Skip to main content
Submitted by PatientsEngage on 2 April 2019

Pranav Kumar Rajgopal is on the Autism Spectrum and works as a Business Analyst in a technology firm. He shares lessons he has learnt based on his experience. His advice to others on the autism spectrum and their parents. 

1. Never force your children to do something they are not interested in doing.

Every child is unique and special. They may have an interest in pursuing drawing, painting, and creative craftwork, or pursue hobbies and passions in music and dance. Autistic children may have hidden talents. Parents should be aware of this possibility and encourage them. Children can also become more independent when given some additional responsibilities at home.

Some parents force their children; you should not do this. Some parents say their children have to focus only on academics and push them to another stream which they are not interested.

Example: If your son or daughter is interested in taking a Commerce or Arts stream, why should parents force them to take the Science stream if they are not keen and have no interest in it?

2. A Wish for Group Outdoor Activity

Nowadays parents often don't allow their children to play outside. In the present world, everyone is addicted to technology like laptops, smart phones, and tablets. I am not criticizing anyone. Knowing about the technology is not bad, but children should be playing with others in the evening; that will give some relaxation and happiness.

When I was in my school days, every child used to play some outdoor games like cricket or badminton. I was the only person avoided because everyone had the assumption that “this boy does not know to play cricket or any other games”.

In my locality, I was not given a chance to any outdoor games. Even though I did not know how to play, someone could have taught me these games and encouraged me to try some games.

Everyone makes mistakes, that is very common, so why should we only look for faults?

3. Misleading and exploiting others:

During my childhood days, I would do whatever my classmates or friends asked and never think about it. I was sometimes taken advantage of.

Example:

  1. A few friends asked me to do their work for them. I never thought why they were asking me. I did not want to be rejected by them, so I made the decision to help.
  2. I was exploited by many people. Known friends would ask me “please give me money, I need it”. I did not ask them why they were asking. I simply lent them money. If I asked them “please return my money back I am in need” they didn’t have the courtesy to return it. Some friends forced me to do this when I was not in a position to lend and was not interested. I feel this shows they were self-centered, occupied about their need and requirement, and not even thinking about others. I realized this after 10 years in my career.
  3. These are the incidents where I lose my peace of mind and happiness.

I am telling autistic children that if you are in this situation and not able to make any decision, just think before doing it or seek the suggestion of your parents, family members, or good friends.

Many autistic children are hesitant about talking with their parents. Parents can talk like a friend to them in a polite manner, and ask them about their problems. Parents can give solutions or visit some psychiatrist or counsellor who gives the better solution for a child’s problem if they are not in the position to do so.

4. How to give feedback to children and adults on the autism spectrum

Every child makes mistakes, and that does not mean that they are not bad. When parents and teachers need to give feedback, never ever criticize in public; talk to them in private.

In education institutions like schools and colleges, we find bright, average, and slow learners. If the student is bright, they can teach average and slow learners. If they are not able to give proper guidance, no problem; but don't misguide or make them confused.

As a teacher and professor, you can interact with the students directly and ask if they face any challenges in the practical subjects. Some children will be more hesitant to ask about their doubt in the class. You can tell them “please come and meet me after the class hours where I will help you solve your problems”. Instead of showing sympathy, just show them empathy.

Teachers or lecturers should never compare one student with another student. It will create a complex in their mind and that will lose their self-confidence. Motivate them in front of others - that will really give them confidence.

There should be some counselor in the educational institution who can be a mentor and guide for persons with intellectual disability. 

5. Mentoring on the job

I have seen young adults complete their graduation and get into jobs. When they start a new job, they are often not aware of the basics. Then, the supervisor in the organization may criticize about not knowing about the basics related to MS Office. Please teach new employees about the basics of a job before giving them the main task.

Example:

When you hire a person on the autism spectrum in an accounting firm, even though he/she may have studied the basics during their college studies, it is common that they do not get enough hands-on experience. It is therefore necessary to train and orient their new recruits. A buddy who can guide the intern would be helpful.

Similarly a tool like MS office learnt for getting through an exam is not the same as what will be needed for work on a day to day basis. The supervisor or a buddy can show the employee the tricks of the tool.

Finally the area where a mentor or a buddy is essential is in guidance on social behaviour, inter-personal skills, communications in both oral and written forms and even email etiquette.

