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  • Picture of epilepsy warrior Vinay in a race outfit and the text feeling more independent and less stressed
    सर्जरी के बाद अब मैं सीज़र से मुक्त हूं
    दिल्ली के विनय जानी को 15 वर्षों से अधिक समय से एपिलेप्सी (अपस्मार) है, और हाल ही में उनकी न्यूरोलॉजिस्ट ने उन्हें बताया कि वे अब ड्रग रेसिस्टेंट हैं (उनपर दवा असर नहीं करती, वे दवा-प्रतिरोधी हैं)। इसलिए उन्हें सर्जरी कराने की सलाह दी गई। वे सर्जरी के बाद से (एक साल से अधिक समय से) सीज़र-मुक्त जीवन जी रहे हैं। इस लेख में उन्होंने अपना अनुभव साझा किया है। आप कहते हैं कि आपको ड्रग रेसिस्टेंट एपिलेप्सी थी। कृपया समझाएँ। कुछ केस में, दवा में बदलाव के बावजूद सीज़र का नियंत्रित नहीं हो पाता है। जब मुझे…
  • Picture of epilepsy warrior Vinay in a race outfit and the text feeling more independent and less stressed
    I Am Now Seizure Free After Surgery
    Vinay Jani, from Delhi has been living with epilepsy for over 15 years and was recently declared drug resistant by his neurologist. As a result, he was advised to go for surgery. He has been living a seizure-free life for over a year now post-surgery.  He shares his experience. You say you had drug resistant epilepsy. Please explain. In some cases, seizure is not controlled, despite changes in medication. When my seizures kept recurring, my neurologist Dr. (Prof) Manjari Tripathi tried…
  • Image with a stethoscope, capsules, spectacles and image Diagnosis Restless Legs Syndrome
    Restless Legs Syndrome Can Disrupt Sleep Severely
    Dr.Rajalakshmi Iyer, Professor of Physical Medicine and Rehabilitation at All India Institute of Medical Sciences (AIIMS), Rishikesh cautions that Restless Leg Syndrome (RLS) can significantly impair quality of life and reduce productivity if good sleep hygiene practices are not followed and medications not taken. Restless Leg Syndrome (RLS) is a type of sleep disorder. Could you tell us a little bit about it and who does it affect? RLS is a medical disorder that is much commoner than…
  • Epilepsy warrior Vinay Jani a man in purple and white fitness wear and the epilepsy ribbon on the left
    Fighting Back With Determination
    Vinay Jani, 37 from Delhi has been battling epilepsy from a young age of 21. He talks of how he has tackled the condition with fortitude, specially in the face of large scale ignorance. I have focal seizures (complex partial) in which I lose my consciousness for 30-40secs due to a non-cancerous cyst which is in the left temporal region of my brain. When were you diagnosed? It was diagnosed in July 2005 What were the early symptoms? Symptoms are still same but at an early stage I was not able…
  • Image; Shaila Bhagwat, who has Parkinson's Disease in a blue dress at a restaurant with plates of desserts in front of her
    मैं शैय्याग्रस्त होने की अवस्था से बचने के लिए पूरा प्रयास कर रही हूँ
    67 वर्षीय शैला भागवत को पार्किंसंस रोग है जिस से उनका दाहिना हिस्सा प्रभावित है। वे आत्मनिर्भर रहने के लिए हर संभव प्रयास कर रही हैं - वे अनेक उपयोगी गतिविधियों के कार्यक्रम का सख्त अनुपालन करती हैं जिसमें शामिल हैं व्यायाम, योग, मैडिटेशन (ध्यान), हंसी और संगीत थेरेपी, चाल प्रशिक्षण, लिखावट अभ्यास, ज्ञान निर्माण, इत्यादि)। चार साल पहले, मैं दाहिने कंधे में एक टेंडन टीअर हुआ था और एक सूचर एंकर डाला गया था। फिजियोथेरेपी की मदद से मुझे सर्जरी के बाद रिकवरी में 2 महीने लगे। लेकिन दुर्भाग्य से, मेरे…
  • 50 वर्षों से परिवार के सदस्यों की देखभाल करने वाली महिला से कुछ सहानुभूति और स्वीकृति संबंधी सीख
    50 वर्षों से परिवार के सदस्यों की देखभाल कर्ता से सहानुभूति और स्वीकृति संबंधी सीख
    वीना शील भटनागर, 80, अर्थशास्त्र की लेक्चरर रह चुकी हैं। वे अपने परिवार के सदस्यों की पचास साल से अधिक समय तक लगातार देखभाल करती रही हैं। उन्होंने जिन प्रियजनों की देखभाल की है, उस श्रंखला में अंत में उनके दिवंगत पति विजय शील भटनागर थे, जिन्हें पार्किंसंस रोग था। यहां वे देखभाल करने की इस लंबी यात्रा के बारे में बात करती हैं और अपनी सीख साझा करती हैं। 1963 में 22 साल की उम्र में मेरी शादी हुई, और उसके तुरंत बाद मैं एक देखभाल कर्ता बन गई। तब से मेरी देखभाल करने की यात्रा 50+ साल से नॉनस्टॉप चलती…
  • A woman in a fuchsia pyjama suit and text overlay of My Guillian-Barre Syndrome Recovery
    A Rare Nerve Disorder Suddenly Paralysed My Legs And My Life!
