Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Importance of Emotional Memory and Associations in Dementia
    Neha Sinha, a clinical psychologist by profession talks about how emotional connect is very important for people with dementia. Even if they have loss of actual memory, they remain receptive to emotions as well as to the body language of people around them. Each individual is unique and so are his or her experiences, memories and feelings. There is a general apathy towards dementia especially when it comes to remembering the person they are, the rich history they hold. People with dementia…
  • Holistic Self-Care for Lasting Happiness and Optimal Well-being
    There are no short cuts to optimal well-being. Holistic Self-Care requires that we focus on all five aspects of our life.    To achieve lasting happiness and optimal well-being – towards personal fulfillment, transformation and self-realiszation, one needs to devote time on a regular basis (preferably daily) to engage in the renewal of all aspects of our lives – physical, intellectual, emotional, social and spiritual. It means taking care of ourselves, holistically…
  • Are We as a Community Failing Special Needs Families?
    The recent incident of a mother in Bengaluru causing the death of her disabled child has stirred many reactions and caused a lot of introspection in families with disabled children. But what of the larger community? Did we give it a moment? What can we do? What should we do? During a conversation in a little cafe in Chennai with some of the early contributors of PatientsEngage, people associated with VidyaSagar, an organisation for children and adults with special needs, the commonly held…
  • I am Bipolar. Will You Marry Me?
    Dr Avinash Joshi, a psychiatrist, has set up a marriage bureau for people with psychiatric and physical disabilities in the hope of providing them not just a soul mate, but also helping build a relationship on trust . You have started a marriage bureau for people with psychiatric and physical disabilities, the first of its kind in India. What spurred you to set up this unique initiative? I have set up a matchmaking site called, manomarriage.com for people with psychiatric and physical…
  • Late-stage Dementia Home Care: Challenges and Practical Suggestions for Families
    Swapna Kishore sheds light on the rarely talked about challenges of home care for late stage dementia, especially due to low and infrequent communication and multiple medical problems.  She brings together her interviews with Dr. Soumya Hegde, a Bangalore-based Consultant Geriatric Psychiatrist who provides practical solutions. Most discussions around dementia are about memory problems, confusion, wandering, withdrawal, aggression, etc. We rarely talk about later stages, when the loved one…
  • A Friendship Haven for Parents and their Children with Special Needs
    Mitr is a vibrant community centre in Chennai for parents who have children with special needs, where you can bond with like-minded families, sit back and relax at the Special Needs Mitr Cafe, or engage in an exciting range of vocational classes and activities held for both parents and kids. Parents of children with special needs may feel isolated and disheartened coping with medical, financial, educational and emotional issues. Mitr is a centre in Chennai for serving parents of children who…
  • How to Prevent Caregiver Burnout in Dementia Care
    Neha Sinha, a clinical psychologist by training shares her views on caregiving in Dementia, the effects of longtime caregiving on a person, how to keep his balance in tact and also avoid an early burnout.  ‘Caregiving often calls us to lean into love we didn’t know possible’ ~ Tia Walker Caregiving in Dementia Caring for people with dementia is in many ways more challenging than looking after somebody with a physical condition. This is because when you look after someone with dementia…
  • Image: Smriti with her family
    How to remain Motivated and Energised as a Caregiver
    No matter how stressful your caregiving responsibilities,  Smriti Sawhney, an experienced Clinical Psychologist, recommends some things that you can do to ease your stress levels, regain your balance, and start to feel positive and hopeful again.  Especially targeted towards Elderly Caregivers. My mom has not been keeping well for some years now. She has osteoarthritis which is gradually becoming more disabling for her. She is one of the most courageous women I have met who has braved…
  • Caring for a Son with Autism and Schizophrenia
    It can be formidable task to raise a child with either autism or schizophrenia. But when the two come together, the challenge escalates. Deepak Srivastava, recounts how his wife grapples with his 22-year-old son, Soumitra’s impulsive aggression. Our second son, Soumitra, was born autistic. We did not realize it initially; it was only when his growth milestones like walking or talking were not being met that we sensed something wrong. His behaviour pattern too was odd. He would stare awkwardly…
  • A nurse assisting a female bed ridden patient
    7 Common Health Risks of a Bedridden Patient
    A bedridden patient becomes vulnerable to various health complications like painful bed sores, circulation and respiratory problems, depression and contractures, due to lack of activity for long periods. Usha Ravi suggests steps to ensure proper nursing and caring for your loved one confined to the bed. There are a host of challenges which arise if one is confined to bed because of sickness, disability or frail age. The burden is felt not only by the individual but also by the carers.  It…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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