Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Role of the family and caregiver of a MS patient
    Multiple Sclerosis or MS is a disease that can easily lead to feelings of isolation. Typically, at some point, it leads to significant physical disability and forces people to leave paid employment. It is particularly difficult as MS hits patients when they are young, just starting a family or developing their career.  The spouse or other family member has to take on the responsibilities of caring for the patient, children and supporting the family financially. As the…
  • Old photos helping trigger memories in people with dementia
    Pictures taken by a little-known photographer between the 1930s and 1960s have found a new use helping to trigger memories and reminiscences among people with dementia. "In the dementia care world reminiscence is up there as one of the leading groups of therapeutic approaches," explains Prof Bob Woods, an expert in the clinical psychology of older people at Bangor University. "Essentially it's a good way of facilitating communication, and so it helps people to feel more socially integrated and…
  • Alzheimer's patients can still feel emotion long after memories have vanished
    A new University of Iowa study further supports an inescapable message: caregivers have a profound influence -- good or bad -- on the emotional state of individuals with Alzheimer's disease. Patients may not remember a recent visit by a loved one or having been neglected by staff at a nursing home, but those actions can have a lasting impact on how they feel. The findings of this study are published in the September 2014 issue of the journal Cognitive and Behavioral Neurology. "Our findings…
  • The Last Days
    What kind of end-of-life care do you want? Don’t leave the burden of such decisions on your loved ones. Make a living will, which will speak for you when you are unable to, says lawyer Lyn Boxall. About two years ago, I answered a phone call from my sister. She lives in my home town, Adelaide in South Australia, and I’ve lived in Singapore for many years. “Mum was found unconscious on the floor of her bathroom this morning and now nothing she’s saying is making any…
  • "Our first clue that something was wrong was in 2012, when she started saying the same thing again and again"
    It may not seem like much, but for Maya, the daily battle over the bath is a sign of further deterioration as her 69-year-old mother slips deeper into her dementia, her personality changing, her memories fading, and simple everyday tasks becoming insurmountable hurdles.  http://www.hindustantimes.com/lifestyle/wellness/world-alzheimer-s-day-lack-of-help-care-in-india-for-patients/article1-1266659.aspx
  • A Marriage to Remember - a filmmaker explores how Alzheimer’s disease has revealed the strength of his parents’ marriage
     "The experience of caring for someone with Alzheimer's can be incredibly isolating, at a time when you need support the most. We are grateful that this process has helped us come together as a family and as a community to celebrate that most precious gift of all : our memories"   http://www.nytimes.com/2014/08/26/opinion/a-marriage-to-remember.html?emc=edit_th_20140826&nl=todaysheadlines&nlid=53809129&_r=0    
  • Caring for someone with Dementia
     Family members, friends, and colleagues want to support persons with dementia, but are unsure how to proceed. Swapna Kishore, who was a dementia caregiver for well over a decade, offers guidance and insights.  http://swapnawrites.wordpress.com/2014/04/29/caring-for-someone-with-dementia/
  • Asthma - will childhood asthma recur?
    Dr. Kavita Chowdhary talks about childhood asthma and shares tips on how to stay healthy  Some children with asthma appear to shake off their condition in their teenage years. But there’s a 50 per cent chance of asthma making a re-appearance once they hit their 30s. Boys are at greater risk than girls. The reason behind this is still unclear.  However, asthma is a chronic condition. Once a person's airways become sensitive in asthma they remain that way for life.…
  • Stock pic of a daughter with her mother and the text what I learnt caring for my mother
    Mothering your mother with dementia
    Paro has been caring for her mother, 86, who has dementia, for the last six years. She is frequently found in doctor’s waiting rooms and has their numbers on speed dial. She tells us what she has learnt from the experience. • Above all else, patience • Flexibility: Every day is different and brings different challenges that require different responses. • When she hallucinates, I do not contradict her as that confuses and upsets her, leading to temper tantrums, even violence…
  • Stock pic of Image of family
    Role of family / friend in treatment of cancer patient
    In the words of Kamini Pradhan, a featured Ovarian cancer crusader Family and friends have a major role to play in the treatment of a cancer patient. A cancer patient can be supported in the following ways :- MENTAL / EMOTIONAL  SUPPORT 1.  Acceptance – Do not be in denial mode. Know and understand the implications of the disease so that you can help the patient in getting the best treatment. 2.  Positivity   -  Please remember in this…
What to do when you've reached your breaking point as a caregiver
I came upon this list of great advice from caregivers on what to do when you feel like you have reached your "breaking point" or a point of true exhaustion or frustration as a caregiver. What are some tips you would give others when they reach this…
Dutch students choose to live in nursing homes rent-free (as long as they keep the residents company)
Read the article here...http://www.thejournal.ie/help-the-aged-1814698-Dec2014/ Would something like this work in an Asian context ? I think its worth a few experiments for sure.      
Share your caregiving story!
I moved the Chennai 3.5 years ago to take care of my beloved grandma who developed breast cancer. Being a caregiver for her was a life changing experience for me. It showed me that even when we are caring for someone we love and even if we enjoy our…
What is your biggest caregiving challenge?
We all experience many joys and many challenges as caregivers. Sometimes talking about the tough aspects of caregiving is a good way to make sure we are not keeping our frustrations and diffficulties bottled up. The more we internalize the stresses…
What do you do to take a break from Caregiving?
One of the most important things that Caregivers need to do for themselves and their loved ones is to take breaks. It is so vital to take time to focus on oneself, recharge, and get some rest. If a Caregiver does not take breaks, it can lead to…
Home nursing options
How do you go about finding the right nurse for the patient or the elderly? What level of knowledge of English is important ? What are the top 3 things you look for ?    
Welcome to the Caregiver Community!
Hello fellow Family Caregivers! It is exciting to have an online forum where Caregivers from India and around the world can come together to share and learn from each other. This is a space where you can pose questions, share your story, and just…
Stores dedicated for senior citizens in India and Singapore
I came across http://www.oldisgoldstore.com/ recently. They have retail outlets in Chennai and ship to the southern states. Do you know of stores like these in other cities ?  We would like to add this information in our Resources centre  

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