Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

    Login To Join
    Add Discussion
  • Lessons Of Empathy And Acceptance From A Caregiver For 50 Years
    Veena Sheel Bhatnagar, 80, a former lecturer of Economics, has been a non-stop caregiver for over five decades to her family members, the last being her late husband Vijay Sheel Bhatnagar who had Parkinson’s Disease. Here she recounts her long journey caregiver and shares many learnings. I became a caregiver soon after my marriage in 1963 at age 22. Since then it has it has been a nonstop 50+ year journey of caregiving. Till recently, I was a looking after my husband who had Parkinson’s Disease…
  • How Health Inequalities Impact Equality for Women
    This year on International Women's Day we focus on two aspects, the health related inequities that impact women both as patients and as caregivers. Reflect, share and let us know your thoughts. Did you know that there are many health related inequalities that impact women. There are a few that are captured in the infographic below. Let us recognise these and pledge to take steps to change this   On International Women's day, let us reflect on the biases we still need to break. The…
  • Mukta holding a bouquet of white flowers and a pink ribbon as a design element for breast cancer
    From Being A Caregiver To A Breast Cancer Patient
    Mukta Bhonsule, 55 was diagnosed with stage 3 breast cancer 9 years ago in Mumbai. She shares her journey with breast cancer, the survivorship issues she deals with and the challenges of balancing this as a caregiver of a COPD patient. I was diagnosed with Grade 3 Stage 2A Breast Cancer(HER 2+) in May 2013. What were your early symptoms. I was on a holiday in Goa and it was very hot there. When I got back, I had itching in my breast which I thought was due to heat and sweat. I spoke to my…
  • Image Description: An elderly person with a walker and supported by a caregiver
    बुजुर्गों में अकसर दिखने वाले ऐसे 12 लक्षण जो गंभीरता से लेने चाहियें
    वजन का बेवजह घटना, याददाश्त की समस्याएँ, कमजोरी और गहरी थकान जैसे लक्षणों को "सामान्य उम्र बढ़ने" की प्रक्रिया न समझें - ये किसी गंभीर समस्या का संकेत हो सकते हैं । इस लेख में डॉ शीतल रावल ऐसे 12  लक्षणों के बारे में बता रही हैं जो बुजुर्गों में अकसर पाए जाते हैं पर जिन्हें अनदेखा करने के बजाय आपको डॉक्टर की राय लेनी चाहिए।  वही लक्षण जो एक युवा व्यक्ति में एक कारण से हो सकते हैं वे बुजुर्गों में दूसरे कारणों से हो सकते हैं।  युवा व्यक्ति में शायद वे इतने गंभीर न हों, पर बुज़ुर्ग…
  • डिमेंशिया (मनोभ्रंश) वाले व्यक्तियों की देखभाल करने वालों को बेहतर देखभाल के लिए क्या समझना चाहिए
    डिमेंशिया (मनोभ्रंश) वाले व्यक्ति की देखभाल करना मुश्किल है। बदलती स्थिति के अनुसार आवश्यक बदलाव करते रहने के लिए देखभाल करने वालों को दृढ़ता से लगे रहना होता है और रचनात्मक भी होना होता है। इस लेख में स्वप्ना किशोर कुछ ऐसे महत्वपूर्ण पहलुओं पर चर्चा करती हैं जिन्हें देखभाल करने वालों को समझना और स्वीकार करना चाहिए। वे देखभाल को बेहतर संभालने के लिए कुछ सुझाव साझा करती हैं। अकसर यह माना जाता है कि परिवार वालों को डिमेंशिया के बारे में जानकारी दें तो वे डिमेंशिया वाले व्यक्ति को उचित सहायता दे…
