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  • When therapy harms instead of healing
    In India, child therapy takes place behind closed doors without any parental supervision or social regulation. Are we wating for something untoward to happen to these vulnerable kids, asks outraged mother Preetha Anoop and psychologist and special educator Seema Lal.  A mother Preetha Anoop shares March 23, 2015 - a day I cannot forget! After being up all night attending to my two-year-old who was down with a bad cold, I took my little one to the hospital. My…
  • Should we provide special services for special people?
    Or should we aspire to a world where inclusive services are the norm, and hence ‘unremarkable’? Dr Justin Lee, Research Fellow at the Institute of Policy Studies, discusses what it means to be a truly inclusive society. When meeting or interacting with a young person with disabilities, people often are unsure of how to behave. They may ignore the person or be overly effusive. Can you tell us some dos and don'ts, and some key points to keep in mind. Yes, the ‘overly…
  • Prevention of Cerebral Palsy
    In cases where the cause of cerebral palsy is unknown, nothing can be done to prevent it. However some cases relate to pregnancy complications and brain injuries. Pregnancy Complications Try and minimise these by ensuring appropriate prenatal care, trying to stay healthy during a pregnancy, avoid low birth weight, premature birth,  Brain Injury Try and ensure that the baby does not have head injuries at very early stages.  Make sure you take the baby to a doctor after a fall …
  • Management of Cerebral Palsy
    Cerebral palsy affects each person differently. The person may lead a fairly normal life with little assistance or need help with everyday activities. For instance, they may suffer from an inability to control body movements, have problems with balance and seizures, may have trouble swallowing or speaking, or may be intellectually impaired. You will need to tailor the care to the needs of the person. You may need to consider some of the following: Understand the patient's communication style.…
  • Cerebral Palsy Treatment
    Treatment includes: Treatment to improve movements Drugs for medical problems Surgical approach  Treatment to improve movements: Physiotherapy The child may need physiotherapy, sometimes throughout his life. The aim of physical therapy is to: Encourage motor development Improve the ability to move all parts of the body Promote, maintain and restore physical, psychological and social wellbeing. Equipment used to improve movements include: Devices to maintain normal posture of the child…
  • Cerebral Palsy Diagnosis and Tests
    Cerebral palsy is diagnosed based on the child’s medical history and physical examination, like the infant’s motor skill and symptoms. Brain imaging technologies can reveal areas of damage or abnormal development in the brain. The tests include: Radiographic tests: Magnetic resonance imaging (MRI): An MRI uses radio waves and a magnetic field to produce detailed 3-D or cross-sectional images ofthe brain. An MRI can often identify any lesions or abnormalities in the brain. Cranial…
  • Types of Cerebral Palsy
    Types of cerebral palsy Based on severity: Categorised into mild, moderate and severe Mild:  Daily activities are not affected and child can move without assistance Moderate: Child needs assistance like medication and adaptive technology to accomplish daily activities Severe: Child requires support and will have significant challenges in accomplishing daily activities Based on topographical distribution they are classified as: Monoplegia: One limb is affected Diplegia: Two limbs are…
  • Cerebral Palsy Symptoms and Signs
    What are the signs and symptoms of cerebral palsy? Impairment of muscle tone: The ability of muscles to work together is lost, leading to increased or decreased muscle tone.Limbs become floppy with decreased muscle tone or become rigid with increased tone. Impairment of movement coordination and control: Impairment of muscles lead to gait disturbances and the child may drag a leg or bend over and walk. Gait disturbances include: Limping – more weight is placed on one foot than the other,…
  • Cerebral Palsy Causes and Risks
    What are the risk factors for cerebral palsy? Congenital (at birth) cerebral palsy risk factors include: Low birth weight Premature birth Multiple births (It can be twins, triplets or more) Infertility treatments undergone by parents Infections during pregnancy Jaundice Birth complications  Medical condition of mother Acquired (after birth) cerebral palsy risk factors include: Brain infections Injury   
  • What is Cerebral Palsy
    Cerebral palsy is a neurological disorder, which impairs movement and coordination. It is caused by abnormality or damage to the part of the brain – the cerebral cortex - that controls movement. It can be congenital or acquired early in life. It is non-progressive and does not worsen over time.   Part of the brain affected in cerebral palsy When does this damage to the brain occur? Damage that causes cerebral palsy can occur: Before birth During birth Within a month after birth During…
Do you have a story or an incident that you would like to share for World Autism Awareness Day?
Which system is most suitable for treating this. in Indian conditions? Ayurveda / Siddha / Homeopathy. to get reasonable progress in reasonable time. The blood analysis shows excess strontium metal and less than normal Beryllium metal. He is 6…
Outdoor play is important for all persons including children with disabilities. In our Live Discussion sessions we talk to a play therapist, an Ashoka fellow and parents of teenagers on the autism spectrum. In continuation of our series on …
My daughter is 6 yrs old but still she can't talk properly.she can't say one complete sentence having more than 3 words.What could be the issue please help
My son is a very slow learner (60% IQ). I am a teacher. But for my own case i am helpless. My son had epilepsy seizures for 1.5 years as from 1.5 to 3 years age. After so much medication now no seizures from last 5 years but he has become autistic…
Question from Hope Foundation, Mumbai: We have now 50 individuals of varying mental and intellectual issues being provided with vocational training and simple jobs. What we are looking for is medical insurance for these service users. In Mumbai…
Have you been thinking about creating this dream play space for your child or for children you know who would love to play in such a space? It's easy.  Kilikili, a network of parents of children with disabilities, began when a parent asked the…
Just came across this news report from California and while this may be extreme, would be great to hear typical issues your child has faced and how you have dealt with it. Do your neighbours accomodate? https://www.washingtonpost.com/news/to-your-…
This is a question that troubles parents all the time. And even more when a child is on the autism spectrum. How do you know when you should just accept and not push various therapies? Do therapies stress the child even more? Please share your…
Sesame Street has introduced a new muppet with autism - a girl called Julia. Do you think this will help more people (and children) understand the condition? Or is it too complicated a condition to be shown through a muppet? http://www.today.…

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