It took Rohan Dsouza, a fashion photographer, near 30 years to be diagnosed with narcolepsy, an incurable sleep disorder. Here he rues how he was adversely impacted personally and professionally because it is one of the most misunderstood and…
Hemalatha Rao was diagnosed with a hole in her heart at the age of three. Since then she has dealt with a slew of conditions and has even undergone a heart and double lung transplant in the midst of the Covid Pandemic. She shares her experience and…
Waikhom Bimolata, 37, from Manipur, recounts her journey from being diagnosed with two autoimmune diseases Lupus and Sjogren's, her complex anxious-ridden pregnancy and successful motherhood. Here, she hopes to encourage other aspiring mothers in…
Nidhi Maini shares her many challenges with breast cancer, how she found solutions to deal with these challenges, what worked as well as what was not helpful. She also shares some of the photographs she took to help her cope.
I was diagnosed with…
Ramki Sreenivasan was diagnosed with Stage IV lung cancer in 2017. Along with initial brain radiation, targeted therapy, he embraced the spirit and practices of yoga passionately for healing and recovery. Here he advocates the vast potential of yoga…
Anitha A, 42 talks about her experience of living with a sudden onset of eczema and its various triggers. She shares the various solutions she tries and what helped her manage the triggers of eczema.
When were you diagnosed?
It started as a tiny…
Tushita Agrawal, a 16 year old from Akola, Maharashtra has been battling Behcet’s disease, a rare autoimmune condition, for 3 years now. She speaks of how she has tackled her challenges at such a tender age.
Please tell us a bit about your condition…
Prima shares the challenges of caring for her father who was diagnosed with stage 4 cancer of the ureter and kidney, the effect that COVID had on the treatment choices, the pain he went through, the palliative care choices and the emotional turmoil…
23 July is marked as World Sjogren's Day (WSD) to honour Dr. Henrik Sjogren who first identified Sjogren's syndrome as a systemic, autoimmune chronic rheumatic condition.
Sjögren’s India and PatientsEngage bring together patient experiences of…
