Caregiver Community

  • Caregiver Community
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    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Tips for Caregivers of Alzheimer's Patients
    Our Best Tips From Caregivers of Persons with Alzheimer's and Dementia
    World Alzheimer's Day 2018 Alzheimer’s is hard, but as we care for our loved ones, we gain experience that can help others. Read the best tips from Shibani Ganguly, Vimal Balachander and Carol Fernandes, caregivers of persons with dementia.  Share your insights. If we share our knowledge, we can all manage better. #YourExperienceMatters    
  • Mausumi, a dark haired woman on the right with her mother, a person with dementia on the left. Mother is wearing specs and a bindi on her forehead and you can see the blue and white sari draped around her shoulders
    Patience And Innovation Are The Most Important Attributes Of A Caregiver For Persons With Dementia
    Mausumi Ghosh from Mumbai talks about the travails of taking care of her mother, 77 who suffers from dementia in addition to other conditions like osteosporosis. My mother is an osteoporosis patient from 2003 when she underwent hip replacement operation in Mumbai. She recovered from the same very well and was mobile and independent till she met with a ‘fall’ at home in 2010 and broke her ‘femur bone’ (left leg). She got herself operated twice in Kolkata in AMRI hospital and both the times the ‘…
  • On the left is Yee Ling with her husband Yen-Lu Chow on the right. She is dressed in a black formal dress and he is wearing a black tuxedo with a white shirt. The background is red and shows some people blurred
    Things Will Get Better, The Sun Will Come Out Tomorrow
    ...Life is precious - life is worth living."  reminds Yen-Lu Chow. When their son and only child Lawrence Chow ended his own life at the age of 26 after suffering for many years from manic depression, Yen-Lu Chow and his wife Yee Ling went beyond grieving and coping with the tragedy. They involved themselves in mental health initiatives in Singapore which have, in turn, given them a purpose in their lives. Tell us about your mental health initiatives in Singapore. Mental wellness is not…
  • Stock pic of a young girl child with blond hair hugging her mother holding her face and feeling depressed. Image is respresentational only
    Depression In Parents Of Children With Special Needs: How To Cope And Build Resilience
    Parimal Pandit, Clinical Psychologist and Program Director, V-Excel Educational Trust Chennai describes the signs of depression to watch out for, how fathers and mothers react differently and how a special needs family can build resilience. 1.  A journey of a special needs parent goes through many ups and downs. What are the stages at which parents are most vulnerable? (Are these different for a mother v/s a father) When a child is diagnosed with a chronic condition or a…
  • Rishi Chowhan a young child with Duchenne Muscular Dystrophy and Autism on a wheelchair with his family standing behind him from Left to Right- his mother, his sister and his father. Picture shows Singapore's Merlion in the background
    A Wish For A Magic Wand to Shoo Away My Son's Duchenne Muscular Dystrophy
    Hitesh Chowhan, 52 from Bengaluru, shares the challenges of bringing up his son Rishi diagnosed with Autism and Duchenne Muscular Dystrophy, a rare disease. The constant struggle to make him independent and as comfortable as possible. And of course a hope for a cure. My son Rishi is nearly 10 years old and has both Duchenne Muscular Dystrophy (DMD) and Autism. Early Symptoms and Diagnosis He was diagnosed at the age of 5. We consulted doctors when we noticed that he was unable to lift himself…
  • Image description: Pratyush a young dark haired Indian man in a white t-shirt in the centre with his mom on the left in a white top taking the selfie and his spectacled father on the right in a grey shirt
    People Started Looking Beyond His Disability
    Wheelchair user computer whiz Pratyush, 24, born with Spinal Muscular Atrophy, excelled at prestigious institutes like IIT Bombay and Columbia University, and recently got a job at Microsoft. His mother Srilakshmi Nalam talks of overcoming depression and taking on the mission to make Pratyush an independent and self-confident person. On September 14, 1993 our little son was born. Giving birth to a new life is an amazing experience. It is the beginning of a great adventure full of surprises and…
  • Aarshia on the left a young Indian black haired spectacled girl with Down Syndrome in a purple dress and on the right her brother Aaryamann a young Indian teen boy with black hair in a purple kurta and white pyjamas
    No Special Favours For This Sister!
    As part of our Raksha Bandhan series, Aaryamann and Aarshia share nuggets of what makes their sibling relationship as special and adorable as any other brother-sister relationship.  Aarshia,11 is a sprightly young girl who has also starred in an Indo-Australian film on Down Syndrome, directed by Onir  "Raising The Bar"  Aaryamann, 16  is a football and math enthusiast. In spite of being a brother of a girl with special needs, he doesn't give her any special privileges…
  • Image Description: Nivriti on the right in a white kurta and red dupatta tying a rakhi on her autistic brother Nishant's wrist. Nishant is sitting and wearing a blue kurta. Looking over both of them is their father in a mustard kurta and grandmother in a blue sari
    "Don't Worry ....Be Cool"
    is the brotherly advice from Nishant to Nivriti. As part of the Raksha Bandhan series, the brother-sister duo of Nishant, a young autistic adult and Nivriti share what their relationship means to them  Nishant Sriram, 22 is an intern at AMAZE, he likes nature, music and travel. He is a bronze medalist in cycling at the Special Olympics Bharat. Nivriti Sriram, 17 is in Grade 12 and is a voracious reader. She loves animals, music and travel. Both love food and cooking and baking. Akila…
  • Image description: On the left is Pranav an autistic young man in a red shirt, black hair and on the right is his older sister in a black dress talking of their relationship as siblings
    "I Told Ma To Cut The Rakhi Because I Thought It Was Hurting"
    As part of our Raksha Bandhan series, Pranav, 18, a young adult on the autism spectrum and his older sister Nikita, 22 reflect on their relationship and their times together - the fun times and the stressful times.  Nikita studied at Hindu College, Delhi University. She is pursuing Masters in Public Health in Sydney and plans a career in mental health and counselling. Pranav is pursuing a multimedia course with AIMS. He plays golf, loves music and is a Radio One fan. An award winning…
  • Image Description: An elderly person with a walker and supported by a caregiver
    12 Confusing and Overlapping Symptoms in the Elderly
    Symptoms like weight loss, memory loss, weakness, and fatigue should not be mistaken as a sign of the"normal aging" process. Dr. Shital Patel explains 12 common but misleading symptoms in the elderly and why you should seek a doctor's opinion instead of ignoring them.  Symptoms in the elderly can have very different causes than they may have in a young person. Many symptoms in the geriatric population may be masked by concurrent chronic ailments, injuries, age-related physiological…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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