Auto Immune conditions

A. Alphonse Prabhu Roy, 60, was diagnosed at a young age with two chronic autoimmune disorders, Lupus and Sjogren’s Syndrome, with multiple complex symptoms, the most challenging being dry mouth and brain fog. Narrating his experience, he said both illnesses need to be handled carefully or else they can severely impact work and home. You have been the general manager of a public sector oil company for many years. Please could you tell us a bit about your current work and where do you live?…

Anita Mody, an active grandmother and housewife wakes up one day with suspicious pain in her legs. A week later, she is unable to walk, move or feel her legs. A rare and progressive nerve disorder called Guillian-Barre Syndrome changes her life with no warning. She struggles with it but hopes to come out of it soon. Here is her account of it with the help of Bhakti, her daughter in law. Please tell us a bit about your condition. I have Guillian-Barre Syndrome. I had never heard of it before. It…

Dr. Sayan Basu, Network Director, Research Consultant Ophthalmologist, L V Prasad Eye Institute (LVPEI) spoke to PatientsEngage on Dry Eyes disease, a growing public health problem and one of the most common conditions seen with the increased use of screens.  ​The video below covers the following questions and a lot of questions from the audience. What is dry eyes disease? Symptoms of dry eyes Causes and risk factors of dry eyes Stages of dry eyes Treatment of dry eyes…

मुंबई की 76 वर्षीय राशने दुबाश को दो दशकों से अधिक समय से रूमेटॉइड आर्थ्राइटिस है, और वे इस लेख में इस के साथ अपनी यात्रा साझा करती हैं। वे अपने लक्षणों के बारे में बात करती हैं और बताती हैं कि वे अपने स्वास्थ्य का प्रबंधन कैसे करती हैं और उन्होंने इस दौरान क्या सीखा। राशने दुबाश एक ऊर्जावान जीवंत व्यक्ति हैं जो नहीं चाहती हैं कि कोई भी बीमारी उनकी जीवनशैली पर अंकुश लगाए। वे सक्रिय रहती हैं, सेवानिवृत्त होने से इनकार करती हैं और जिंदगी से प्यार करती हैं। वे एक स्कूल में प्रशासक के रूप…

On World Scleroderma Day, Scleroderma India had organised an online conference. One session was a detailed discussion by Dr. Kaushik Bhojani, senior Rheumatologist, Mumbai on the effect of Scleroderma on the sexual health of Scleroderma patients and how they can address it to improve quality of life. This session is also applicable to persons living with Sjogren’s Syndrome and Myositis. Scleroderma is primarily a disease of women although it can affect men and, in some cases, quite severely. So…

Rashne Dubash, 76 year old from Mumbai shares her journey of living with Rheumatoid Arthritis for over two decades. She talks about her symptoms, how she manages her health and the lessons learnt. Rashne Dubash is an energetic vibrant person who does not want any disease to curb her lifestyle. She continues to be active, refuses to retire and loves her life. She used to work as an administrator for a school and now works for a design firm. Please tell us a bit about your condition? I have…

Maxwell Gomes, 34 is living with a debilitating condition called Ankylosing Spondylitis in Kolkata which is so painful that it can even paralyse a person. Delayed diagnosis just makes it worse. Maxwell talks about how he manages AS as well as a host of other related issues. How would you like to introduce yourself? I am Maxwell Gomes, 34yrs from Kolkata, suffering from Ankylosing Spondylitis – HLA B27 positive. I’m suffering since 2013, but I was only diagnosed as late as in August 2015. I work…

Sjögren’s India and PatientsEngage invite you to the Sjögren's Dialogues, an interactive webinar focussing on Exploring Neurological and Mental Health Complexities associated with living with Sjogren's Syndrome. Sjögren’s India and PatientsEngage invite you to the Sjögren's Dialogues, an interactive webinar series where patients and healthcare professionals engage constructively to understand lesser discussed aspects of a complex condition called Sjögren's Syndrome. This year, the focus is…

शुष्क त्वचा से कई लोग प्रभावित होते हैं पर शोग्रेन्स सिंड्रोम वाले लोगों में शुष्क त्वचा एक विशेष  चुनौती है। नीचे देखें शोग्रेन्स इंडिया द्व्रारा प्रकाशित एक पर्चा जिसमें शुष्क त्वचा से बचाव और उसके उपचार के लिए कुछ टिप्स हैं। शोग्रेन्स सिंड्रोम  से उत्पन्न शुष्क त्वचा की विशेष देखभाल जरूरी है। खुजली, लालिमा, फटना या गलना – यह सब शुष्क त्वचा के लक्षण हैं। शुष्क त्वचा का प्रमुख कारण है शोग्रेंस द्वारा शरीर में प्रतिरोधक क्षमता की कमी और इससे नमी पैदा करने वाली ग्रंथियों का निष्क्रिय…

Ashwini Nalhe, 33 from Nagpur  has been battling Scleroderma and a few other auto immune conditions for over 10 years now. These are rare conditions which people don’t know about, hence don’t understand. But this has torn Ashwini’s life apart in more senses than one,  and yet she has learnt to pick up the pieces and move on. Please tell us a bit about yourself and your condition. I am an engineer and also a lawyer by profession. I have been suffering from a set of autoimmune,…