Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • "Believe In Your Child"
    In our conversation with Anupama Bakhshy, mother of Pranav Bakhshy, a budding model and a young man on the autism spectrum, we gleaned a few insightful learnings based on her experience. Key take aways for parents of children with special needs, particularly Autism: 1. Keep the child or the young adult at the centre and not his/her disability. 2. Believe in the child. Just because its not been done before, it does not mean it can't be done 3. Follow the child. Align to the child's inclinations…
  • How We Helped Our Son On The Autism Spectrum Deal With Disaster
    Looking at the severe floods affecting Kerala this year, Anita Pradeep reminisces how she and the family, along with her 25 year old son, Sachu, got marooned in the floods last year and how they managed to keep Sachu calm and brave in the face of adversity. Today is 15th August 2019, a day that brings back to mind three days that seemed like three months last year in 2018. Memories come flooding back just like the floods that are lashing out at certain parts of the state. The only difference…
  • "But The Pain Does Not Leave Me"
    Anal Shah's son was 15 years old, when he developed a sudden fever and after a struggle of 20 days, died of multi-organ failure on 27th June 2017. She still struggles with her grief and wrote this heart wrenching note 20 months after his death. To all those who persistently feel I should MOVE ON after my child's death! It seems that my face reminds you of your own mortality. What if something similar happened to your child or your family member? What if you have to endure pain like me? That…
  • A child lying in bed with soft toys on either side of him
    'My Son Continues To Inspire The Perpetual Fight'
    Tahira Tahir from Pune is the Regional Coordinator of Cure SMA Foundation of India and a passionate parent advocate for access to the treatment options for Spinal Muscular Atrophy Type 1, despite losing her son to this rare disease. It’s been less than a year since I heard my life’s most shattering news, although it feels like I’ve travelled ages since then. In October 2018 my angel, the most beloved part of mine, my son Sameer Ahmad was diagnosed with a fatal, debilitating, rare neuromuscular…
  • Responders in yellow outfit helping in disaster management
    Be Prepared For Natural Disasters
    Natural Disasters can adversely affect elderly people and those with chronic conditions. Dr. Shital Raval details the issues faced and how you can be prepared if you are a caregiver to an elderly person or have a chronic condition like Diabetes, Renal and Respiratory Issues, Allergies, Cancer.   Natural Disasters (earthquakes, floods, hurricanes, electrical black-outs, blizzards, cyclones, storms etc.) can have a devastating effect on all but recent studies have thrown light on how…
  • An open and fallen bottle of pills spilt on the table
    What Every Patient And Caregiver Should Know About Opioid Drugs
    Opioids are essential to pain management in patients with chronic and severe pain. Since they are narcotic medications and have side-effects, it is important for patients and caregivers to be aware of the type of Opioid that has been prescribed and possible adverse reactions. Excerpted from Indian Primer of Palliative Care by Pallium India.  Opioids are a class of drugs that are used in pain management in patients with chronic and debilitating pain. They work by binding to opioid…
  • Pain Assessment Scale in colour from green to red
    How to Assess and Manage Pain
    People often have to deal with pain and it is difficult to assess the level of pain across different people. Pallium India has created the Indian Primer of Palliative Care for care providers. With their permission we have excerpted important elements that are useful to understand and manage pain.  Many people with chronic diseases will complain of pain and it being the most overpowering symptom of their condition. Besides physical discomfort, pain affects mental and emotional wellbeing…
  • A Father's Wish For Awareness And Inclusion Of Autism
    A dad of a 25 year old adult on the autism spectrum, and a member of the SCAN support group, Chennai shares the challenges faced by his son, the techniques deployed to overcome these and enable him to be an independent young adult. #AutismDad  Today my son is 25 years old, a MBA post graduate with work experience in Human resources from a reputed company.  My son’s childhood days with autism Looking back it has been a roller coaster ride filled with challenges from the time my wife…
  • How Yoga Helped Them In Managing These Five Chronic Conditions
    Can Yoga help people manage their chronc conditions? We picked out a wide range of conditions where patients have benefitted from practice of yoga.  It is fairly well known that people with certain conditions like Diabetes, Hypertension and Arthritis benefit from regular practice of yoga. You can also download our ebooks on the same from our E-Books Resources Page.  But the benefit of yoga goes beyond that to neurological conditions like Parkinson's and  Epilepsy, auto-immune…
  • Family pic inside a room of a young woman with a white dupatta seated with her silver haired father in a striped green and yellow t-shirt on the left and her mother standing behind them in a red sari and blouse
    A Father's Strong Bond With His Daughter On the Autism Spectrum
    Mr B. Sriram, father of Aishwarya, 38 on the autism spectrum shares a detailed account of their journey through the years, the various milestones, the challenges and successes in helping her become independent.    Aishwarya Sriram, 38, is our ‘child’ with autism, female, being rarer than male on the spectrum. Unless one talks to her it is difficult to guess her condition. There is a popular Chinese proverb that goes: ‘The wind never ceases to blow even if the trees want to rest…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
hello
hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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