Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • कैंसर रोगी के इलाज में परिवार और दोस्तों की भूमिका
    एक प्रकाशित ओवेरियन (अंडाशयी) कैंसर की योद्धा, कामिनी प्रधान के शब्दों में कैंसर के रोगी के इलाज में परिवार और दोस्तों की प्रमुख भूमिका होती है। ऐसे रोगियों की सहायता निम्नलिखित तरीकों से की जा सकती है: - मानसिक / भावनात्मक समर्थन 1.   स्वीकृति - अस्वीकृति से बचें। बीमारी का व्यक्ति पर क्या असर हो रहा है, इस को जानें और समझें ताकि इलाज प्रक्रिया में आप रोगी के मददगार बन सकें। 2.   सकारात्मकता - याद रखें कि इस बीमारी में आपको को पूरी तरह से सकारात्मक रहना होगा और रोगी को भी…
  • A stock pic of a woman being supported by a caregiver
    "My World Has Fallen Into Silence"
    Manju, 64 from Vishakhapatnam met with a road accident 15 years ago and suffered a brain injury that left her bedridden and caused memory loss. Her husband shares the journey of their family and how they made changes in their lives to cope with the situation. My wife was involved in a road accident in 2005. She had no external injuries apart from loss of a few teeth due to the collision. But she became unconscious and was immediately taken to the nearest hospital, given first aid and put on…
  • The Dilemma of Palliative Sedation
    There is a lot of confusion on Palliative Sedation and there has also been a lot of debate on the ethical concerns around this. We unpack the concept of Palliative Sedation and when it is appropriate to consider.   One of the central goals of Palliative care is the relief of suffering and pain. Many terminal patients despite being on heavy medication for symptom control have intolerable pain possibly from their underlying disease or adverse effects of their treatment towards the end…
  • A young boy speaking into a mike in front of a race for rare event
    A Rare Disease Changes One's Life Completely
    Joseph Afreddy from Mumbai shares the challenges faced by his 10 year old son Neel who has the rare disease MPS II, also known as Hunter's syndrome, the benefits of an early diagnosis and what keeps him awake at night. Please tell us a bit about Neel’s condition.  Neel was born with mucopolysaccharidosis II (or MPS II or MPS 2), also known as Hunter’s syndrome, a very rare disease. It is a genetic disorder where the body has a deficiency of an enzyme called iduronate 2-sulfatase…
  • Book cover of the book Conquering Pain Dr Mary Abraham and Dr Vandana V Prakash
    Management of Pain in Stage 4 Cancer
    Pain is one of the most disturbing and feared complication of cancer. Therefore, it needs to be addressed at all costs. Excerpted from newly published book – ‘Conquering Pain’. During her last admission to hospital, three weeks before she finally succumbed to leukaemia, thirteen-year-old Ms M.A. was in severe pain due to multiple reasons: Ulcers in the mouth and painful inflammation of the face, as a result of the side-effects of chemotherapy Bone pain in the legs, due to the disease affecting…
  • Need for Holistic Management of Cancer Pain
    Cancer pain can be treated and quality of life in a cancer patient can be enhanced by appropriate medications, emphasise Dr Mary Abraham, Pain & Palliative Care Physician, and Dr Vandana V Prakash, Clinical Psychologist. Despite increased attention to cancer pain, it still continues to be a major issue with cancer patients and survivors. Why is it so? There are many reasons why cancer pain is still a major issue with cancer patients and survivors. Firstly, there is a misconception and fear…
  • Dealing With The Behavioural Challenges Of Alzheimer's
    Nishi Pulugurtha writes about the challenges of being a caregiver to an Alzheimer’s patient, her mother, and the travails that came with it. “Let us go home,” Amma said this often. There was nothing strange about this sentence, all of us would love to be back home at some point of time or other. What makes Amma’s statement important is that when she said this, she was actually at home. I used to tell her that. It made her keep quiet for a while. She would go back to doing something. It was…
  • How To Prepare For A Medical Emergency At Home
    We are often caught unawares by medical emergencies. But it does not need to be so. We can plan and reassess the plan regularly. Here are some guidelines and pointers on what you should consider.   It is unnerving when a loved one falls suddenly and seriously ill at home, or there is an accident. The family member may feel disorientation and denial, hoping to just wait out, or may thrash about like a headless chicken trying to arrange for transport to the hospital and unsure what to…
  • There Are A Lot Of Things To Look Forward To
    Iftikhar Zia, together with the rest of the family, has been Zoyeb’s main support system. Zoyeb suffers from a rare neurological condition called Ataxia. Iftikhar on the journey and the accomodations required in schools, colleges to support Zoyeb’s drive for professional success. Please tell us about your son’s condition My son was diagnosed with Ataxia at 16. It is a neurological disorder affecting the balance causes poor coordination of the limbs poor gait movement slurs the speech and…
  • A couple posing and taking a selfie
    How I Take Care Of Myself To Be A Better Caregiver To My Wife
    It is important for caregivers to seek help and advice of mental health professionals to ease their journey of caregiving and keep the relationship strong, says Abhimanyu Argal who looks after his wife with Borderline Personality Disorder. Could you give us a little background about yourself? I am 30 years old. I'm self-employed, working in the real estate industry as a developer. I am an engineer by qualification. You are a caregiver to your wife, Sheeba. Please could you describe her…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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