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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • Neema in a pink shirt, white pants and a scarf in an open area walking with support of a cane
    मुझे अपने बेटे के लिए अपनी हड्डियों के कैंसर से लड़ना था
    नीमा 26 वर्ष की थीं जब उनको ऑस्टियोसारकोमा (हड्डी का कैंसर) का निदान मिला और उनका जीवन हमेशा के लिए बदल गया। इस लेख में वे अपनी उस चुनौतीपूर्ण यात्रा के बारे में बात करती हैं जिसमें कई सर्जरी, टांग का कटना, और अनेक अन्य मुश्किलों का सामना करना पड़ा, और यह भी साझा करती हैं कि कैंसर से लड़ने की हिम्मत और प्रेरणा उन्हें किस से मिली। कृपया हमें अपनी स्थिति के बारे में कुछ बताएं 1998 के नवंबर की बात है जब मैं सिर्फ 26 साल की थी और मुझे अपने घुटने के ओस्टियोसारकोमा (हड्डी का कैंसर) का निदान मिला। आपके…
  • A pic of a plane midflight and overlay of the text Travel tips for Cancer patients
    कैंसर सर्वाइवर के लिए यात्रा से संबंधित नुस्खे
    कैंसर रोगी और उत्तरजीवी (सर्वाईवर) यात्रा कर सकते हैं, पर उन्हें कुछ ख़ास बातों का ख़याल रखना चाहिए। इस लेख में इस के लिए डॉ. शीतल पटेल से कुछ सुझाव हैं और उर्वी सबनीस, नंदिता मुरलीधर और मोना चौधरी (सभी कैंसर उत्तरजीवी / सर्वाईवर) का बहुमूल्य योगदान भी शामिल है। कैंसर रोगी को किसी भी यात्रा को शुरू करने से पहले अपने डॉक्टर की सहमति ज़रूर प्राप्त कर लेनी चाहिए। यात्रा का कार्यक्रम ऐसा बनाएं ताकि आप यात्रा के कारण अपने किसी भी टेस्ट या फॉलो-उप अपॉइंटमेंट से न चूकें। यात्रा करने के लिए ध्यान रहे कि…
  • Image of a woman experiencing hot flashes and using a hand fan. Text overlay on blue strip - Menopause And Cancer
    Tips To Manage Menopause During Cancer Treatment
    Developing menopause while going through cancer is a double whammy for all women. The sudden jolt of menopause caused by cancer treatment is not only physically but mentally straining as well.  Can physiotherapy help alleviate these distressing menopausal effects and improve quality of life for women with cancer? Ajeeta Kulkarni, a senior physiotherapist at Tata Memorial hospital in Mumbai, tells us how. What are the causes of menopause in cancer patients? Menopause is the decline in the…
  • A partially visible person in white top and pants holding the urge to urinate with text on blue strip How to manage incontinence
    Managing Bowel and Bladder Incontinence in Cancer Patients
    Bowel (fecal) and bladder (urinary) incontinence is a relatively common side-effect that can occur during cancer treatment. Due to the stigma and under-recognition attached to this condition, quality of life suffers significantly in persons with cancer. Learn more about managing this condition with Prachi P. Narkhede, a MPT Cardiovascular & Respiratory Physiotherapist at Tata Memorial Hospital. What is incontinence? It is loss of control of bladder and bowel causing accidental leakage of…
  • An woman holding her foot in pain and text overlay on blue strip :Tips and Exercises for Neuropathy
    Managing Neuropathy In Cancer treatment
    One of the many unpleasant aspects of treatment for cancer patients is the adverse effect of having nerve related pain, tingling, altered sensations, etc. This is termed as neuropathy and occurs when the nerves fibers in the body get damaged, inflamed or destroyed during the cancer treatment process. Neuropathy can be managed with the help of physiotherapy and some lifestyle changes. Manali Kamat, a Physiotherapist from Tata Memorial Hospital, Mumbai provides detailed insight into this…
