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  • Find The Lupus Management Protocol That Is Right For You
    Ishita Biswas has Lupus (SLE) and Macrophage Activation Syndrome (MAS) and shares with us how she deals with the challenges of each day to the best of her abilities. #DayInTheLife Series Mornings : My mornings begin with meditation. I try to wake up as early as possible, but I try to make sure that my body is not stressed by that. I am up mostly by 6:30 am. I feel starting your day with meditation is the best way to have a productive day, irrespective of the fact whether you have a chronic…
  • A woman in black and pink on a wheelchair in an outdoor setting
    I Felt Most Challenged When Lupus Affected My Spine
    Priya Bhargava was affected by Lupus as a teenager and had multiple disabilities. Yet she fought bravely and pushed forward to pursue all her dreams. Read how she empowered and transformed her life. She has boldly sidestepped Lupus, a chronic autoimmune condition that can cause inflammation throughout the body. Despite early onset of symptoms and multiple disabilities, she continued to dream big and break barriers. Her disease has never been her identity. She is multi-talented and known for her…
  • My Approaches To Managing Chronic Pain
    Soumita Basu has been living with the chronic pain associated with Psoriatic Arthritis for almost 10 years. She shares her experience of managing the pain and what works for her.  Chronic pain can be debilitating. It can be isolating. And it is almost always inexplicable. As I write this, I am in excruciating pain. And I recall all the pain stories I have heard from people suffering from chronic pain. Pain that fogs the mind and makes me second guess everything. Sometimes, the question is…
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    A Day In The Life With Hashimoto's And Fibromyalgia
    Kavita, 40 from Mumbai shares what a day in her life with Hashimoto's Thyroiditis and Fibromyalgia looks like, her diet and exercise routine, and how she deals with the flare ups.  Mornings : My mornings start at 6am and as soon as I wake up I take my Thyronorm 50mg. A few minutes later, I take my Homeopathic medicine (which I have recently started). By 6:30 am, I am dressed and ready to head to the Gym. I make sure my gymming is done in the morning time so my evenings are free for my…
  • How Scleroderma Changed My Identity
    Neetu, 42 was a software consultant before the onset of Scleroderma transformed her life and identity. She describes her lived experience with Scleroderma, her challenges and the lifestyle changes that work for her. She is now co-founder Scleroderma India.  Please tell us a bit about your condition, when were you diagnosed, the early symptoms? In Jan 2006, I saw my fingers turning blue in extreme cold, but I ignored them. And during the same year, I started having breathing issues,…
  • How I Dealt With The Social Boycott Of Alopecia
    In 2015, Ketaki Jani, was absolutely shattered when she developed alopecia and lost her hair. Being ill at ease with wigs and caps, she decided to get her bald scalp fully tattooed. Read her bold, unconventional battle. *Trigger warning Could you tell us a little about your condition? Well, I am survivor of an autoimmune disorder called Alopecia. Here the person loses hair as per different degree and types. What were the early symptoms? What made you see a doctor? One day, while moving my hand…
  • A young woman in a red dress standing next to a palm frond
    "Lupus Does Not Define Me"
    At 20, Ishita Biswas, a Lupus patient, has been through a lot of pain and medication. She has also had to battle the ignorance of people around her. But she has learnt to come to terms with her condition and even wants to reach out to others in similar situations. I am a 20 year old woman suffering from a condition called Lupus or SLE (Systemic Lupus Erythematosus) which is a systemic autoimmune disease that occurs when your body's immune system attacks your own tissues and organs. Since there…
  • A young woman against a scenic backdrop of a lake and mountains
    How Diet And Lifestyle Changes Helped Me Beat Rheumatoid Arthritis
    Pallavi is a Bangalore-based ecommerce professional who was diagnosed with Rheumatoid Arthritis 4 years ago. She shares how she made diet and lifestyle changes to manage the condition. Last month, I went to my friend's son's birthday party; he was turning 8. After the cake was cut, when we all sat down to eat, all the kids were served pizza and garlic bread with cheese dip. I sat among the kids and took out my tiffin from my bag and started eating my millets upma. All the kids stared at me as…
  • A man with a beard in a black t-shirt holding a guitar that clearly shows his hands with white pigmentation
    Embrace And Love your Body As Is
    Akash Tiwari, 23, who has Vitiligo, had to fight severe depression and discrimination, to embrace his white patches. Today, through his Foundation, Aarus, he empowers people with Vitiligo accept themselves and come to terms with their body image. Trigger Warning My story is like many other success stories of vitiligo. I am no longer afraid to tell the world about my white skin patches. I have accepted them as part of my life and they no longer hold sway over my choices and my decisions. But…
  • How Yoga Helped Them In Managing These Five Chronic Conditions
    Can Yoga help people manage their chronc conditions? We picked out a wide range of conditions where patients have benefitted from practice of yoga.  It is fairly well known that people with certain conditions like Diabetes, Hypertension and Arthritis benefit from regular practice of yoga. You can also download our ebooks on the same from our E-Books Resources Page.  But the benefit of yoga goes beyond that to neurological conditions like Parkinson's and  Epilepsy, auto-immune…
This is an autoimmune disease. Please add this also.
I have a auto immune disease known as Phemphegus vulgaris
Scientists have successfully treated a patient with disfiguring sarcoidosis, a chronic disease that can affect multiple organs, with tofacitinib. a drug approved for rheumatoid arthritis. Sarcoidosis is an inflammatory…
Research shows that Iron deficiency, measured through the size variation of red blood cells, is correlated with increased fatigue in systemic lupus erythematosus (SLE) patients,. The association seems to be independent of age, ethnicity,…
Chandra Mohan, a Houston based Indian origin professor and his colleagues have received a private grant of USD 600,000 for their brilliant and pathbreaking research to develop a new…
what meds are good I'm looking into armour cause the synthetic ones don't do anything for me? also stem cell trails in the us, do anyone knows any?
diet for health
arthritis friendly kitchen ebook download
Hello Friends I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and…
There is an increase in diagnosis of auto immune conditions in India -  Rheumatoid arthritis, Ankylosing spondylitis, Lupus, Thyroiditis (Hashimoto’s disease), Inflammatory bowel disease There was an article in…
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