What is a Parkinson's Support Group?| Parkinson's India Support Group Meetings

Submitted by Aishwarya Solanki on 27 August 2016

A Parkinsons Support Group Meeting in India

Support Group for Parkinson's in India run by PDMDS and in collaboration with their partners.

Last Update - Feb 2019

A support group is an informal gathering of people who share similar experiences, situations or problems. By meeting together, Parkinson’s Support Group members can offer each other emotional and practical support.

In such a group, one is able to learn about Parkinson’s its problems and treatment. But most importantly the members share experiences and practical tips on living with Parkinson’s. Formal discussions, lectures and demonstrations on the many facets of the conditions are organized, drawing for the multidisciplinary approach.

Regular support group meetings entail a healthy and detailed interaction and exchange of feedback between the patients, caregivers and health care professionals. This has resulted in organizing programs based on the needs expressed by the members. Some of the programs and activities organized include, ‘Yoga for Parkinson’s’, ‘Art therapy’, ‘Physiotherapy sessions’, ‘Educational and Cognitive training sessions’

Support Groups help renew ones sense of hope in dealing with changes one experiences in one’s life style. They give you a chance to make new friends and to break down feelings of isolation. In belonging to a support group you will always find that, ‘YOU ARE NOT ALONE!’

If you have Parkinson’s or any other movement disorder, remember you are not alone.

Attached is a listing of all support groups run by PDMDS and through their outreach centres. But if you cannot make it to those centres, you can reach out to them through this online community as well.

There are Support Group and Physiotherapy Group meetings in different parts of Mumbai:

Andheri, Bandra, Santacruz, Andheri, Borivali, Byculla, Chembur, Dadar, Kandivali, Dombivili, Ghatkopar, Mulund, New Marine Lines, Thane, Vasai, Vashi, Nallasopara, Arnala

Community Based Rehabilitation for Neurological Conditions:

BDD Chawls Worli and Dharavi

Outreach Centres

GOA: Mapusa, Margao, Panjim, Ponda, Vasco da Gama

KARNATAKA: Bengaluru

Rest of MAHARASHTRA: Nashik, Jalgaon, Asangaon/Vasind

GUJARAT - Vapi, Kaprada

MADHYA PRADESH - Indore

KERALA - Cochin

TELANGANA: Hyderabad

RAJASTHAN - Jodhpur, Udaipur

CHANDIGARH

ANDHRA PRADESH - Nellore

ASSAM - Guwahati

SIKKIM - Gangtok (new)

DELHI - New Delhi (new)

OUTREACH CENTRES IN COLLABORATION WITH BKP – PDMDS

GUJARAT: Ahmedabad, Baroda, Bhavnagar, Anand, Mahuva, Rajkot, Surat

MAHARASHTRA - Pune

Details attached: PDMDS Support Group Listing (Updated as of Feb 2019)

Community

Parkinsons Disease and Movement Disorder PDMDS

Condition

Parkinson Disease

SGLIST-JANUARY2019.docx (67.6 KB)

Stories

Managing Depression and Anxiety with Parkinson's Disease

People with Parkinson’s may experience extreme sadness of mood and anxiety. This could be due to the Parkinson’s itself or due to the effects of the medication. It is important to acknowledge these emotions and to get the required help. Depression It is natural for everybody to feel sad at times, or to get upset by things. However, after a while or if they are put in another situation, then they may no longer experience these emotions. Sometimes, people tend to experiences these emotions for an…
Tips on Traveling with Parkinson's Disease

With Parkinson’s being a condition that mainly affects movements, traveling can become quite a difficult task. The most important thing to remember is that you must always plan ahead. By planning ahead of time, you will be able to organize everything that you need as well as decide on what mode of transportation you will take and arrange for the same. While it is important that you always have your medications at the times given by your doctor, if you know that you are going to be going out,…
"Parkinsons Will Not Have Me"

Meet Mr. Merwan Zend, first patient member of Parkinson's Disease and Movement Disorder's Society of India to run the Standard Chartered Mumbai Marathon. His motto is "I may have Parkinson's but Parkinson's will not have me" On a pleasant winter morning, with his caretaker’s hand in one hand and the a walking stick in the other, 76- year- old Merwan Zend completed a six-km run at the Standard Chartered Mumbai Marathon 2012. His smile belied the fatigue of having run a long…
Are Snacks Sabotaging Your Diet?

What to do when the munchies strike and you feel like snacking? Hear it from Registered Dietitian and Diabetes Educator Ujjwala Baxi. One of the questions I ask my clients is: How often do you snack and what do you choose to snack on? A client, Mrs. Juneja (name changed) complained of weight gain of 5 kg in 2 months since starting her job. On interviewing her, it became clear that more than her main meals, her snacks, along with her sedentary desk job, were contributing to her weight problem.…
Hallucination and Delusion in Parkinson's Disease

Hallucination and Delusion in Parkinson's Hallucinations and Delusions are two types of Neuropsychiatric symptoms which affect people with Parkinson’s, and result in disturbance of perception and thought. They can occur due to two reasons - as a symptom of the condition or as a side effect of the medication. A Hallucination involves a sensation (seeing, hearing, smelling, tasting or feeling) about something that does not exist. It is experienced when the person is in a wakeful state and very…
Unity walk for Parkinson…in Nasik

Unity walk for Parkinson…in Nasik A Unity walk was organized in Nashik on Saturday, December 5, 2015 to promote awareness of Parkinson’s disease by PDMDS with support from several other leading organizations. In addition to the patients and representatives of these organizations, citizens of Nashik also came out in large numbers to show their support. Approximately 300 participants started assembling bright and early and the walk commenced at 5:15 PM, originating at Nasik City Center Mall to…
Early Stage Parkinson’s - Dealing with the Diagnosis

What can you do when you have Early Stage Parkinson's Taking Control of Parkinson’s: Make a decision today to take control of your life with Parkinson’s. The key to living an optimally healthy, happy and fulfilling life is in your hands. Here are some pointers to help you take control. Acceptance: It is important that you accept that you have Parkinson’s. Then only will you be able to take control of it. Acceptance does not mean you’re “giving up” instead it is the first hurdle you must…
13 Myths about Parkinson’s

1. Myth: Parkinson’s is contagious. Reality: Parkinson’s is a neurological (occurring in the brain) condition which is not contagious and cannot be passed on from one person to the other. 2. Myth: All people with Parkinson’s have tremors. Reality: Although tremor is the most widely recognized symptom of Parkinson’s, not all people who have Parkinson’s have tremors. Parkinson’s may manifest with a variety of other symptoms too. http://www.patientsengage.com/conditions/parkinson-…
Dyskinesia and Parkinson’s

Dyskinesia is a term that is used to describe excessive movement which is beyond one’s control. Scientists believe that the areas in the brain which are responsible for producing movement become over – stimulated. This leads to excessive and unwanted movement. However, remember that dyskinetic movements are not tremors. Tremor is a symptom of Parkinson’s, whereas dyskinesia is more often thought to be a side effect of Levodopa. People experience different kinds of…
Young Onset Parkinson's

What is Young Onset Parkinson’s Disease Although Parkinson’s is mainly a condition that affects the elderly, it is sometimes seen in people who are much younger as well. Young onset Parkinson’s is seen in people who are diagnosed with Parkinson’s before the age of 50 years. Common Symptoms Most of the symptoms for Parkinson’s are generally the same no matter at what age it is diagnosed and the rate of progression varies from individual to individual. However, young onset Parkinson’s…