    Anita Mody, an active grandmother and housewife wakes up one day with suspicious pain in her legs. A week later, she is unable to walk, move or feel her legs. A rare and progressive nerve disorder called Guillian-Barre Syndrome changes her life with no warning. She struggles with it but hopes to come out of it soon. Here is her account of it with the help of Bhakti, her daughter in law. Please tell us a bit about your condition. I have Guillian-Barre Syndrome. I had never heard of it before. It…
  • Image of an injured brain and text Traumatic Brain Injury
    ट्रॉमैटिक ब्रेन इंजरी के बाद पुनर्वास के लिए लंबी अवधि तक चिकित्सा आवश्यक है
    सड़क यातायात दुर्घटनाओं में वृद्धि के कारण ट्रॉमैटिक ब्रेन इंजरी (टी बी आई - अभिघातजन्य मस्तिष्क की चोट ) एक 'साइलेंट एपिडेमिक' (खामोशी से फैल रही महामारी) का रूप धारण कर रही है। भारत में 15 से 20 लाख लोगों को हर साल इस तरह की गंभीर मस्तिष्क की चोट लगती है, और  10  लाख  लोगों की इस से मौत हो जाती है। इस लेख में हम इंडियन हेड इंजरी फाउंडेशन के फिजियोथेरेपिस्ट से ब्रेन इंजरी के बाद आवश्यक “इंटेंस रिहैबिलिटेशन प्रोग्राम” (गहन पुनर्वास कार्यक्रम) के बारे में बात कर रहे हैं।…
  • Image of the author in a red jacket and woollen caps with the text Recovery after Traumatic Brain Injury
    Writing Helped Me Recover Faster After Brain Injury
    Rohit Gupta, 32, who suffered Traumatic Brain Injury, was in coma for six months with bleak chances of survival. But he defied all odds, recovered miraculously, authored a book, and is helping create awareness about TBI, stigma and social isolation. Read about his inspiring journey. I suffered a Traumatic Brain Injury (TBI) in April 2011 when I was 21 years old. I was in college studying law and full of dreams for the future, when my life changed overnight…not  just for me but for my whole…
  • Woman standing on the beach with a cane in hand and overlay of text in white on purple background - I lost my sight, not my vision, Rare neuro condition experience
    Learn About Your Condition To Manage It Better
    Kavya Poornima Balajepalli lost her eyesight at 21 after a brief period of intense headaches due to Idiopathic Intracranial Hypertension (IIH), a rare neurological disorder. Here she talks about her struggles after loss of vision, how she manages her condition and how she became an IIH warrior to create awareness about the disease. Please could you tell us a bit about your background. I am based in Visakhapatnam, Andhra Pradesh. I did my graduation in architecture from the University of Mumbai…
Query received: My father had a brain fits on 16th July. we hospitalized him immediately. then he had brain stroke. after he became little stable by medications. we got him discharged. at home suffered from pneumonia & again he got…
I have Parkinson's disease for last 4 years. I was  on Syndopa Plus(4 times) and and pramipexole (0.25 4 times) for long. But Off late I am  finding medication less effective with  pain, muscle rigidity and body heaviness unbearable.…
Why faced vertigo during laying down or up right moving. Remedy for it?
A case in Singapore is a good reminder of how details of "herbal" supplements should also be shared with your surgeon. In this case, it appears to have had fatal impact.  https://www.straitstimes.com/singapore/courts-crime/cordyceps-likely-led-…
I am prone to headaches. Heat, stress, tiredness can set it off. How do I know if it is just a headache or migraine? And can I do anything to get relief other than taking painkillers?
Do you know anyone with Parkinson's? L-DOPA (Living with Dignity fOr People with pArkinson's) is an initiative which works to raise awareness and support people with Parkinson's and their caregivers. L-DOPA will help people with Parkinson's receive…
You want your elderly parent to be independent. But what if they are getting absent minded and you fear they may get lost. I have heard that people with Alzheimers or dementia sometimes wander out of the house, even at night. Is that true? What can…
http://www.upworthy.com/the-last-ice-bucket-challenge-you-need-to-see-a…
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