 

Condition

Stories

  • Accepting my Child with Autism has made me a Better Person
    Mr. R.B. Krishnan, 68 has a 27-year-old son Vivek B.K on the Autism Spectrum and has been a hands-on father, along with his wife. He shares with us his difficult and joyous moments with his son and also offers a few tips for parents in similar situations The pic above is of Vivek, Mr. Krishnan and his entire family.  When was your son diagnosed and what were the early symptoms? Vivek was diagnosed with Autism when he was around 1 ½ years old. He couldn’t stay in play school with the other…
  • Son, Your Smile Means the World to Me
    Chitra Iyer, mother of 18-year-old Shravan with autism, feels all her challenges and hardships melt away and every moment of life becomes worth living when a beautiful smile radiates across her son’s face. Here she shares Shravan’s childhood and preparing a life plan for him for the next 20 years. When Shravan came into our lives we were overjoyed. The fact that he survived the NICU (neonatal intensive care unit) for 26 days and came home with us was itself a huge victory. When he would cry…
  • Treat a Person with Disability as a Regular Employee
    Mrs Neera Chawla, Director of Muskaan, an NGO which strives to empower adults with disabilities, talks about their employment programmes and how they try to make inclusion a reality. What categories of disabilities does Muskaan work with? What are the programmes you offer? We primarily work with adults who have intellectual disabilities and multiple disabilities. We have a few cases of Autism also. We mostly have adult training programmes, which are ascertained according to the different…
  • You Can Read My Thoughts
    AUTISM AWARENESS MONTH A peep into the mind of Christopher Pereira, a young adult with autism, who shares his understanding of abstract concepts like ‘Self-determination’ and ‘Autonomy’ lucidly.
  • Creating Opportunities for Independent Living with Autism
    The Independent Living Program, an offshoot of Arunima, one of India’s first assisted living centres for teenagers and adults with autism, provides services and support to people with higher functioning autism to independence and dignity. In conversation with Aparna Das, founder director of Arunima. A few years ago, you set up Arunima, one of India’s first assisted living centres for teenagers and adults with autism. And now recently, you extended its vision to launch a new initiative, The…
  • Orko, My Brother
    AUTISM AWARENESS MONTH They played, they fought, they eat cheese burgers with friends… this may seem like a story of just any household with two boys with an age difference of five years. Except that Orko has epilepsy and is autistic. In a heartwarming account, Rajeev Roy talks about the very special relationship he shares with his younger brother. Pic 1- Rajeev (left) and Orko My brother, Orko, was born. In 5 months he experienced his first seizure. Truth be told, he didn't - we experienced…
  • ‘Being Independent is Absolutely Amazing’
    AUTISM AWARENESS MONTH Neha Uttam, a person diagnosed with autism and resident of Independent Living Program, is a staff member at Arunima. Here she recounts in detail her grooming to be self-reliant and the sheer joy of becoming independent. I was diagnosed with high-functioning autism in 2008. I have been teaching for almost 13 years now. My elder brother inspired me to opt for Independent Living. I learnt about Arunima, the care and rehabilitation centre for autism, in Dehradun from Action…
  • Let Me Speak for Myself
    The theme for World Autism Awareness Day 2017 is ‘Toward Autonomy and Self-determination’. This year, instead of speaking to parents, caregivers or health professions, we have got 5 young adults on the autism spectrum disorder to voice their thoughts and feelings on what autonomy and self-determination means to them. Read their evocative responses. 1)    NISHANT SRIRAM (21 years old) Background He is currently an intern at AMAZE’s flagship program AMEYA – AMAZE PROGRAM FOR…
  • Stanford Medicine: Arts and Humanities in Medicine
    The world of medicine is beginning to increasingly acknowledge the potential of expressive arts therapies such as art, music, drama, dance/movement, poetry/creative writing and play in the context of healing, treatment, psychotherapy, counselling and rehabilitation. Activities such as drawing, drumming, creative movement and play acting allow individuals of all ages to express deep-seated thoughts and feelings, improve physical, mental and emotional well-being and boost self-esteem and…
  • Anxiety, Stress and the Special Needs Parent
    The parents and families of children with special needs go through a lot of stress and anxiety in bringing up their children. Dr Roma Kumar, a Senior Consultant in Clinical Psychology, discusses various issues that these parents have to tackle on an almost everyday basis and possible solutions. Q1. Different research and surveys across the world show that more than 50% of the parents of children with disabilities suffer from anxiety, stress and depression. In your experience in India what are…