Skip to main content
Submitted by Aishwarya Solanki on 27 August 2016
A Parkinsons Support Group Meeting in India

Support Group for Parkinson's in India run by PDMDS and in collaboration with their partners.

Last Update - Feb 2019

A support group is an informal gathering of people who share similar experiences, situations or problems. By meeting together, Parkinson’s Support Group members can offer each other emotional and practical support.

In such a group, one is able to learn about Parkinson’s its problems and treatment. But most importantly the members share experiences and practical tips on living with Parkinson’s. Formal discussions, lectures and demonstrations on the many facets of the conditions are organized, drawing for the multidisciplinary approach.

Regular support group meetings entail a healthy and detailed interaction and exchange of feedback between the patients, caregivers and health care professionals. This has resulted in organizing programs based on the needs expressed by the members. Some of the programs and activities organized include, ‘Yoga for Parkinson’s’, ‘Art therapy’, ‘Physiotherapy sessions’, ‘Educational and Cognitive training sessions’

Support Groups help renew ones sense of hope in dealing with changes one experiences in one’s life style. They give you a chance to make new friends and to break down feelings of isolation. In belonging to a support group you will always find that, ‘YOU ARE NOT ALONE!’

If you have Parkinson’s or any other movement disorder, remember you are not alone.

Attached is a listing of all support groups run by PDMDS and through their outreach centres. But if you cannot make it to those centres, you can reach out to them through this online community as well. 

There are Support Group and Physiotherapy Group meetings in different parts of Mumbai:

Andheri, Bandra, Santacruz, Andheri, Borivali, Byculla, Chembur, Dadar, Kandivali, Dombivili, Ghatkopar, Mulund, New Marine Lines, Thane, Vasai, Vashi, Nallasopara, Arnala

Community Based Rehabilitation for Neurological Conditions: 

BDD Chawls Worli and Dharavi

Outreach Centres 

GOA: Mapusa, Margao, Panjim, Ponda, Vasco da Gama

KARNATAKA: Bengaluru

Rest of MAHARASHTRA:  Nashik, Jalgaon, Asangaon/Vasind

GUJARAT - Vapi, Kaprada

MADHYA PRADESH - Indore

KERALA - Cochin

TELANGANA: Hyderabad

RAJASTHAN - Jodhpur, Udaipur

CHANDIGARH

ANDHRA PRADESH - Nellore 

ASSAM - Guwahati

SIKKIM - Gangtok (new)

DELHI - New Delhi (new)

OUTREACH CENTRES IN COLLABORATION WITH BKP – PDMDS

GUJARAT: Ahmedabad, Baroda, Bhavnagar, Anand, Mahuva, Rajkot, Surat

MAHARASHTRA - Pune

Details attached: PDMDS Support Group Listing (Updated as of Feb 2019)

 