  • Composite pic of Prima and her father with stage 4 cancer and the father in the garden on the phone
    My Father's Journey With Stage 4 Cancer
    Prima shares the challenges of caring for her father who was diagnosed with stage 4 cancer of the ureter and kidney, the effect that COVID had on the treatment choices, the pain he went through, the palliative care choices and the emotional turmoil of it all. I vividily remember that afternoon when he implored, “Take me to the doctor, I’m uncomfortable. I’m in pain and want to sleep”. My husband gave him his morphine pill and told him we would go see his doctor soon. He kept saying, he wanted…
  • Person with haemophilia, Vinay Nair in a brown kurta with his wife in a red and gold sari holding baby girl in green and white dress in arms
    बच्चे मेरे बेटे के साथ खेलने को तैयार नहीं थे क्योंकि उसकी मांसपेशियों में ब्लीडिंग होती थी
    32 साल के विनय नायर को हीमोफिलिया है और उनका बचपन, बड़े पैमाने में मध्यम या गंभीर रक्तस्राव के एपिसोड वाला रहा था। उनकी माँ, इंदिरा, अपने बेटे के सकारात्मक रवैये और दृढ़ निश्चय की तारीफ करती हैं और कहती हैं कि इस की वजह से वह अपनी स्वास्थ्य चुनौतियों का असाधारण रूप से सामना कर पाया है। जब विनय 6 महीने का था, तो उसके हाथों और पैरों पर अजीब तरह के नीले-नीले निशान उभरने शुरू हो गए थे, उसी प्रकार के नीले-नीले निशान जो तब होते हैं जब आपको चोट लगी होती है या कोई चुटकी भरता है। ये हालांकि छोटे आकार के…
  • दवा सुरक्षित और सही तरीके से लेने के लिए टिप्स
    दवा लेने में गल्तियों के कारण मृत्यु होने के केस की प्रतिशत काफी ऊंची है, और इन दुर्भाग्यपूर्ण मौतों से बचा जा सकता है। इस के लिए यह निश्चित करना जरूरी है कि दवाओं के प्रशासन को जितना संभव हो सके उतना सुरक्षित बनाया जाए ताकि उचित स्वास्थ्य देखभाल हो और जानलेवा जटिलताओं और मौत के खतरे से बचे रहें। इस लेख में देखें सुरक्षित दवा प्रबंधन के लिए आसान दिशानिर्देशों और सर्वोत्तम प्रथाओं का एक संकलन। दवा के उपयोग संबंधी दिशानिर्देश: दवा लेने के सुरक्षित तरीके  आप जो दवाएं ले रहे हैं, उन के बारे…
  • Rehabilitation Is Essential For Regaining Independence
    Spinal cord injury, stroke and osteoporosis are common causes of disability. The Chandigarh Spinal Rehab centre offers holistic rehabilitation to empower patients and enable independent living. For what conditions or disabilities does the Centre have Rehabilitation facilities? Spinal Cord Injury Traumatic brain injury Stroke Multiple Sclerosis Cerebral Palsy Children with special needs Geriatric Rehabilitation Post Joint Replacement Therapy Spina Bfida Pain Management Other Neuro Conditions…
  • 2 elderly women at a kitchen table
    घर को बुजुर्गों के अनुकूल कैसे बनाएं
    रिहैब (पुनर्वास) विशेषज्ञा लक्ष्मी गोपालकृष्णन घर में छोटे बदलाव के कुछ ऐसे सुझाव देती हैं जिन से बुजुर्गों को अपने कार्यों में आसानी हो सकती है और उनके जीवन की गुणवत्ता में महत्वपूर्ण सुधार संभव है। मैं 15 साल से अधिक समय से रिहैब में काम कर रही हूँ और व्यक्तिगत रूप से 80 साल से अधिक उम्र के चार बुजुर्गों की देखभालकर्ता भी रही हूँ। उनके दैनिक जीवन की गतिविधियों को कैसे बदलें, इस पर सोचने की मुझे बार-बार आवश्यकता होती है। मेरी कोशिश यही रही है कि बुजुर्ग यथासंभव स्वतंत्र रहें और उनका आत्मसम्मान…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

Latest Communities