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  • Picture of the young man on a wheelchair with the text on bluestrip I wish to walk again| Anklylosing spondylitis
    I Want A Second Chance At Life After Ankylosing Spondylitis
    Jaswinder Banga is a 26-year-old young man who was stopped in his tracks with a sudden diagnosis of the debilitating ankylosing spondylitis. While waiting for his critical surgery, he shares his travails since the diagnosis. Please tell us about your present condition. Can you describe it? My present condition is that I am confined to the wheelchair and completely bedridden for the last 3 to 3 and a half years due to severe deformity in hips and knees. Also, my legs are intertwined. This is…
  • Pic of a women and text overlay on a blue strip Surviving GBS
    Surviving Guillain-Barre Syndrome
    Jhumur Nandi, 58 did not take the unexplained symptoms of Guillain-Barré Syndrome (GBS) seriously. Fortunately, her family rushed her to the right hospital and the right doctors in time. She also worked hard on her rehabilitation program to get well as soon as possible. The golden time for seeking treatment for any illness is right now. As early as possible. There is no need to hide your ailments, neglect your health, in fear of not finishing chores or making others worry.  How it began We…
  • Alphonse Roy, Lupus and Sjogrens patient with text on blue strip : Living with invisible illnesses
    मुझे कम उम्र से ही लुपस और शोग्रेन्स, दोनों हैं।
    ए. अल्फोंस प्रभु रॉय, 60, को कम उम्र में ही दो क्रानिक ऑटोइम्यून बीमारियों, ल्यूपस और सजोग्रेन सिंड्रोम का निदान मिला, और उन्हें कई जटिल लक्षण हैं। इनमें सबसे चुनौतीपूर्ण हैं मुंह सूखा रहना और ब्रेन फॉग। वे इस लेख में अपने अनुभव साझा करते हैं और बताते हैं कि दोनों बीमारियों के प्रबंधन में बहुत सावधानी की जरूरत है वरना इन का काम और घर पर गंभीर प्रभाव पड़ता है। आप कई वर्षों तक एक सार्वजनिक क्षेत्र की तेल कंपनी के महाप्रबंधक रहे हैं। कृपया हमें बताएं कि आप कहाँ रहते हैं और आपका वर्तमान जीवन कैसा है…
  • Stock pic of a woman in grey with back pain, graphic element of a blue ribbon and the text overlay on blue strip What is Myositis
    Understanding Myositis: Your Questions Answered
    Dr. Latika Gupta, Consultant Rheumatologist and Senior Lecturer at the Royal Wolverhampton Hospitals NHS Trust and University of Manchester in UK addresses questions on Myositis or Idiopathic Inflammatory Myopathy, an often-underdiagnosed autoimmune condition. What is Idiopathic Inflammatory Myopathy (IIM) or myositis? Myositis is a group of rare conditions where the immune system, which normally protects us from infections, mistakenly attacks healthy muscle tissue. This causes inflammation in…
  • Young man with facial hair and green shirt against a wooden background with text Ups and Downs of Scleroderma
    स्क्लेरोडर्मा के साथ भी जीवन संभावनाओं से भरा हो सकता है
    7 साल तक कई तरह की अस्पष्ट परेशानियों से जूझने के बाद, महाराष्ट्र के देग्लूर के 32 वर्षीय नीलेश को तब राहत मिली जब उन को स्क्लेरोडर्मा (त्वककाठिन्य) का निदान मिला। इस रोग के कारण हो रहे स्वास्थ्य में उतार-चढ़ाव के बावजूद, वे सकारात्मक दृष्टिकोण के साथ अपने व्यक्तिगत और कार्य जीवन दोनों को संभालने की कोशिश करते रहे हैं। उनके जीने का मंत्र है: "मृत्यु एक अंत है, जबकि जीवन संभावनाओं से भरा है। कृपया हमें अपनी स्थिति के बारे में बताएं मुझे स्केलेरोडर्मा नामक ऑटोइम्यून बीमारी है, जो त्वचा और आंतरिक…
  • Stock pic of a young woman in side profile in a white shirt a teal ribbon and text overlay Living with Sjogrens and Dysautonomia
    Navigating Life With Sjogren's Disease and Dysautonomia
    Rekha (name changed on request), 24 and a medical student has been living with dysautonomia since childhood and was also diagnosed with Sjogren’s Disease at the age of 21. She shares the challenges she has faced and how she advocates for herself with doctors, friends and colleagues as she navigates the complexities of her condition. I am a 24-year-old female living in India and diagnosed with Sjogren's Disease and Dysautonomia. I am living with dysautonomia since childhood. I love anthropology…
  • Graphic image depicting intestines and the text Ulcerative Colitis: Quick Facts as an overlay
    Understanding Ulcerative Colitis
    Ulcerative Colitis is an auto-immune condition. Read this article to understand the symptoms, causes, treatment and management of Ulcerative Colitis What is Ulcerative Colitis It is an inflammatory disease that usually begins in the rectum and may later involve the large intestine. It is a lifelong autoimmune condition (the normal bowel bacteria provoke the immune system to attack the wall of the intestine, thus causing injury to the bowel). It is a part of the spectrum of the inflammatory…
  • ILD prevention
    Prevention of Interstitial Lung Disease
    These are some steps we can take to reduce the risk of Interstitial Lung Disease: Prevent occupational exposure:  It is advisable to utilize a respirator, which is a mask designed to filter particles from the air, when exposed to hazardous substances such as asbestos, metal dusts, or chemicals.   Exposure to certain allergens: It is recommended to wear a respirator when working in proximity to substances that can trigger chronic allergic reactions, such as hay, grain, bird…
  • ILD treatment
    Treatment of Interstitial Lung Disease
    The management of Interstitial lung disease and the outcome solely depend on the type of condition leading to the restriction. There is also a need for treating symptoms and providing supportive and rehabilitative care.    Medications: Corticosteroids are often used as first line of treatment, but duration should be limited to avoid long term consequences. Immunosuppressants (such as azathioprine, mycophenolate mofetil, or cyclophosphamide) are also effective to reduce inflammation…
  • ILD types
    Types of Interstitial Lung Disease
    There are more than 200 types of Interstitial Lung Diseases. Some of the common types of ILD are: Related to Exposure: Drug exposure like: Chemotherapy, methotrexate, etc. Occupational or environmental: inorganic dust like Asbestosis- Asbestosis is a chronic lung condition associated with prolonged exposure to high concentrations of asbestos fibers in the air. It may cause symptoms like shortness of breath, persistent dry cough, tightness in the chest or chest pain, loss of weight…
This is an autoimmune disease. Please add this also.
I have a auto immune disease known as Phemphegus vulgaris
Scientists have successfully treated a patient with disfiguring sarcoidosis, a chronic disease that can affect multiple organs, with tofacitinib. a drug approved for rheumatoid arthritis. Sarcoidosis is an inflammatory…
Research shows that Iron deficiency, measured through the size variation of red blood cells, is correlated with increased fatigue in systemic lupus erythematosus (SLE) patients,. The association seems to be independent of age, ethnicity,…
Chandra Mohan, a Houston based Indian origin professor and his colleagues have received a private grant of USD 600,000 for their brilliant and pathbreaking research to develop a new…
what meds are good I'm looking into armour cause the synthetic ones don't do anything for me? also stem cell trails in the us, do anyone knows any?
diet for health
arthritis friendly kitchen ebook download
Hello Friends I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and…
There is an increase in diagnosis of auto immune conditions in India -  Rheumatoid arthritis, Ankylosing spondylitis, Lupus, Thyroiditis (Hashimoto’s disease), Inflammatory bowel disease There was an article in…
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