Multiple Sclerosis Society of India

Does Yoga help people manage chronic conditions and the various symptoms? On International Yoga Day, we speak to a cross section of people who believe strongly that yoga has contributed greatly in their journey of recovery1.  Mr Purushotaman - Parkinsons Mr. Purushotaman is 77-years-old and has had Parkinson's for 4 years. An unassuming gentleman, Mr. Purushotaman is extremely regular for all meetings and yoga sessions conducted by Parivarthan for Parkinson’s. Parivarthan is a…

Swarnalatha J, who was diagnosed with Primary Progressive Multiple Sclerosis in 2009, is 75% disabled now, but that hasn’t stopped her from achieving her goals. Here she tells us how she sets an example for others of her community in handling depression and looking forward to life even after disability. Could you tell us about the early symptoms and diagnosis of your Primary Progressive Multiple Sclerosis? It was in early 2007 that the initial symptoms manifested themselves with loss of balance…

Jamuna Rangachari was diagnosed with Multiple Sclerosis which made even difficult day to day tasks impossible for her to accomplish. She shares with us her trials and tribulations. Detecting the ailment I once had an issue with my vision but that got resolved on its own even before I went in for a test. Later, I could not walk comfortably, could not even climb stairs and it was a nightmare for me to look around for washrooms wherever I went as I suffered from severe incontinence. This made…

New research brings us closer to the cause of Multiple Sclerosis. A new study suggests that high levels of the protein Rab32 disrupt key communications involving mitochondria. The disruption causes these "cellular batteries" to misbehave, leading to the toxic effects seen in the brain cells of people with multiple sclerosis. The new study is the work of researchers from the University of Exeter in the United Kingdom and the University of Alberta in Canada. They report their findings in the…

Smitha Sadasivan, who is diagnosed with Multiple Sclerosis and uses a wheelchair, recounts her challenges with accessibility, toilets and medicines at airports and railway stations while travelling. I was diagnosed with Multiple Sclerosis in 1999. I can’t sit continuously for long or sit in a chair/wheelchair which is loose or too soft/silky. I need a sturdy chair with an arm rest to support my back and hands, or else I get a back ache, neck ache and stiffness/pain in hip joints. I also require…

Multiple Sclerosis International Federation, (MSIF) London is reviewing the current principles, which determine the “Quality of Life” of persons who have MS. As part of the said consultative committee, a feedback as regards the same is being sought from MS persons around the World. MSSI is looking to consolidate the feedback. Join our discussion here.   The Current Principles   1. Independence and Empowerment People with MS are empowered as full participants in their communities and…

Happy Mother's Day 2016 - By Smitha Sadasivan, a person with Multiple Sclerosis and a Disability Rights Activist Ma Ma Ma Never did I tell you that I ever do love you; Whereas, you keep saying it in every deed you do! Ma Ma Ma Every time my eyes, limbs or bladder fail;  You support, with your indomitable Will! Ma Ma Ma I travel cities, and as well handle chaos; Only with the emotional support of yours! Ma Ma Ma Abode of values as Simplicity, Sincerity n Compassion; Blessed am I, that you…

The Multiple Sclerosis Society of India was established in 1985 at Mumbai. Mrs. Rehmat Fazelboy, a social worker and Mr.Tobaccowalla (Chairman, Voltas Ltd, Mumbai) are the founding members. Presently there are 9 chapters with 2 support groups.  The Chennai Chapter was inaugurated on September 1997. Our patron doctor is Prof.Dr.G.Arjundas. Mrs.Ann Gonsalvez is the Chairperson of the Chennai Chapter. We have about 210 patients on our rolls in Chennai.  Our Vision: Create awareness of…

The proposed Rights of Persons with Disabilities Bill smacks of hypocrisy and lip service. Should it be shown the door? An impassioned plea by the Multiple Sclerosis Society of India - Chennai Chapter INDIA MS DAY - 7th FEB 2016 India MS Day is on the First Sunday of February. This year we observe the 1st India MS Day which is on February 7, 2016. This is to raise awareness of Multiple Sclerosis in India. India MS Day is being highlighted by the colour RED. It also coincides with the…

While  there are currently no approved disease -modifying therapies to treat progressive MS, results from a recent Phase III trail could change that landscape. In a press announcement by Genentech, a member of the Roche Group, the company announced that the experiental monoclonal antibody, ocrelizumb, significantly slowed progression of disability compared to placebo in a Phase II trial involving 732 people with primary progressive MS. Additional data from the trial will be reported at the…