Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Inclusive Playgrounds Help Reduce Stigma and Inhibitions
    The concept of inclusive and accessible outdoor play areas for differently abled is being actively recognised and built across several cities in India. Manju George, Senior Program Officer, ESAF Bangalore, talks about the challenges involved in undertaking these initiatives. Why did you embark on this initiative of an inclusive play area? In 2008, a research done across three cities with children and different stakeholders highlighted the issue of lack of play spaces for kids. Hardly anyone…
  • Anxiety, Stress and the Special Needs Parent
    The parents and families of children with special needs go through a lot of stress and anxiety in bringing up their children. Dr Roma Kumar, a Senior Consultant in Clinical Psychology, discusses various issues that these parents have to tackle on an almost everyday basis and possible solutions. Q1. Different research and surveys across the world show that more than 50% of the parents of children with disabilities suffer from anxiety, stress and depression. In your experience in India what are…
  • Caregiver Self-care is not Selfish
    Adveka Foundation, one of the first organizations in India to work primarily with caregivers, hands out tips on self-care and emotional management and how to prevent stress and burnout. The growing burden of chronic diseases and health care has given rise to a new community that is rapidly gaining in number and significance: The Caregivers. Caregivers provide support and assistance to individuals suffering from a health issue and those unable to look after themselves. They could either be…
  • Simple Tips for Caregivers of Persons with Dementia!
    Tips for Caregivers Dementia is a general term for decline in a person's mental ability that is severe enough to interfere with his/her daily life. It may involvememory loss, difficulties with thinking, problem-solving or language. Dementia is progressive, which means the symptoms will gradually get worse. Even though most cases of dementia come from irreversible causes, there is still much that families can do to help their loved ones continue to function as well as possible for as…
  • A picture of childhood cancer patients playing carrom
    Help children with cancer develop skills to cope with stress and anxiety
    On International Childhood Cancer Day, Poonam Bagai, Founder Chairman of Cankids...Kidscan, a family support group for children suffering from cancer and their families, talks at length about how hard it is to tackle the medical and emotional wellbeing of a child who learns to grapple with reality through various stages of his treatment.  1. What are the objectives of Cankids? CanKids...KidsCan is a National Society for Change for Childhood Cancer in India & YANA (You are not Alone) -…
  • FDA approval is great news for DMD community
    says RS Anand, parent of a child with Duchenne Muscular Dystrophy on the FDA approval of Emflaza (deflazacort). The U.S. Food and Drug Administration approved Emflaza (deflazacort) tablets and oral suspension to treat patients age 5 years and older with Duchenne muscular dystrophy (DMD), a rare genetic disorder that causes progressive muscle deterioration and weakness. Emflaza is a corticosteroid that works by decreasing inflammation and reducing the activity of the immune system.…
  • We need a Holistic Approach to Treating Cancer
    Susmita Mitra, Director - Special Projects at Cancer Patients Aid Association (CPAA), underlines the concerns and worries of cancer patients and emphasizes the importance of Psycho Oncology, a comparatively recent addition in cancer care, to build a positive frame of mind, ease trauma and facilitate recovery. It is well recognized that compared to any other disease, a diagnosis of cancer results in immense trauma to the patient on one hand, and his family members on the other, as they grapple…
  • Never Too Old to Sing
    The Choir of the Loaves and Fish, a musical ensemble of senior citizens, started by Pervin Varma with Regina Thomas in Bengaluru has been immensely therapeutic for the elderly and has helped bring loads of warmth and sunshine into their lives. Picture above: Ammachy taking a bow with Pervin Varma Imagine a group of people – all senior citizens between 65 and 96 – people who have suffered strokes or are living with cancer, arthritis, heart disease, dementia, physical disabilities, people with…
  • Mummy's Gift of Dying Well at 100
    With India’s ageing population increasing and the wish of most dying people to live their last few days happily at home, there is an urgent need to develop and expand palliative care in the country. Jo Chopra looks back on the fun her mother-in-law had at home before her final departure. A loved one dying at home is not a small thing. My own culture teaches us that people should die in hospitals (in a study some years ago in America, while 88% responding said they wanted to die at home, 56%…
  • Raising a Child with Autism to be Independent
    Parents of Vinamra, who has mild autism disorder, always made it a point to remember that their son can lead a happy, fulfilled life if they channelized his energies well. Mother Rima Ved recounts how she and her husband tirelessly prepared their son for adulthood and independence. My son, Vinamra, has autism. He is 21-year-old, all grown up, capable and independent today. But there was a time, nearly a decade ago, when I didn’t know how to raise him. I realized he was different from other kids…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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