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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Stories

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    Writing Made My Father Come Alive In The Novel
    Rima Pande in her debut novel, His Voice, writes a fictionalised narrative about the teeming thoughts swirling in her father’s mind for two years as he lay conscious but paralysed and unable to speak due to two successive strokes in a month. There are great insights into caregiving. Read it. Could you tell us a little bit about the experience that led to your writing ‘His Voice’? My father had two successive strokes within a month, leaving him paralyzed and unable to speak or communicate in any…
  • Webinar: Towards Patient Centred Access To Quality Cancer Care - Challenges
    PatientsEngage and EHA Consortium invite you to an interactive webinar series on Patient Centred Access to Quality Cancer Care. In the first of the series aligned to the UICC theme of "Close the Care Gap", we are very privileged to have an esteemed and diverse panel who will highlight the challenges faced in equitable access to quality cancer care and identify the areas where we still need to make progress. The panelists are Dr. CS Pramesh, Director Tata Memorial Hospital; Convener National…
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    Dangers Of Excess Salt, Sugar and Junk Food On Children's Health
    A panel discussion with Dr Rajan Ravichandran and Dr Arun Gupta highlighted the need for better product labeling and regulatory changes around advertising and marketing of processed foods. For parents to be aware of the link of salt, sugar and ultra processed foods with diabetes, hypertension and Chronic Kidney Disease in children. (Video below) Participants: Dr Rajan Ravichandran – Senior Nephrologist (RR) Dr Arun Gupta – Pediatrician (AG) Aparna Mittal, Founder , PatientsEngage (AM)  …
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    Sonal Goregaonkar suffered a stroke while climbing the Everest base camp, which took away her ability to speak, a condition known as Global Aphasia. This is a story of her grit and determination to regain a normal life and get back to work based on a video interview with her. I am Sonal Goregaonkar. I am a loveable soul. My family and friends describe me as an understanding, caring person and an ambitious person. My key pillars of my stroke recovery was my faith in myself, my faith in my…
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