Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • A family with three generations sitting around a dining table
    बुजुर्गों के लिए भोजन में संशोधन
    जब आपके प्रियजनों की उम्र बढ़ती है, तो उनके लिए सही आहार का प्रबंध करना अधिक ज़रूरी हो जाता है, क्योंकि अधिकाँश केस में अनुचित भोजन लेना अधिक तनाव और परेशानी का कारण बनता है। इस लेख में डॉ। भुवनेश्वरी अपने माता-पिता की प्राथमिक देखभालकर्ता होने के अनुभवों के आधार पर कुछ सरल सुझाव दे रही हैं। बुजुर्गों के आहार पर ध्यान देना बहुत जरूरी है क्योंकि आहार के पैटर्न को बदलने से कुछ ऐसी सामान्य समस्याओं में सुधार हो सकता है जो कई बुजुर्गों में पायी जाती हैं. हमें इस पहलू पर अपनी भारतीय सन्दर्भ (जैसे कि…
  • How To Handle Negative Emotions as a Caregiver
    Samiksha Sivan, integrates her experience at PDMDS to talk about some of the negative emotions felt by caregivers of persons with Parkinsons and the how they can cope with the negative emotions like anger, resentment, guilt and anxiety. Dealing with a chronic, progressive condition like Parkinson’s disease (PD) can take a significant toll on a person, be it a caregiver or a patient. Being able to cope with everyday tasks at home and work as well as the stresses of caregiving for a Person with…
  • No Way to Go…Mom!
    Divya Gaur from Delhi was devastated when she lost her mother to brain tumour and could not attend the last rites in Bhopal due to the stringent Covid lockdown. Here she pens down her life changing feelings. No matter how we prepare ourselves, losing a loved one is never easy. One is never ever prepared to let a parent go. When I lost my father I was away. I reached only 3 hours after he went. I could not say goodbye, not to him at least. Though it happens with many people who don’t live in the…
  • Risk of polypharmacy in the elderly
    Risks Of Polypharmacy In The Elderly
    Polypharmacy in the elderly is a growing concern and can even cause harm to the patient. Dr. Anita Kumar explains the risks associated with polypharmacy, the symptoms to watch out for and the way forward for patients and their caregivers.     Polypharmacy is an issue that requires addressing because people unknowingly follow polypharmacy and do not recognize the potential harm it may cause. In recent times, polypharmacy has emerged as a public health issue and a concern globally…
  • An elderly person listening to music and exercising
    Let Us Reclaim Active Ageing
    2020 changed the independence and empowerment of older adults to a feeling of heightened vulnerability. But does it really have to be like that? Can older persons reclaim the feeling of being in control? Here is a practical list of what to do and avoid. The Covid-19 pandemic has reduced everyone in their 60s and above to being termed ‘Vulnerable Elders’, with its associated feelings of fear and isolation from even friends and relatives. But it was barely six months ago that the 60s were termed…
  • Upcoming Webinar: Pandemic Stress and Burnout - Relearning Ways To Cope
    Join us as we speak with Hvovi Bhagwagar, Clinical Psychologist and Trauma Therapist on how covid-19 pandemic is causing a lot of stress and tension in people. Previously defined coping and self care mechanisms are not available or not working. So what we can do to find strategies to cope Topic Pandemic Stress and Burnout: Relearning How To Cope When: 5th September, 2020  3:30pm IST, 6pm SGT    To join the webinar, click on the link below https://us02web.zoom.us/j/…
  • The author Dr Kalyani, a heart patient in a red sari and smiling
    कोरोना हो या कोरोनरी (हार्ट अटैक) - खुद को स्वस्थ बनाए रखें
    डॉ। कल्याणी नित्यानंदन, एक 85 वर्षीय कार्डियोलॉजिस्ट, अकेले रहती हैं। इस लेख में वे हमारे साथ साझा करती हैं कि कैसे कार्डियक इमरजेंसी के लिए खुद को तैयार करें और कोविड -19 लॉकडाउन के दौरान खुद को खुश और उत्साहित कैसे रखें। जब तक मेरी माँ वरिष्ठ नागरिक बनने की उम्र तक पहुँचीं, तब तक वे विधवा बन चुकी थीं और वे अपना कोई घर नहीं चला रही थीं। उनके दो बच्चे चेन्नई में ही थे और दो भारत में अन्य जगह थे। वे अपना समय उन के बीच विभाजित कर रही थीं। हर घर में उन्होंने अपने कुछ जोड़ी कपड़े छोड़े हुए थे, और साथ…
  • किस तरह से बढ़ती आयु आंत और स्वास्थ्य को प्रभावित करती है
    हम अकसर सुनते हैं कि बुजुर्ग लोगों को कब्ज, एसिड रिफ्लक्स (अम्ल प्रतिवाह), निगलने में कठिनाई, अल्सर इत्यादि जैसी पाचन संबंधी समस्याओं से जूझना पड़ता है। डॉ। देवेंद्र देसाई, हिंदुजा अस्पताल, खार (मुंबई) में गैस्ट्रोएंटरोलॉजी के सलाहकार, हैं - इस लेख में वे उम्र बढ़ने का आंत के स्वास्थ्य पर क्या असर पड़ता है, इस पर चर्चा कर रहे हैं। प्रचलित परिभाषा के अनुसार अगर किसी व्यक्ति की उम्र 65 वर्ष या अधिक हो तो हम उन्हें बुज़ुर्ग (सीनियर/ वरिष्ठ ) मानते हैं। विश्व की आबादी में बुजुर्गों का अनुपात बढ़ रहा…
  • Staying Afloat During Corona or Coronary Crisis
    Dr Kalyani Nityanandan, 85-year-old cardiologist, who lives independently, shares with us some valuable tips on how to prepare yourself for cardiac emergency and keep spirits up during the Covid-19 lockdown. By the time my mother was a senior citizen she was a widow with no house to run of her own. Two of her children were local in Chennai and the other two were elsewhere in India. She split her time between them. At each house she left a change of clothes, a dinner plate and curved drinking…
  • How To prepare for Medical Emergency at home
    घर पर मेडिकल इमरजेंसी के लिए कैसे तैयार रहें?
    हम अक्सर मेडिकल इमरजेंसी के लिए तैयार नहीं होते हैं। बेहतर होगा कि हम पहले से अपनी सूची बनाएं और अपनी बनाई हुई सूची की समय-समय पर समीक्षा करें। यहां कुछ दिशानिर्देश और संकेत दिए गए हैं जिन पर आपको विचार करना चाहिए। जब घर में कोई प्रियजन अचानक या गंभीर रूप से बीमार पड़ जाता है, या कोई दुर्घटना हो जाती है, तो घबरा जाना स्वाभाविक है। परिवार के सदस्य ऐसे में स्थिति स्वीकार नहीं कर पाते या समझ नहीं पाते कि क्या करें।  वे उम्मीद करने लगते हैं कि कुछ देर रुकें तो समस्या खुदबखुद ठीक हो…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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