Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Try Tai Chi To Build Immunity And Reduce Stress
    Tai Chi, the ancient martial art from China, may be widely known as a self-defense art, but has abundant health benefits that can help cure ordinary ailments to life threatening diseases, says Tai Chi guru Carlton Hill.  What is Tai Chi? How is it different from other martial arts? Tai Chi Chuan or Taijiquan is a five thousand year old martial art practised in China. Though, in present times, it is mostly practised for its health benefits. Tai Chi Chuan is unique because one can…
  • To tell or not to tell - the caregiver's dilemma
    Breaking bad news to patients can be daunting and difficult, especially for caregivers.  Maya Ramachandran narrates her experience when she and her husband were caught in such a catch-22 situation.   My husband’s close relative was experiencing sudden onset of bleeding after almost 25 years post-menopause, at the age of 75! Fearing that it could be cancer, she had shied away from meeting doctors. After a whole year of having struggled with this almost alone, she …
  • A wish for no one to endure unnecessary pain
    Harmala Gupta traversed the journey from being a cancer survivor to founding CanSupport, a home based Palliative Care service in Delhi and NCR. CanSupport also runs out-patient clinics. Harmala Gupta shares her views with PatientsEngage on Palliative Care. PE: According to the ACHEON study ("The non-interventional, anonymous, non-biased ACHEON survey was the first and largest cross sectional evaluation of physicians’ and patients’ perspectives on cancer and non-cancer pain management…
  • I never wanted my mother to go into a dementia care home
    Carol D’Souza, a consulting psychologist, recounts her mother’s advancing dementia and how she and her family made peace with the agonizing decision to put her in a care home. Putting my mother in a Home was one of the most difficult decisions made by my family and me. Onset of dementia seemed so sudden for her; it started with bizarre behavior of her staying awake all night – worrying about all sorts of things she absolutely did not need to.  Her life had turned into a…
  • Multiple Sclerosis Society of India Chennai Chapter.
    The Multiple Sclerosis Society of India was established in 1985 at Mumbai. Mrs. Rehmat Fazelboy, a social worker and Mr.Tobaccowalla (Chairman, Voltas Ltd, Mumbai) are the founding members. Presently there are 9 chapters with 2 support groups.  The Chennai Chapter was inaugurated on September 1997. Our patron doctor is Prof.Dr.G.Arjundas. Mrs.Ann Gonsalvez is the Chairperson of the Chennai Chapter. We have about 210 patients on our rolls in Chennai.  Our Vision: Create awareness of…
  • The case for Palliative Care
    An awareness film made by Indian Association of Palliative Care based on excerpts from over 200 interviews conducted with working and retired nurses across India  
  • Managing Depression and Anxiety with Parkinson's Disease
    People with Parkinson’s may experience extreme sadness of mood and anxiety. This could be due to the Parkinson’s itself or due to the effects of the medication. It is important to acknowledge these emotions and to get the required help. Depression It is natural for everybody to feel sad at times, or to get upset by things. However, after a while or if they are put in another situation, then they may no longer experience these emotions. Sometimes, people tend to experiences these emotions for an…
  • Palliative care in Kerala - lessons and answers
    With a palliative care policy formulated in 2008, Kerala has become a path-breaker and a model for the rest of the country. Professor Devi Vijay of IIM Calcutta provides some insights into this community-based aspect of health care.  1. What can the rest of the country learn from the success of the Kerala palliative care story?How can other countries and communities leverage this community-based model?  There are several elements of the Kerala palliative care movement worth examining…
  • It is important to talk to people with dementia
    Talk to your loved one with dementia; talk to others in your shoes, says Melissa Chan, founder of Project We Forgot, which supports caregivers of patients with Alzheimer’s and dementia. Please share your encounter with Alzheimer’s Disease.  I was about 14 when my dad was diagnosed at age 53. Initially, we were confused because his family had no history of the disease but later the doctors pinned it down to the late-onset of effects caused by a car accident he had…
  • Dementia caregiving challenges and solutions
    Families often find themselves at wit’s end looking after a loved one with dementia. Porrselvi A.P., a cognitive and psychosocial interventions specialist, offers a case study that shows that caregiving challenges can be overcome with the right strategies.  We received a call from a very disturbed Mr. K, who was trying to find a dementia care home for his aged father, Mr. S., aged 73. Mr. K was distressed because he had never thought there would come a day when he would have to seek…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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