Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

    Login To Join
    Add Discussion
  • In Sickness And In Health
    A Valentine's Day Special This Valentine's Day we asked the spouses of a few of our contributors how they supported their partners during difficult times and what they would advise other spouses. They shared tips that work for their partners - practical tips, care tips, emotional tips. We look forward to hearing from each of you what works for your relationship. Santanu Syam on his support for Piali who had Choledocal Cyst I ensured that I was always with her at the doctor’s chamber and the…
  • Play Should Be Accessible To Every Child
    Can you imagine a child who has never been to a playground or a park, never been able to swing or slide! For whom open play spaces are forbidding and unfriendly. Today, in India nearly all existing outdoor play spaces are built without keeping in mind the needs of a child with disability. Children with disabilities and developmental differences are forced to stay away from playgrounds because they are inaccessible, do not have appropriate facilities and play infrastructure for them. When…
  • Stock pic showing a young teen on the left scared and traumatised by something on his laptop. There is a lamp that shines directly on the laptop and there is a large shadow on the wall.
    Cyberbullying: The Downside Of A Connected World
    Dr. Shivaprakash Srinivasan, Child Adolescent  and Adult Psychiatrist at SCARF puts the spotlight on the growing trend of cyberbullying, the impact of cyberbullying on adolescent mental health and what parents and educators/teachers can do to prevent cyberbullying and spot signs. The internet since its introduction to the public in the early 1990’s has been changing the world at a really rapid pace. It has been making communication with persons around the world astoundingly easy and also…
  • Inclusive Play for Children with disabilities - Facebook Live Q&A
    Inclusive Play for Children with Developmental Disabilities - Facebook Live Q&A
    Outdoor play is important for all persons including children with disabilities. In our Live Discussion sessions we talk to a play therapist, an Ashoka fellow and parents of teenagers on the autism spectrum. In continuation of our series on Living Better With Disabilities we have with us Meet our Panelists:  Kavitha Krishnamoorthy: Parent of teenager on spectrum, Founder Kilikili and Ashoka Fellow Lucy Bowen: Play Therapist, National Association for Play Therapy   Priya Kannan:…
  • A child in a red tshirt holding a baby doll and stretching a hand out to block. The stretched hand covers the face
    Protecting Children With Disabilities from Sexual Abuse
    Personal safety and sexuality education is critical for children and young individuals with Intellectual disabilities, auditory or visual impairments. But it often does not get the right level of attention from parents and teachers. Enfold Proactive Health Trust, a Bangalore based NGO, has devised a project ‘Suvidha’ to address this gap. Read on. All children, irrespective of the ‘normalcy’ of their neural or physical development, have a right to safety and dignity. Personal safety education…
  • Payal in a brown dress holding her mother in a yellow kurta and white dupatta from behind
    How Our Entire Family Rallies Around My Mother, My Dad's Primary Caregiver
    Payal talks about how she has seen her father deteriorate physically and mentally over the years due to stroke. She and her mother play an active role in his daily care which has become tougher over time. Payal, tell us about your father’s condition? My father had a brain stroke 15 years back and he has been slowly deteriorating day by day. He has lost most of his memory and struggles to even remember his children’s names. He often wanders off if left alone, so he needs to be monitored 24 hours…
  • Head shot of the author Gayathri Prabhu wearing a yellow blouse, brown sari and a necklace around her neck. In the background are trees
    An Intensely Personal Memoir Of A Father’s Mental Illness
    Trveen Dhillon reviews Gayathri Prabhu’s intensely personal memoir of her conflicted relationship with her father who had depression ‘if i had to tell it again’ and relates to her own experience as a caregiver to her father. Gayathri Prabhu’s ‘if i had to tell it again’ is a memoir about two beings who greatly influenced her life and continue to do so even after their passing - her father, SGM Prabhu, who refused to accept or name his illness (clinical depression), and Chinna, a beautiful…
  • Mr Balagopal in a black t-shirt in front of the garden he loves to work in
    Why We Chose To Move To A Senior Living Community
    To move or not to move to a senior living community is a topic of discussion amongst many as they approach retirement and for many years after retirement. Retired Chief Executive Mr. S. Balagopal shares the factors that affected their choice and what they like about their senior living community. #QualityOfLife Tell us a little bit about your background and your family.  I am a Physics Graduate with an Electrical Engineering degree as well and have worked in the Private Sector in…
  • Getting a Dementia Diagnosis: Clear and Practical Suggestions for Families
    Swapna Kishore, a dementia resource person, talks to Dr. CT Sudhir Kumar on the importance of getting a dementia diagnosis and not treating it as a normal ageing process, how to select the right doctor, how to plan for a doctor consultation, the tests that the doctor may prescribe and how to plan reviews with your doctor.   When someone shows symptoms like memory problems, confusion, unclear speech, inability to plan, or strange behaviour, we may wonder whether this is dementia and…
  • Leading Causes And Precautionary Interventions For Falls in Persons With Dementia
    Ms. Ayush Chandra and Ms. Sradha Madan Ray under the guidance of DEMCARES, SCARF India write about the leading causes for falls in persons with dementia and how caregivers can prevent these falls.  According to WHO risk of falls in old age increases due to several factors such as changes in physical function, sensory input, and cognition. For a patient with cognitive impairment the risk is doubled and can lead to more complications (Scala G & Kraemer, 2009). Being aware of the…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
hello
hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
no details

Latest Communities