Auto Immune conditions

Jhumur Nandi, 58 did not take the unexplained symptoms of Guillain-Barré Syndrome (GBS) seriously. Fortunately, her family rushed her to the right hospital and the right doctors in time. She also worked hard on her rehabilitation program to get well as soon as possible. The golden time for seeking treatment for any illness is right now. As early as possible. There is no need to hide your ailments, neglect your health, in fear of not finishing chores or making others worry.  How it began We…

ए. अल्फोंस प्रभु रॉय, 60, को कम उम्र में ही दो क्रानिक ऑटोइम्यून बीमारियों, ल्यूपस और सजोग्रेन सिंड्रोम का निदान मिला, और उन्हें कई जटिल लक्षण हैं। इनमें सबसे चुनौतीपूर्ण हैं मुंह सूखा रहना और ब्रेन फॉग। वे इस लेख में अपने अनुभव साझा करते हैं और बताते हैं कि दोनों बीमारियों के प्रबंधन में बहुत सावधानी की जरूरत है वरना इन का काम और घर पर गंभीर प्रभाव पड़ता है। आप कई वर्षों तक एक सार्वजनिक क्षेत्र की तेल कंपनी के महाप्रबंधक रहे हैं। कृपया हमें बताएं कि आप कहाँ रहते हैं और आपका वर्तमान जीवन कैसा है…

Dr. Latika Gupta, Consultant Rheumatologist and Senior Lecturer at the Royal Wolverhampton Hospitals NHS Trust and University of Manchester in UK addresses questions on Myositis or Idiopathic Inflammatory Myopathy, an often-underdiagnosed autoimmune condition. What is Idiopathic Inflammatory Myopathy (IIM) or myositis? Myositis is a group of rare conditions where the immune system, which normally protects us from infections, mistakenly attacks healthy muscle tissue. This causes inflammation in…

7 साल तक कई तरह की अस्पष्ट परेशानियों से जूझने के बाद, महाराष्ट्र के देग्लूर के 32 वर्षीय नीलेश को तब राहत मिली जब उन को स्क्लेरोडर्मा (त्वककाठिन्य) का निदान मिला। इस रोग के कारण हो रहे स्वास्थ्य में उतार-चढ़ाव के बावजूद, वे सकारात्मक दृष्टिकोण के साथ अपने व्यक्तिगत और कार्य जीवन दोनों को संभालने की कोशिश करते रहे हैं। उनके जीने का मंत्र है: "मृत्यु एक अंत है, जबकि जीवन संभावनाओं से भरा है। कृपया हमें अपनी स्थिति के बारे में बताएं मुझे स्केलेरोडर्मा नामक ऑटोइम्यून बीमारी है, जो त्वचा और आंतरिक…

Rekha (name changed on request), 24 and a medical student has been living with dysautonomia since childhood and was also diagnosed with Sjogren’s Disease at the age of 21. She shares the challenges she has faced and how she advocates for herself with doctors, friends and colleagues as she navigates the complexities of her condition. I am a 24-year-old female living in India and diagnosed with Sjogren's Disease and Dysautonomia. I am living with dysautonomia since childhood. I love anthropology…

These are some steps we can take to reduce the risk of Interstitial Lung Disease: Prevent occupational exposure:  It is advisable to utilize a respirator, which is a mask designed to filter particles from the air, when exposed to hazardous substances such as asbestos, metal dusts, or chemicals.   Exposure to certain allergens: It is recommended to wear a respirator when working in proximity to substances that can trigger chronic allergic reactions, such as hay, grain, bird…

The management of Interstitial lung disease and the outcome solely depend on the type of condition leading to the restriction. There is also a need for treating symptoms and providing supportive and rehabilitative care.    Medications: Corticosteroids are often used as first line of treatment, but duration should be limited to avoid long term consequences. Immunosuppressants (such as azathioprine, mycophenolate mofetil, or cyclophosphamide) are also effective to reduce inflammation…

There are more than 200 types of Interstitial Lung Diseases. Some of the common types of ILD are: Related to Exposure: Drug exposure like: Chemotherapy, methotrexate, etc. Occupational or environmental: inorganic dust like Asbestosis- Asbestosis is a chronic lung condition associated with prolonged exposure to high concentrations of asbestos fibers in the air. It may cause symptoms like shortness of breath, persistent dry cough, tightness in the chest or chest pain, loss of weight…

Vandana Mahajan, a palliative care counselor, was diagnosed with thyroid cancer 15 years ago. She lost both her thyroid and parathyroid glands after cancer surgeries. In discussion with PatientsEngage, she reflects on her challenging journey and how her cancer diagnosis ultimately led her to find her identity. What were the initial symptoms that you experienced, and how did that lead to the diagnosis you received? In 2009, at the age of 36, I was diagnosed with thyroid cancer. Two years prior…

Dr. Kaushik S. Bhojani, a Consultant Rheumatologist and the Head of Rheumatology Services at Fortis Hospitals, Mumbai Cluster, talked about the importance of clinical trials at the Sclerocon conference 2024 organized by Scleroderma India. He highlighted the process of clinical trials and how participating in the clinical trials can benefit patients and community. Clinical trials play a crucial role in the progress of medical science. However, many individuals are hesitant to participate in a…