Condition

Stories

  • Sangeeta reliving memories with her father with Parkinson's
    It Was Cathartic and Fun To Relive Old Memories
    Talking and writing about health related experiences is still not common in Asia.  This International Women’s Day, we reach out to three dynamic women who share their experience as patient or caregiver to understand their motivations. We kick off the first in a three-part series with Sangeeta Murthi Sahgal.  1)    Your father had Parkinson's Disease. Why did you choose to talk and share about your father's condition? When I took over my father's care-giving, I researched the…
  • Daily Exercise and Yoga Help Me Control The Difficulties of Parkinson’s Disease
    Raju PK,60 from Ernakulam, Kerala deals with Parkinson’s Disease in his own way, sticking to proper medication and exercises. He shares his hacks and tips to facilitate movement in the house. Please tell us a bit about your condition. I am suffering from Parkinson’s disease. I was diagnosed in the year 2009. What were the early symptoms? Sometimes while walking, my left hand remained static, and sometimes while operating the laptop, my fingers would shiver. Is there a history of Parkinson’s…
  • Dance - The New Complementary Therapy Option for Parkinson’s
    Dance and Movement Therapy can effectively complement traditional exercise to improve motor, psychological, cognitive and social abilities of people with Parkinson’s. Tejali Kunte, Clinical Psychologist, Dance and Movement therapist at Parkinson’s Disease and Movement Disorder Society (PDMDS) delves into its numerous advantages. Tejali, you are a dance and movement therapist and a clinical psychologist. Could you tell us a little bit about your work? Yes, I am a dance performer, clinical…
  • ‘I feel my life has come to an end’
    Debabrata Roy, 49 is affected with early Parkinson’s disease which has turned his life and world upside down. He talks about the inevitability of the progression of this dreaded ailment. When were you diagnosed? Two years back, I was diagnosed with Parkinson's Disease. About six or seven years back when I had a gall bladder operation, I noticed the symptoms back then, but nobody really took it seriously.  Now it has become pronounced. What were the early symptoms of Parkinson's Disease?…
  • 6 Ways in which Music can Benefit Persons with Parkinson's Disease
    A quick snapshot on how music is helpful for persons with Parkinson's Disease. And of course, it is enjoyable. Haven’t we all enjoyed some form of music in our lives? We may all have different tastes in the types of music, but we do enjoy it.  Music can be beneficial for us in the following ways : When we sing we use the same muscles that we use when we are speaking. Thus singing regularly helps us develop clarity in speech and a good pitch, thus making it easier for people to…
  • Dehydration Management and Healthy Eating tips for People with Parkinson's
    Practical Tips on how to handle Dehydration among people with Parkinson's. And 6 Healthy Eating Tips. DEHYDRATION Dehydration, or loss of balance of bodily fluids, is a problem commonly faced by PwPs, but is often mistaken for other symptoms of the disease, because it tends to cause dizziness, weakness, constipation etc.” Dehydration is common amongst PwPs, due to the following reasons: Due to specific symptoms of PD, such as urinary frequency, swallowing difficulties, slowness & rigidity…
  • Extraordinary Stories of Yoga Complementing Healing and Management of Chronic Conditions
    Does Yoga help people manage chronic conditions and the various symptoms? On International Yoga Day, we speak to a cross section of people who believe strongly that yoga has contributed greatly in their journey of recovery1.  Mr Purushotaman - Parkinsons Mr. Purushotaman is 77-years-old and has had Parkinson's for 4 years. An unassuming gentleman, Mr. Purushotaman is extremely regular for all meetings and yoga sessions conducted by Parivarthan for Parkinson’s. Parivarthan is a…
  • Don’t let a Fall Ruin Your Life
    Falls are a common complication of advancing Parkinson's disease. So how can you minimise the risk of falls, be in good shape and lead an active life? Find out here: It is important that you do not allow a fear of falling to stop you doing things, provided that you are sensible. Keeping active is good for your mobility and independence, and doing the things you like is good for your morale. Try not to let falls curb your activities too much as this can have a negative impact on your quality of…
  • Preventing Falls in Parkinson’s
    People with Parkinson's are at high risk of falling due to problems with balance, rigidity, and slowness of movement. Here we bring key safety strategies to reduce incidence of falls that can cause bumps, bruises or even broken bones. Some people with Parkinson’s find their pattern of walking (gait) changes; you may walk more slowly, shuffle, or you may experience freezing of gait when you stop and are unable to move for a few seconds or minutes. These changes in walking pattern can affect your…
  • Be Inspired and Unite for Parkinson's
    World Parkinson's Day #UniteforParkinsons 11th April 2017 marks 200 years since the publication of James Parkinson's essay on Parkinson's Disease. To mark this day, we are asking everyone, no matter where they are around the world, to unite and raise awareness about Parkinson’s on a bigger scale than ever before. We share these inspiring quotes by people with Parkinson's - Ludovina Filomena Dantas, Gargi Ahluwalia, J.P Mehta. Spread the word, share your stories, Unite for Parkinsons …