me? also stem cell trails in the us, do anyone knows any?
diet for health
arthritis friendly kitchen ebook download
Hello Friends I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and…
There is an increase in diagnosis of auto immune conditions in India -  Rheumatoid arthritis, Ankylosing spondylitis, Lupus, Thyroiditis (Hashimoto’s disease), Inflammatory bowel disease There was an article in…
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