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  • There Are A Lot Of Things To Look Forward To
    Iftikhar Zia, together with the rest of the family, has been Zoyeb’s main support system. Zoyeb suffers from a rare neurological condition called Ataxia. Iftikhar on the journey and the accomodations required in schools, colleges to support Zoyeb’s drive for professional success. Please tell us about your son’s condition My son was diagnosed with Ataxia at 16. It is a neurological disorder affecting the balance causes poor coordination of the limbs poor gait movement slurs the speech and…
  • A young man in a black blazer and blue shirt
    "Lack Of Accessibility At The Ground Level Is The Most Challenging Part"
    Zoyeb Zia, now an assistant professor of Zoology, has a rare condition called Ataxia. Zoyeb talks here about how he coped with the condition after he was diagnosed with Ataxia at the age of 16. Ataxia is a neurological disorder, which means ‘without order’ in Greek, affects a person’s balance, and it causes poor coordination of the limbs, poor gait movement, slurs the speech and affects the eye movement etc. Ataxia is classified as a rare disease.There are many variants of this disorder,…
  • A young woman in the foreground in a white t-shirt talking into a mic
    I Rediscovered Myself When I Publicly Accepted My Parkinsons
    Dr Shanthipriya, 45 is a YOPD warrior and consultant ophthalmologist. Devastated when diagnosed with early Parkinson’s, she talks about how she picked up the pieces, moved forward and started the SAAR Foundation to reach out to other people with neurological issues. Introduction to Parkinson’s My journey with Parkinson’s began 8 years ago with the diagnosis of YOPD (Young Onset Parkinson Disease) and the question Why Me? In early 2011 my husband and son noticed the abnormal positioning of my…
  • A stock pic of a woman with long hair holding her throbbing temples signifying migraine pain
    How To Be Prepared for Chronic Migraine
    Aishwarya M,  a migraineur-teacher who teaches reading and writing to middle school girls at Pune, India shares her experience of being prepared for the uncertainty of chronic migraine.  Is it possible to have a debilitating disability such as chronic migraine and still be a together teacher? Short answer: Yes The long answer follows. In 2014, Maia Heyck-Merlin’s The Together Teacher: Plan Ahead, Get Organized, and Save Time! not only saved my time, it saved my life. I slowly stopped…
  • A woman in a pink t shirt stretching a green resistance band
    After Stroke, Many Survivors Report Vision Difficulties
    G Srinithya, Senior Occupational Therapist at NIMHANS, highlights the various specialised rehabilitation programs for different types of stroke related disabilities ranging from visual, cognitive to swallowing impairment. Which cognitive rehabilitation intervention is best for improvement of attention and memory problems in patients with stroke? Following stroke, many people experience difficulties in arousal, attention, concentration, memory, perception, problem solving, decision making,…
  • Robotic Hand therapy equipment for Stroke Patients
    Stroke Rehabilitation Helps Relearn Lost Skills
    Stroke rehabilitation is an important aspect of the management of stroke. It can help to maximize recovery and regain as much of the body functions that is lost after a stroke, emphasises G Srinithya, Senior Occupational Therapist at NIMHANS. What is Post Stroke Rehabilitation? Post stroke Rehabilitation is a patient-centred, goal driven process that attempts to maximise the functional independence of patients who suffer from variety of stroke related disabilities. The aim of rehabilitation is…
  • Webinar recording of panel discussion on Living Better with Parkinsons focussed on early stages
    Webinar Recording: Living Better With Parkinson's Disease: The Early Stages
    An insightful panel discussion with persons with Parkinson's Disease and the Head of therapy and research at PDMDS on the early stages of Parkinson;s Disease with in our ‘Living Better’ series. In partnership with PDMDS. This session focussed how patients dealt with their diagnosis, the various activities they engage in, the challenges posed due to their symptoms, changes in lifestyle, how it affects relationships, and perspectives in life. We spoke with persons with Parkinsons and Head of…
  • Accept Epilepsy As A Medical Condition And Break The Stigma
    Priti Raman Vishwakarma, 27 has been battling Epilepsy with courage and fortitude. She recounts her experience of having handled the challenge head on and how she also leads her life on her own terms. I have been suffering from JME (Juvenile Myoclonic Epilepsy) which is a form of Epilepsy. This is possibly a mild type of Epilepsy. However, a patient suffering from JME needs to take medicines for life. The doctors may reduce the doses as per requirement. But it is impossible to discontinue with…
  • How Yoga Helped Them In Managing These Five Chronic Conditions
    Can Yoga help people manage their chronc conditions? We picked out a wide range of conditions where patients have benefitted from practice of yoga.  It is fairly well known that people with certain conditions like Diabetes, Hypertension and Arthritis benefit from regular practice of yoga. You can also download our ebooks on the same from our E-Books Resources Page.  But the benefit of yoga goes beyond that to neurological conditions like Parkinson's and  Epilepsy, auto-immune…
  • A mother and her son sitting together with their heads touching
    He Is Like An Amex Card. We Never Leave Home Without Him.
    Dr Renuka Nambiar, based in Malaysia talks about her son Sanjeev, who was diagnosed with Autism when he was 4 years old. She talks about all the love and effort the family put together to make Sanjeev a person of his own today. Please tell us a bit about your son’s condition: Sanjeev was born in 1994. He was diagnosed Autistic with comorbid Epilepsy when he was 4 years old. What were the early symptoms? He was a normally developing child who reached all his developmental milestones on time,…
Query received: My father had a brain fits on 16th July. we hospitalized him immediately. then he had brain stroke. after he became little stable by medications. we got him discharged. at home suffered from pneumonia & again he got…
I have Parkinson's disease for last 4 years. I was  on Syndopa Plus(4 times) and and pramipexole (0.25 4 times) for long. But Off late I am  finding medication less effective with  pain, muscle rigidity and body heaviness unbearable.…
Why faced vertigo during laying down or up right moving. Remedy for it?
A case in Singapore is a good reminder of how details of "herbal" supplements should also be shared with your surgeon. In this case, it appears to have had fatal impact.  https://www.straitstimes.com/singapore/courts-crime/cordyceps-likely-led-…
I am prone to headaches. Heat, stress, tiredness can set it off. How do I know if it is just a headache or migraine? And can I do anything to get relief other than taking painkillers?
Do you know anyone with Parkinson's? L-DOPA (Living with Dignity fOr People with pArkinson's) is an initiative which works to raise awareness and support people with Parkinson's and their caregivers. L-DOPA will help people with Parkinson's receive…
You want your elderly parent to be independent. But what if they are getting absent minded and you fear they may get lost. I have heard that people with Alzheimers or dementia sometimes wander out of the house, even at night. Is that true? What can…
http://www.upworthy.com/the-last-ice-bucket-challenge-you-need-to-see-a…
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