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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Stories

  • Picture of the woman who donated her kidney in a blue paisley print dress and text overlay research gave me courage
    It Was Scary To Donate A Kidney To My Sister
    When her sister needed a kidney transplant, Vaishali (53) navigated a complex set of emotions before deciding to donate her kidney to Hemali. On February 6, 2024, they completed one healthy year post-transplant. Vaishali shares her experience of being a kidney donor, the research she did and why she talks about being an organ donor.  Read Hemali's perspective of needing a kidney transplant here. Vaishali, what made you decide to donate your kidney to Hemali? The thought process to arrive…
  • A kidney transplant recipient woman's profile pic with the text overlay Organ Donation Advocate now
    My Sister's Kidney Saved My Life
    Hemali Ajmera (55) was diagnosed with Chronic Kidney Disease in 2019. Her sister's kidney donation saved her life. On February 6, 2024, they completed one healthy year post-transplant. Hemali shares her experience of navigating the anxiety and her journey to being an organ donation advocate. Read her sister Vaishali's perspective here. Hemali, when were you diagnosed? What were the early symptoms? The red flags started showing up in 2016. I attributed my frequent bouts of illness and fevers to…
  • Picture of epilepsy warrior Vinay in a race outfit and the text feeling more independent and less stressed
    सर्जरी के बाद अब मैं सीज़र से मुक्त हूं
    दिल्ली के विनय जानी को 15 वर्षों से अधिक समय से एपिलेप्सी (अपस्मार) है, और हाल ही में उनकी न्यूरोलॉजिस्ट ने उन्हें बताया कि वे अब ड्रग रेसिस्टेंट हैं (उनपर दवा असर नहीं करती, वे दवा-प्रतिरोधी हैं)। इसलिए उन्हें सर्जरी कराने की सलाह दी गई। वे सर्जरी के बाद से (एक साल से अधिक समय से) सीज़र-मुक्त जीवन जी रहे हैं। इस लेख में उन्होंने अपना अनुभव साझा किया है। आप कहते हैं कि आपको ड्रग रेसिस्टेंट एपिलेप्सी थी। कृपया समझाएँ। कुछ केस में, दवा में बदलाव के बावजूद सीज़र का नियंत्रित नहीं हो पाता है। जब मुझे…
  • Picture of a young woman, a breast cancer survivor in denim jacker and a red dress in front of Victoria Memorial and text overlay I am now at my fittest
    Keeping Hope Alive During And After Breast Cancer
    Subhasmita was diagnosed with breast cancer at 26. She talks of her physical and emotional journey as she made difficult choices. What kept her going through the worst days of breast cancer treatment and how she handles the issues of breast cancer survivorship. I am Subhasmita, 29 years old, Single. A marketer. I am a breast cancer survivor (ER+, PR+, her2neu-, stage 2A). I grew up in a small village in Odisha and I work and live in Kolkata at the moment for work. I paint, read and write in my…
  • Pic of the author Marianne holding her book and the text My CGM experience on the side
    CGM with an Active Lifestyle
    Marianne de Nazareth who has lived with and managed diabetes for a long time, decided to try out the latest technology for diabetes management, the CGM or Continuous Glucose Monitor. She shares her experience here.  So here I was enjoying the company of 10 other writers in the friend's home one evening, when I noticed one of them kept touching her arm with her phone and only then agreeing to a drink or indulge in a snack. She told me - a person with long term diabetes about Continuous…
  • Pictures of Dr. Usha Sriram and Dr. Gita Arjun and the text Diabetes During Pregnancy
    गर्भावस्था के दौरान मधुमेह: कुछ आवश्यक जानकारी
    भारत में मधुमेह एक बढ़ती हुई चिंता का विषय है, और यह युवाओं में और विशेषकर गर्भावस्था के दौरान महिलाओं में भी देखा जा रहा है। डॉ. उषा श्रीराम (एंडोक्रिनोलॉजिस्ट, दिवास एनजीओ की संस्थापक) और डॉ. गीता अर्जुन (ओब्गिन, डायरेक्टर, ईवी कल्याणी मेडिकल फाउंडेशन) के साथ वेबिनार चर्चा पर आधारित इस लेख में आपको गर्भावस्था के दौरान होने वाले मधुमेह और इसके प्रबंधन को समझने में मदद मिलेगी। गर्भकालीन मधुमेह (गेस्टेशनल डाइअबीटीज़) क्या है? जब किसी भी प्रकार के मधुमेह का सबसे पहले निदान गर्भावस्था के दौरान किया…
  • आपातकाल के लिए तैयार रहें
    टॉप 7 इमरजेंसी की स्थितियों के बारे में आवश्यक जानकारी
    मेडिकल इमरजेंसी (आपातकालीन स्थिति) कभी भी, किसी भी समय हो सकती है और हमें तुरंत जोखिम में डाल देती हैं। इस लेख में देखें कि ऐसी सात शीर्ष इमरजेंसी के बारे में आपको क्या जानना चाहिए और जानें कि इन्हें बिगड़ने से रोकने के लिए आपको तुरंत क्या करना चाहिए। 1. दिल का दौरा (हार्ट अटैक) सबसे आम और जान को खतरे में डालने वाली इमरजेंसी में से एक है - दिल का दौरा (हार्ट अटैक)। इसे चिकित्सकीय भाषा में मायोकार्डियल इन्फ्रक्शन (एमआई) कहते हैं। तत्काल कार्रवाई से हम हार्ट अटैक के केस में जीवन बचा सकते हैं और इस…
  • A woman in a red dress coughing and text overlay Understanding A Cough
    Know What Your Cough Could Mean
    We have all had a cough in our life. While it is our body's natural reflex and a routine occurrence, a cough may signify more than a bodily function. It may be a powerful signal, an expression of our respiratory system trying to communicate with us. Whether the cough is fleeting, annoying, or persistent, it is a call for attention to the intricacies of our health. Through this article, we will decode everything about coughing and the significance it holds in the broader context of our health.…
  • Pictures of Dr. Usha Sriram Dr Tarakeswari and Dr Shital Patel and the text Gestational Diabetes and Post Delivery Care
    Gestational Diabetes and Post-Delivery Care
    Dr. Tarakeswari S. (MD ObGyn, Senior Consultant & Head – Obstetric Medicine Unit at Fernandez Hospital), Dr. Usha Sriram (Endocrinologist, Founder of Diwas NGO) & Dr. Shital Patel (Lactation Counselor and Medical Advisor at PatientsEngage) help us understand Gestational diabetes and post-partum or post-delivery care for better management of consequences. As we all know Gestational diabetes or Diabetes during pregnancy needs to be diagnosed on time and careful monitoring is required…
  • Pictures of Dr. Usha Sriram and Dr. Gita Arjun and the text Diabetes During Pregnancy
    Diabetes during Pregnancy: What You Must Know
    Diabetes is a growing concern in India, affecting younger people especially women during pregnancy. This article based on the webinar discussion with Dr. Usha Sriram (Endocrinologist, Founder of Diwas NGO) & Dr. Gita Arjun (Obgyn, Director, E V Kalyani Medical Foundation) helps us understand diabetes and its management during pregnancy. What is Gestational Diabetes? Any type of Diabetes first diagnosed during pregnancy is known as Gestational Diabetes. It can be of two types.…