Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Palliative Care Centre in Memory of her Daughter
    The Romila Palliative Care Centre was started by Dr Armida Fernandez, after she lost her daughter to cancer. While the best medical care was provided to her, she felt the softer aspects of patient care were missing. Here, she talks about her desire to fill this vacuum. When and how did you start Romila Palliative Care? Romila Palliative Care started in February 2017. I lost my daughter to cancer in 2013 and at that time we felt that although the best of medical care was available, the softer…
  • Handling Agitation in Dementia
    Neha Sinha, a clinical psychologist by training and dementia specialist, is the co-founder and CEO of Epoch Eldercare.  She shares her knowledge on agitiation in Dementia, the triggers of agitation and how best to handle it. What is Dementia in everyday life? Visualise a situation where you suddenly open your eyes and can’t make any sense of where you are or what you are doing there? Your surroundings seem unfamiliar to you...and there is a person in your room, giving you all sorts of…
  • 24 or more hours with the Autism Community in Delhi
    Madhusudan Srinivas, parent of a 24 year old autistic boy, Abhimanyu, shares the surprises a day throws up for families of people with autism. His life's vision is to ensure enjoyable evenings for all people with special needs, especially the community of young adults with autism.  Blips on a screen, jumble of words for you, but way beyond reality bites for me, and for us in the autism community.  Hi all, this is Madhusudan Srinivas, father of Abhimanyu  24 and autistic, and…
  • Try Group Drumming for a Healthy Lifestyle
    The Rhythm Wellness initiative of Global ArtsCare in Singapore conducts group drumming session for the elderly to reduce loneliness, increase energy levels and morale and provide recreational and wellness activities. Tell us about Global ArtsCare and the work it does? At GlobalArtsCare we aim to transform lives-in-care through creative arts engagement. Our activities aim to make creative arts engagement accessible to as many people in care facilities. In the process, residents, care-givers, and…
  • The Lonely Walk to Meet Mortality
    A heart-stirring account by Kunal Mahajan as he watches his mother-in-law, Rohini Waikar, 52, affected by Multiple Sclerosis, gradually lose her ability to walk, talk, read, remember and a bit of her life every day. Every morning, she loses her life, one ounce at a time. She has already lost her ability to walk, talk and read. In the next two years, she will lose her ability to eat, taste, and see. Eventually, time will peel away every layer of life, reducing her living to a mere existence.…
  • What do Siblings of Children with a Condition Struggle With?
    Dr Roma Kumar, Clinical Psychologist and Senior Consultant at the Institute of Child Health at Sir Ganga Ram Hospital, New Delhi, talks about how siblings of a child with a condition also need care and empathy and what may be the emotional turmoil for such a sibling, as a child and often even as an adult. What is the positive and negative impact of a child with disability or a serious health condition on the brothers and sisters? The quality of the life of family members, as well as of the…
  • Know Your Mental HealthCare Act
    In March this year, in a landmark move, the Indian Lok Sabha passed a resolution in favour of those with mental illness. Mr.Amrit Bakhshy, President of Schizophrenia Awareness Association and a caregiver himself lists down some salient points. The Indian Mental Healthcare Act 2017 strives to rectify years of wrongdoing against those who have a mental illness hallenged and also overturns, in the process, the archaic Section 309 of the Indian Penal Code (which criminalises attempted suicide).…
  • Physical Activity and Exercise Can Help Keep Mental Illness in Control
    Exercise and yoga can improve quality of life for people with mental illness and reduce risks of strokes, diabetes, auditory hallucinations and other health problems, informs Dr R Padmavati, Additional Director, Schizophrenia Research Foundation. World Health Organisation defines physical activity as any bodily movement produced by skeletal muscles that requires energy expenditure. Physical activity is not just "exercise". Exercise, is a subcategory of physical activity that is planned,…
  • Son, Your Smile Means the World to Me
    Chitra Iyer, mother of 18-year-old Shravan with autism, feels all her challenges and hardships melt away and every moment of life becomes worth living when a beautiful smile radiates across her son’s face. Here she shares Shravan’s childhood and preparing a life plan for him for the next 20 years. When Shravan came into our lives we were overjoyed. The fact that he survived the NICU (neonatal intensive care unit) for 26 days and came home with us was itself a huge victory. When he would cry…
  • Together, We are Able to Overcome Rejections and Obstacles
    Preethi Srinivasan was a young and energetic achiever in every sense of the word, till an accident made her a quadriplegic overnight. On Mother’s Day, Preethi’s mother Vijayalakshmi Srinivasan talks about what it means to be a mother and a friend to her daughter and to ensure her daughter always feels loved and cared for. From being a mother of a super achiever child to suddenly having to cope with the child's disability, what were your first thoughts and feelings? On the day of her accident,…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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