Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • A Blessing to have the Strength to face Caregiving Challenges
    Mala Sen had caregiving thrust upon her when her nonagenarian mother-in-law with full blown Alzheimer’s appeared in her life. She faced the challenges head on and says that she has emerged a stronger person in the process. A personal account: A caregiver, all of a sudden I became a care giver by default.... My husband's mother was developing Alzheimer’s which none of her 3 children were aware of .. A simple reason ..We have an insensitive approach to aging! When she would repeat anything…
  • Exercise to Control Lymphoedema is Like Brushing Teeth
    Jayshree Guru was diagnosed with breast cancer, but she decided to be strong to face the treatment, for her own sake as well as for her family. Having dealt with cancer, she was not prepared when Lymphoedema set in. With help and assistance from Lakshmi Pain and Palliative Care, Jayshree learnt to treat lymphoedema.  I was diagnosed with breast cancer at 48yrs.  It was tough, and I did not think much about it at that time. One thing I decided - that I will not become weak and feel…
  • Prevention and Treatment of Lymphoedema
    Lymphoedema can be caused by cancer, surgery of any kind, radiotherapy or even infection and can result in swelling, pain and discomfort. Dr. Subathra Muthukumaran of Lakshmi Pain and Palliative Care Trust shares how it can be managed by simple exercises and what to avoid in such a situation. The goal of palliative care is to relieve symptoms and improve quality of life of those with chronic illnesses since people go through not just pain but various other symptoms. One such distressing symptom…
  • ‘Decisions must be in the Best Interest of the Patient’
    Dr. M.R Rajagopal, Chairman, Pallium India, delves into the ethical dilemmas surrounding end-of-life decisions, the fundamental right to live with dignity and quality of life. Palliative care should be made available to every person who needs it. An interview with PatientsEngage. PE: The role of medicine is extension of life. So shouldn't all efforts be made to extend life of a patient under any and every circumstance? The primary function of a medical system is to help a person stay healthy…
  • Living with Cerebral Palsy: It's Only An Impairment
    Sameer Chaturvedi, a post graduate in Sociology from the Delhi School of Economics and currently a PhD researcher, lives with Cerebral Palsy but that has not stopped him from feeling as much a part of society as anyone else. Here’s why: I am Sameer Chaturvedi, living with an impairment. Yes, living with cerebral palsy but not suffering from it. I feel the biggest barrier persons with impairment face in their lives is attitudinal. We are living in a society which is dominated by persons without…
  • Antibiotic Resistance, a threat to Healthcare
    Antibiotic resistance or Antimicrobial resistance(AMR) is emerging as a major threat the world over. With high prevalence of infectious disease and poor health care, India is the largest consumer of antibiotics. Dr. Camilla Rodrigues, Consultant Microbiologist & Chairperson Infection Control Committee, P.D. Hinduja Hospital, Mumbai, gives us an overview of antibiotic resistance. Antibiotic resistance, a global concern, is particularly pressing in developing nations, including India, where…
  • FDA Clears Mobile App to Treat Alcohol, Marijuana, Cocaine Addiction
    In a milestone, the Food and Drug Administration (FDA) approved the first-ever mobile medical app to help treat people with substance use disorders (SUDs). The Reset device is designed by Pear Therapeutics and is now cleared in the US to assist in outpatient therapy for alcohol, cocaine, marijuana, and stimulant addiction—although it is notably not permitted for treating opioid dependence. So just how does an app assist in addiction therapy? The Reset device is a mobile medical application…
  • Carriers of Optimism for the Deaf
    Mirakle Couriers is a National Award winning courier agency that employs low-income deaf adults. We speak to the founder Dhruv Lakra about his pioneering social-commercial enterprise. Your enterprise, Mirakle Couriers, is business with a social purpose of providing employment to deaf individuals. What led you to you start this venture? Mirakle Couriers was triggered by one particular incident I experienced while traveling on a bus in Mumbai. I was sitting next to a passenger who was anxiously…
  • The Importance of Early Diagnosis in Dementia
    Saadiya Hurzuk is a Centre Manager and Clinical Psychologist at ARDSI Hyderabad. She shares her views on why it is important to have an early diagnosis in dementia treatment. Over a period of time dementia has become one of the frightening epidemics in the global health scenario. With social stigma attached to the disorder, it is kept hidden. People find it difficult to accept and understand the problems they are facing with memory and cognition that is affecting them daily. Most of the time…
  • Will I become like my mother?
    Vimal Balachander talks about the difficult days of caring for her mother-in-law during the latter’s steady decline with Alzheimer’s Disease. ‘Will I become like my mother?’ my mother-in-law asked me five years ago, in a shaking voice, ‘I don’t want that, I know what that is, sitting in a corner quietly’. This was in 2012. My mother-in-law, then 74, hither-to-independent business woman, had recently moved into our apartment, just fifty feet away from her beautiful seaside house. Savithri…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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