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Lupus
A stock pic of a side profile of a woman against a sunset and the text Living with Lupus
"Lupies Need Much Strength And Mental Support"
Amita*, a 20 year old working woman from Mumbai, with a diagnosis of Juvenile Lupus shares her experience of dealing with this condition, the emotional and financial toll it took on her and how she has come to realise the importance of medication…
Young woman with Lupus in a hat in profile against a lake and mountains
Manage Lupus In Partnership With A Rheumatologist
Debalina, a 25 year old student based in Kolkata, with a delayed diagnosis of Juvenile Lupus, no referral to a Rheumatologist and potentially inadequate treatment plan for 10 long years. She shares her experience of the complexities of this…
Silhouette of a young woman dancing and the sun shining through her scarf dupatta and the text living with lupus
Lupies: Looks Are Not Everything
Aqsa, a 17 year old from Mumbai, shares her journey of navigating Juvenile Lupus as a young teenager, including understanding the disease and seeking the right treatment. Key learnings are accepting the side effects of medications and the importance…
A young woman with Lupus wearing specs and a grey full sleeves shirt standing in front of a water body
Lupus Has Made Me A Stronger Person
Thanusree, 27 years old from Chennai has lived with a Juvenile Lupus diagnosis since 2010. She shares her experience of the challenges of getting a diagnosis and managing the emotional ups and downs of SLE. Symptoms and Diagnosis In 2010, during my…
Stock pic of mother and child on a beach against a sunset with overlay text Living with Lupus
"My Daughter Was Diagnosed With Lupus At 5 Years"
Priya, an HR professional, based in Thiruvanathapuram, Kerala and mother to Divya (names changed to maintain anonymity), 9 year old with a diagnosis of Juvenile Lupus shares their experience of the complexities of this condition in a young child and…
A young woman in white top sitting sideways framed with a purple border with the lupus butterfly symbol and the the text Living with Lupus and patientsengage logo
Treat Lupus As A Phase Of Life
Shreya Shukla, 26 years, runs her own Digital Marketing Agency, based in Kanpur, UP and lives with a diagnosis of Juvenile Lupus. She shares her experience of the complexities of Lupus at such a young age, from delayed and wrong diagnosis to…
Picture of Hrishita, a young woman in a pink and blue kurta framed in a purple frame with the text Living with Lupus
Living With Lupus Is Complicated
Hrishita Gupta, 23 years old is a teacher in Siliguri and has lived with a Juvenile Lupus diagnosis since 2014. She shares her experience of managing this complicated condition and how she copes with Systemic Lupus Erythematosus (SLE). Diagnosis I…
Alphonse Roy, Lupus and Sjogrens patient with text on blue strip : Living with invisible illnesses
Living with Lupus and Sjogrens
A. Alphonse Prabhu Roy, 60, was diagnosed at a young age with two chronic autoimmune disorders, Lupus and Sjogren’s Syndrome, with multiple complex symptoms, the most challenging being dry mouth and brain fog. Narrating his experience, he said both…
Young woman with specs in front of a leafy plant
Strange Symptoms of Idiopathic Intracranial Hypertension
Suzanne Sangi, 26, was diagnosed with a rare neurological condition called Idiopathic Intracranial Hypertension causing severe headaches, ringing in her ears with a daunting possibility of going blind. Here she talks about her treatment and renewed…