Care For Rare Disease Circle

  • Care For Rare Disease Circle
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    A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life. This community is to allow persons with rare disease to get access to lived experiences and other resources and to connect with each other

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  • We Struggled For 10 years To Find Out What’s Wrong With Our Child
    Nishka Hosangady’s parents have been running from pillar to post to identify and treat their daughter’s crippling cognitive and physical disability. Finally, after visiting a legion of doctors, therapists and healers, she was diagnosed with Benign Hereditary Chorea, a rare autosomal disorder. Read about the Hosangady’s agonizing and persistent battle to save their daughter. When Nishka Hosangady started school at 3 years, she seemed perfectly normal. But, as she went into the…
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