Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Family pic inside a room of a young woman with a white dupatta seated with her silver haired father in a striped green and yellow t-shirt on the left and her mother standing behind them in a red sari and blouse
    A Father's Strong Bond With His Daughter On the Autism Spectrum
    Mr B. Sriram, father of Aishwarya, 38 on the autism spectrum shares a detailed account of their journey through the years, the various milestones, the challenges and successes in helping her become independent.    Aishwarya Sriram, 38, is our ‘child’ with autism, female, being rarer than male on the spectrum. Unless one talks to her it is difficult to guess her condition. There is a popular Chinese proverb that goes: ‘The wind never ceases to blow even if the trees want to rest…
  • Are Dads Of Special Needs Children Getting More Involved in Parenting?
    Gopinath Ramakrishnan, Co-Founder and Managing Trustee of Special Child Assistance Network (SCAN), a support group for families of special needs children, reflects on the involvement of Dads in parenting.  When we started the parent support group Special Child Assistance Network (SCAN) in Chennai back in 2015, it was mostly a women and children group. Yes, there were a couple of us dads hanging around, but it was by and large comprised of, and driven by the moms. In fact, the WhatsApp…
  • A woman in a red dress with her elderly father on the right at a laid out table with a green checked tablecloth
    Life Comes Full Circle As I Turn My Dad's Caregiver
    Jyotsna Kumar who lives with Sensiro Neural Deafness reflects on her father, his loves and interests and how her relationship with him has evolved and come full circle as she now cares for him. For my father, on Father’s Day: He cracked open walnuts on door hinges for me. He was the only one in the house who was fearless with lizards and insects. When it rained, he got the car and brought it around to the door. When I was sick he would take me to the doctor and get me my medicines. He would cut…
  • An image which has a vector image of a child on the father's back with the heading - A father child relationship is special
    A Father's Support Truly Matters
    Happy Father's Day This Father's Day we share heartfelt messages from our contributors on their fathers and the significance of the support of their fathers in their journey with chronic conditions and disabilities. If you have a thought to share, do write in to us and we will publish it. Or leave us a comment below. Preethi Srinivasan - He (My father, Srinivasan Narasimhan) was my best friend.  Swati Agrawal - He (Sanjeev Agrawal) helped me through the gloomiest of days  Vijay…
  • A mom in a printed top and black skirt flanked by her adult sons, the one on the left with a dark t-shirt and the one on the right with a blue t-shirt. In the background is a red car parked in front of a building on the right and a fence and trees on the left
    I Am Here Because Of Your Love, Maa
    Vineet Saraiwala, Inclusion Lead, Future Retail Limited, pays an emotional tribute to his mother, a mother of two sons with Retinitis Pigmentosa. A Mother's Day Special. It was my mother’s destiny to have two sons, both with retinitis pigmentosa (RP), a degenerative disease in which vision deteriorates as age progresses. We, my brother and I, are glad that we are not alone in this journey as our mother is equally there in our struggles for the past 25 years. But we never noticed it. My mother’s…
  • A collage of pictures of Nikita with autism mom Anupama Bakhshi and her brother Pranav
    Thank You Mom, For Being The Wind Beneath My Wings
    Not all superheroes wear capes! Nikita Bakhshi appreciates her mother Anupama, not only for all that she has done for her brother, Pranav who is on the autism spectrum but also for the unconditional love she shares with her daughter. A Mother’s Day special! Mother’s Day, or let me say ‘I will post a picture with a long caption day’ – Hold your horses. I’m not saying that’s wrong, I very often post pictures with my mom on my instagram too and shower her with instagram PDA, nobody deserved it…
  • Walking With A Loved One With Bipolar Disorder: Rewarding Yet Taxing
    Hvovi Bhagwagar, a clinical psychologist who works a lot of persons with Bipolar Disorder and their families, puts the spotlight on challenges faced by the family caregivers and what they can do to help the persons with Bipolar Disorder as well as themselves.  Arman is a 32-year-old social activist. He is well-respected for his many welfare activities. Diagnosed with Bipolar II disorder in his teens, his life has been a constant internal struggle. His parents, one of whom was diagnosed…
  • Stock pic of a woman and man holding hands in support
    Support Those Who Have Lost a Loved one to Suicide
    Losing someone to suicide can be traumatic. Nyana Sabharwal, who lost her mother to suicide, co-founded We Hear You, a support group for those bereaved by suicide loss, as an important way to heal, cope and overcome grief. You have set up a unique and distinct peer support group for those bereaved by suicide loss. Could you tell us a little about it? ‘We Hear You’ was set up a year ago to help people who are experiencing bereavement by suicide loss to have a safe space to talk about their…
  • What Is Diabetes Distress And How to Handle It
    Managing your diabetes can seem like a never ending task that leaves you emotionally drained. Dr. Indu Elizabeth Mathew, Consultant, Department of Endocrinology, Ernakulam Medical Centre talks of the concept of Diabetes Distress and how it affects Type 1 and Type 2 patients and their family members and what they can do about it. Updated on 24 March 2019 with the Diabetes Distress Study Details What is Diabetes Distress? Are there different types of distress and worry that affect people with…
  • Patient And Parent Have To Live Through Life With A Lysosomal Storage Disorder
    Mr Manjit Singh, President Lysosomal Storage Disorders Support Society, shares some salient points about the rare disease and about the activities of the organisation, LSDSS. The LSDSS is a national level society with more than 400 patients as members who are represented by elected parents as office bearers, across India. The sole motive of the organisation is to spread awareness about this rare disease as also to help each other in availing of the best facilities available. What are Lysosomal…
What to do when you've reached your breaking point as a caregiver
I came upon this list of great advice from caregivers on what to do when you feel like you have reached your "breaking point" or a point of true exhaustion or frustration as a caregiver. What are some tips you would give others when they reach this…
Dutch students choose to live in nursing homes rent-free (as long as they keep the residents company)
Read the article here...http://www.thejournal.ie/help-the-aged-1814698-Dec2014/ Would something like this work in an Asian context ? I think its worth a few experiments for sure.      
Share your caregiving story!
I moved the Chennai 3.5 years ago to take care of my beloved grandma who developed breast cancer. Being a caregiver for her was a life changing experience for me. It showed me that even when we are caring for someone we love and even if we enjoy our…
What is your biggest caregiving challenge?
We all experience many joys and many challenges as caregivers. Sometimes talking about the tough aspects of caregiving is a good way to make sure we are not keeping our frustrations and diffficulties bottled up. The more we internalize the stresses…
What do you do to take a break from Caregiving?
One of the most important things that Caregivers need to do for themselves and their loved ones is to take breaks. It is so vital to take time to focus on oneself, recharge, and get some rest. If a Caregiver does not take breaks, it can lead to…
Home nursing options
How do you go about finding the right nurse for the patient or the elderly? What level of knowledge of English is important ? What are the top 3 things you look for ?    
Welcome to the Caregiver Community!
Hello fellow Family Caregivers! It is exciting to have an online forum where Caregivers from India and around the world can come together to share and learn from each other. This is a space where you can pose questions, share your story, and just…
Stores dedicated for senior citizens in India and Singapore
I came across http://www.oldisgoldstore.com/ recently. They have retail outlets in Chennai and ship to the southern states. Do you know of stores like these in other cities ?  We would like to add this information in our Resources centre  

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