Auto Immune conditions

Nishat Fatima, 28 from Hyderabad, India was diagnosed with ITP, Immune thrombocytopenic purpura, a rare autoimmune disorder that can lead to excessive bruising and bleeding. She shares her journey through diagnosis and the challenges of living with this condition and how it changed her from being an active and jolly person.  Initial symptoms In 2016, just a couple of days after my wedding, I was down with vomiting and dizziness. On one visit, my brother remarked that I looked yellow. The…

This is Rheumatic Diseases Awareness Month. PatientsEngage brings together a panel of rheumatologists and patient leaders to talk about how rheumatic diseases affect women, the unique challenges women face and how their needs can be better addressed. Are women affected by rheumatic diseases more often than men? How do these differences play out? Especially for lesser known rheumatic conditions. We bring together a panel of doctors and patient leaders to discuss this issue and also suggest the…

मणिपुर की 37 वर्षीया वाइखोम बिमोलता को दो ऑटोइम्यून बीमारियाँ हैं - लुपस और शोग्रेन्स। इस लेख में वे इस स्थिति में अपनी जटिल चिंता-ग्रस्त गर्भावस्था और सफल मातृत्व के सफर के बारे में बताती हैं। उनकी उम्मीद है कि इस से ऐसी महिलाओं को प्रोत्साहन मिलेगा जो ऐसी ही स्थिति में हैं और माँ बनाना चाहती है। आप ऑटोइम्यून इंफ्लेमेटरी डिजीज लुपस से पीड़ित एक युवा मां हैं। क्या आप हमें बता सकती  हैं कि आपको लुपस  का निदान कब मिला और आपके शुरुआती लक्षण क्या थे? मुझे लुपस नेफ्रैटिस का निदान 2016 में…

Ajit Tolani,42 went through myriad conditions like Scleroderma and a double lung transplant over two decades to finally reach recovery through proper lifestyle and medication. He recounts his long journey with a number of health ordeals. You had a series of conditions. How would you like to talk about them? Yes, I do have series of conditions. I realized that one medical condition led to other and ended in me requiring a double lung transplant. The patients must address the medical conditions…

Hemalatha Rao was diagnosed with a hole in her heart at the age of three. Since then she has dealt with a slew of conditions and has even undergone a heart and double lung transplant in the midst of the Covid Pandemic. She shares her experience and her approach to building mental fortitude and resilience. At the age of 46, just before the 2nd Covid wave hit the country, I underwent a heart and double lung transplant. I have been waiting for this transplant since Aug 2019, when the world had not…

In this webinar we spoke with Dr. Nilesh Nolkha, Consultant Rheumatologist and Clinical Immunologist addressed some of the most common questions on Lupus as part of the “Know Lupus” series.  Dr. Nilesh Nolkha answers the following questions (marked with timestamps on the youtube recording) 03:52 What is Lupus? 05:30 What are the signs and symptoms of Lupus 10:00 How is Lupus diagnosed? Are there any tests for this? 12:00 What are the treatment options for Lupus? 16:05 Can a Lupus patient…

Waikhom Bimolata, 37, from Manipur, recounts her journey from being diagnosed with two autoimmune diseases Lupus and Sjogren's, her complex anxious-ridden pregnancy and successful motherhood. Here, she hopes to encourage other aspiring mothers in similar situation. You are a young mother with autoimmune inflammatory disease Lupus. Could you tell us when were you diagnosed with it and what were your early symptoms? I was diagnosed with Lupus nephritis in 2016. My early symptoms included fatigue…

Tushita Agrawal, a 16 year old from Akola, Maharashtra has been battling Behcet’s disease, a rare autoimmune condition, for 3 years now. She speaks of how she has tackled her challenges at such a tender age. Please tell us a bit about your condition? Behcet's disease (also called Behcet's Syndrome) is a rare autoimmune disease that affects blood vessels and can affect any system in the body. It has affected me neurologically as I have lost my sense of hearing. It has affected my digestive…

23 July is marked as World Sjogren's Day (WSD) to honour Dr. Henrik Sjogren who first identified Sjogren's syndrome as a systemic, autoimmune chronic rheumatic condition.  Sjögren’s India and PatientsEngage bring together patient experiences of living with Sjogrens and what can be done to Conquer Sjogren's syndrome in India led by Mrs Kirtida Oza, co-founder Sjogren's India With special messages from Dr. Sapan C. Pandya, Secretary Indian Rheumatology Association and Dr. Debashish Danda…

Jyoti Gada, who fought long with vitiligo, has in the last decade come to terms with her white patches. Today, she has an Instagram page where she models for her clothes and is willing to start any conversations on the challenges of Vitiligo. I have grey hair. I am fifty plus and fabulous. And, oh by the way, I have vitiligo. You can’t miss my white patches. I have them all over my face and body. Under my eyes, nose and a broad stretch running across the top of my forehead. But I am no longer…