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  • 5 New Year’s Resolutions to Bulldoze your Illness
    Thirty five year old Deepthi Sudhir Nair, a person with Myasthenia Gravis, rings in 2017 with five heartfelt pointers that can help transform lives and bring in greater happiness, positivity and self-respect in the New Year. Before I bury my reminiscences of 2016, I want to thank it for making me a chronically ill patient (through myasthenia gravis, urticaria, bronchial asthma, migraines and psychogenic nonepileptic seizures) and taking away my freedom. At the same time, teaching me what life…
  • Aditi who has Fibromyalgia in an outdoor balcony setting in a red printed full sleeved dress
    The Struggle To Find A Cure For An Invisible Disease
    Aditi Gupta, 23 from Gorakhpur, Uttar Pradesh has been in pain for the last 5 years, battling an invisible condition called Fibromyalgia. She still has not found a cure, but has not given up hope – yet. I suffer from a chronic pain illness called Fibromyalgia. It is an invisible and an incurable condition causes widespread muscle pain, migraine, stiffness, fatigue, morning sickness, insomnia, restless legs, depression and several other symptoms. First Symptoms  I was diagnosed about 3.5…
  • Profile pic of a young woman with celiac disease in a blue dress
    When Going Gluten Free Is a Necessity
    When Jeeva Anna George was diagnosed with Celiac disease, an uncommon digestive disorder causing inflammation of the small intestine, her whole life began revolving around food. Here she talks at length about her personal journey and how she learnt the hard way to control the disease by strictly following a gluten free diet. At what age did you discover you had celiac disease? My symptoms started when I was 25 but I was diagnosed a month after turning 27. What were your initial symptoms? My…
  • A young woman, spectacled, shoulder length hair in a red dress in the foreground and holding a glass of wine. In the background are a few tables and blurred images of 2 people in blue shirt and green tshirt pulling chairs
    My Relationship with an Invisible Illness
    Suzanne Sangi is a 22-year-old who was recently diagnosed with Lupus, a chronic illness, which damages many parts of the body, including the joints, kidneys and heart. Here she talks about the pain that you can’t always see, and healing that you can always be a part of. For a long time, I have followed stories of women who have shared their experiences with chronic pain. I didn’t know that acknowledging pain would only be the starting point to what I would like to call the sparkling cloak of…
  • Image of Sunena Gupta, a black haired woman with alopecia smiling and facing the camera against a background of green foliage
    Dancing Through Self-Image Issues to Hope
    Bhanu Ramchandran talks to Sunena Gupta, a young girl whose journey to overcome self-image and mental issues caused by her chronic medical condition, is an inspiration to youngsters. 20 year old Sunena is a role model, an all-round achiever. An ace student, she is doing her Bachelors in a leading US university. She has been a basketball player in school. She plays the drums and is a Kathak dancer with several stage performances under her belt. Her next Kathak show – titled ‘Umeed’ (meaning ‘…
  • Urmila Prabhu speaking at a Vitiligo forum with a black sari and golden blouse
    Having a Positive Body Image with Vitiligo
    Urmila Prabhu, who developed vitiligo in her forties, has launched the Voice of Vitiligo, the first vitiligo support group in Mumbai, to spread awareness, build an active vitiligo community and combat the huge stigma attached to the disease. My vitiligo started in my late forties. I was going through a phase of extreme emotions. There was bereavement and celebrations within months. I had lost my partner in 2015, leaving a huge void in my life. Within eight months my daughter decided to get…
  • Priya sitting on a green patch with a basket of fresh food next to her sharing her management of hypothyroidism
    How I Took Charge Of My Life And Thyroid
    Priya had for years allowed hypothyroidism and its related issues to get the better of her, till she finally turned around and decided to make lifestyle changes and battle it head on. This is the story of how she emerged a winner. Early Symptoms When I was a teen in the early 1990’s, my poor mother spent hours every morning trying to get me out of bed. I held my stomach or head, faking intense pain. I even locked myself in the bathroom, poured water into the toilet and simultaneously made…
  • Image of Gopa a black haired woman looking at the camera, living with Lupus in Mumbai, India
    If You Stop Focussing On The Pain, It Gets Easier
    Gopa, 49 from Mumbai was diagnosed with Lupus Nephritis soon after her breast cancer treatment ended. She shares the complications that Lupus brought and the lifestyle changes that have helped her. Please tell us a bit about your condition  I have Lupus Nephritis (stage 5) and a blockage in the heart which is being treated with medicines. When were you diagnosed? What were the early symptoms? Well in 2000, I was diagnosed with Stage III Breast Cancer and had treatment going on till 2002.…
  • Image: A young lady in a summery white crop top, a cool drink with a straw in hand, dark glasses in the other hand
    Tips for a Healthy Summer for People with Chronic Conditions
    With increase in global warming, summers have become much hotter in recent years. Rising temperatures are seen with poor air quality, severe weather patterns and higher UV ray radiation. It becomes important to protect yourself and your family from the extreme heat, especially those who are living with a chronic condition.  Here is a look at certain diseases that are most affected by the summer heat and ways on how they can be better managed during summer. If any of your symptoms are not…
  • Image: Smiling woman wearing a sari looking at the camera tells her fibromyalgia story
    Fibromyalgia is like having Flu Everyday
    It was ad in a newspaper that familiarized Anju Gupta, 54, an Indian settled in Canada, to QiGong, a Chinese system of physical exercises and breathing control that helped keep her fibromyalgia in check. Read how she came out a winner. My problem began soon after I migrated to Canada in 1995. Besides, the pressures of settling in a new country, I had a baby to look after. My son was barely six weeks old. It was very stressful time for me. The only saving grace was that I began to steadily shed…
This is an autoimmune disease. Please add this also.
I have a auto immune disease known as Phemphegus vulgaris
Scientists have successfully treated a patient with disfiguring sarcoidosis, a chronic disease that can affect multiple organs, with tofacitinib. a drug approved for rheumatoid arthritis. Sarcoidosis is an inflammatory…
Research shows that Iron deficiency, measured through the size variation of red blood cells, is correlated with increased fatigue in systemic lupus erythematosus (SLE) patients,. The association seems to be independent of age, ethnicity,…
Chandra Mohan, a Houston based Indian origin professor and his colleagues have received a private grant of USD 600,000 for their brilliant and pathbreaking research to develop a new…
what meds are good I'm looking into armour cause the synthetic ones don't do anything for me? also stem cell trails in the us, do anyone knows any?
diet for health
arthritis friendly kitchen ebook download
Hello Friends I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and…
There is an increase in diagnosis of auto immune conditions in India -  Rheumatoid arthritis, Ankylosing spondylitis, Lupus, Thyroiditis (Hashimoto’s disease), Inflammatory bowel disease There was an article in…
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