  • स्ट्रोक रीहैब (पुनर्वास): मेरी सबसे बड़ी प्रेरणा आंतरिक है
    स्ट्रोक रीहैब (पुनर्वास): मेरी सबसे बड़ी प्रेरणा आंतरिक है
    सोनल गोरेगांवकर को माउंट एवरेस्ट के बेस कैंप तक चढ़ने के वक्त एक स्ट्रोक हुआ जिससे उनकी बोलने की क्षमता चली गई। इस स्थिति को ग्लोबल एफेशिया (व्यापक वाचाघात) कहा जाता है। इस लेख में उनके सामान्य जीवन को फिर से शुरू करने और काम पर वापस लौटने के लिए आवश्यक उनके धैर्य और दृढ़ संकल्प की कहानी है, और उनके साथ किए गए एक वीडियो साक्षात्कार पर आधारित है। मैं सोनल गोरेगांवकर हूं। मुझे सब लोग बहुत प्यार करते हैं । । मेरा परिवार और दोस्तों के अनुसार मैं एक सहानुभूति रखने वाली, दूसरों का खयाल करने वाली…
  • लेखक अंजना त्रिपाठी की छवि उनके पुस्तक कवर के साथ Composite Image of the author anjana tripathi with her book cover
    बच्चे का पालन-पोषण सकारात्मक और शांत रहकर करें
    जब अंजना त्रिपाठी की 14 साल की बेटी के टाइप 1 डायबिटीज़ (मधुमेह) का पता चला तो उन्हें बहुत बड़ा धक्का लगा। इस स्थिति के लिए आवश्यक समायोजन करने के लिए उन्हें बहुत बड़े बदलाव करने पड़े। अंजनाजी इस लेख में साझा करती हैं कि उनके परिवार ने इस स्थिति में किस तरह की चुनौतियों से जूझना पड़ा। उन्होंने अपने अनुभवों को एक अच्छी तरह से शोधित पुस्तक में भी प्रस्तुत करा है। कृपया हमें अपनी बेटी की स्थिति के बारे में बताएं। उसका निदान कब किया गया था? उसकी आयु कितनी थी? मेरी बेटी दैनिक रूप से टाइप 1 डायबिटीज…
  • A woman holding the bridge of her nose and text overlay on a blue band Managing Cancer Related Fatigue
    Managing Cancer Related Fatigue
    Fatigue, often confused with mere weakness, is now recognized as one of the most common symptoms of cancer itself as well as a side-effect of the treatment that a patient goes through. Often underdiagnosed or misdiagnosed, it leads to a distress and affects daily living of the cancer patient. So how does one recognize it and what do we do about it. Sarika Mahajan, senior Physiotherapist with Tata Memorial Hospital helps us unpack this unvalued symptom for both patients and their care providers…
  • Stock image that shows dumbbells, a head set and phone, and running shoes on a pink mat with text overlay Diabetes and Exercise and PatientsEngage logo
    Best Exercise Options For Persons With Diabetes
    Exercise is an integral component of diabetes management. Exercise can be varied and fun. Understand the various types of exercise available and how to make the best choice for you. Exercise is an essential part of daily life for persons (Individuals) with Diabetes. It has many benefits such as lowering blood sugar levels, keeps cholesterol and blood pressure values under control, keeping the heart healthy, improves blood flow, provide strength to muscles and bones, elevates mood and improves…
  • An elderly man with a port attached on his chest and blue side bar with overlay text Learn about Cancer ports and catheters and patientsengage logo
    Ports and Catheters in Cancer Treatment
    When you or a loved one is first diagnosed with cancer, there are a lot of new terms to deal with. There are also a lot of questions about how treatment delivery mechanisms. This article addresses these unanswered questions. You can also refer to the glossary for more information on cancer terminology. If you or your loved one has been through cancer treatment, you may be aware of the various types of medical inserts used by Oncologist for Chemotherapy. Most medicines are injected into the vein…