Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Social Story Videos: Preparing Children with Autism for Outings
    Sometimes the routine activities like going to a restaurant or a dentist or a hair salon can seem daunting to a person with autism. Parents often do not know how to help their child navigate through these activities. Children with Autism are able to cope better with new and difficult social situations if they are prepared for it through video modelling. Social stories [TM] are a technique that was created by Carol Gray in 1991 to help teach social skills to people on the autism spectrum. They…
  • How to cope when your Spouse has Dementia
    Amrita Patil Pimpale, Dementia Care Consultant, lists out 5 things you can do to help your spouse/partner who has been recently diagnosed with dementia. Most people with dementia undergo behavioral changes during the course of the disease. They gradually lose their mental faculties and become confused and vulnerable. They tend to forget things that have happened quite recently, but may seem to have clear memory of things that happened a long time ago. They will experience mood changes, can…
  • Should Parents of Children with Autism Prepare a Will?
    Without a proper plan, your child with autism may face an uncertain future after you are gone. Chitra Iyer, Treasurer and Trustee, Forum for Autism, spells out reasons why it is absolutely necessary for parents to prepare a Will. While this may apply to various disabilities, the focus for this article is mainly on children with autism and keeps in mind the legal requirements in India. What if something were to happen to me tomorrow, how can I ensure that my child with Autism who is now an…
  • My Mother’s Hairdresser: Dementia friendly or not?
    A touching account of how a local hairdresser volunteered to help, when others refused, to give my mother, who lived with Young Onset Alzheimer's, a glam haircut and made her look uber cool in her final years.   They say it takes a village to raise a child. As caregivers, we realize that it takes an entire community to deal with Alzheimer’s. Extended family members, friends, neighbors, healthcare professionals, coworkers, employers, employees, service providers like household help,…
  • Promoting Accessibility through Inclusive Design
    The need to integrate inclusive design at our homes, schools, workplaces, malls, hospitals, parks, etc, especially to improve accessibility and mobility for the disabled, needs to be given urgent priority for the wellbeing of society, writes Daniel Wong, Access Consultant design professional. The world is experiencing a population boom never before seen in history. Birth rate is increasing while deathrate is slowing. People are living longer because of improved healthcare science particularly…
  • When I am at work I am "resting"
    Joan's wish is straightforward: "My ultimate wish for Nat is for her to happy and independent, where she doesn’t need financial aid from me or my husband, is able to stand on her own and isn’t a liability to anyone else." Joan, in conversation with SPD Singapore, answers 10 questions on bringing up Natania, who has autism spectrum disorder and shares with us her biggest hurdle to date and what keeps her going. Q1: You are Natania’s biggest supporter. How did you face her condition early on? I…
  • Tips for Taking Medication Safely
    There is a reasonably high percentage of avoidable deaths which occur yearly due to medication errors. It is important to ensure that administration of medicines is made as safe as possible to reduce lapses in proper health care, life threatening complications, and death. Here are a set of handy guidelines and best practices for safe medication management. Guidelines on medication use: SAFE ADMINISTRATION OF MEDICINES Be informed about the medications you are on and their names, dosages,…
  • Profile picture of Daksha Bhat, a dementia information advocate in a green top
    5 Challenges of Dementia Care in Gujarat
    Dementia is difficult. Absence of diagnosis, counselling and support makes matters worse. Basic awareness and services can help decrease caregiver stress. Daksha Bhat of Varishta analyses the situation on dementia care in Gujarat. Dementia may start as a slow, creeping change that gradually makes its inroads into our lives. It can happen to anybody who is over 60. Beginning with a gradual decline in the capacity to recall important things, it gradually manifests as a slow deterioration in the…
  • Colours of Life
    For parents. Vedika Aum pens a beautful poem that captures how we all see and feel for our parents now. The love and care we received from them all our lives, now we return with deep reverence. Bringing life to a full circle and growing up each moment as we become their parents. How a single day brings many colours. Yesterday was one such day for me. The bright sunny morning merging with the rainbow hues with like minded people   The aquamarine evening so relaxed and blissful , signalling…
  • The medical system failed us
    Usha Ravi touches upon the lack of adequate Palliative Care facilities in our country and how important it is to provide comfort to the patient along with proper treatment. Working with terminally ill patients and their families for over 20 years has helped me value life and accept life’s realities. As a critical care nurse in Melbourne, Australia, I have witnessed and continue to witness the physical and mental stress that the patient and family go through. It is sincerely fulfilling to see…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
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