Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Healing the mind after a stroke
    How stroke affects understanding and behaviour and how to regain lost ground. By Porrselvi A.P. a cognitive and psychosocial interventions specialist What happens in a stroke Stroke or Cerebro Vascular Accident (CVA) happens when there is either a block in the supply of blood to an area of the brain or when there is bleeding within the brain tissue. When this happens, areas of the brain do not receive sufficient amount of blood and nutrients they require and are damaged.…
  • The Art of Caregiving - The 4 Step Guide to Better Caregiving
    As a family caregiver of a loved one who is ill, you are juggling multiple jobs. You are nurse, counsellor, dietitian, secretary, friend and emotional anchor – all rolled into one.  However sincere you are about your responsibilities, the stress can mount up quickly and cascade onto the lives of others in the household. How do you keep your patient well and happy and keep yourself and your family calm and happy, too?  The Caregiver’s Guidebook brings you ideas to help…
  • Management of Dementia
    Managing the condition Dementia generally gets worse with age but the development of symptoms can often be slowed with drugs or other treatments. Treatment of dementia usually aims to improve memory and concentration, reduce psychiatric problems, and improve the quality of life for both the patient and their family. Read here for various treatment options: http://www.patientsengage.com/conditions/dementia/treatments Improving quality of life: There are several psychological techniques to…
  • 10 Tips on Communicating with a Patient with Dementia
    Ekta Hattangady became her mother’s primary caregiver when she was 13. Her mother had Early Onset Alzheimer’s at age 43. Hindsight is always 20-20. I was an Alzheimer’s caregiver between 18-15 years ago. The world was a different place then. The internet was not as big as it is today and nor was Alzheimer’s a household name. Not in India, anyway. As time has passed, my work with families and people with dementia has increased and my level of knowledge about the disease has grown…
  • Alzheimer’s – a most wretched disease
    Balbir Singh Rawat, now 87, looked after his wife who had Alzheimer’s Disease. He talks of the challenges, learnings and what we, as a society, need to do to tackle this scourge of the elderly. My wife’s troubles started sometime in 2005 when she was hardly 70 yrs old, the prime age of a grandma. The disease crept in so slowly that none noticed the subtle changes in her behaviour by way of reactions to external stimuli.  When we did notice, it was too late to avail of any chance of…
  • Management of Alzheimer’s Disease
    How can you keep the patient well: Creating a safe and supportive environment: You may need to modify the home depending on the needs of the patient. This may include locking doors (if the patient is prone to wandering), installing gates in front of stairs to prevent falls, removing rugs or other objects that one could trip over, use of bright lighting or labelling the kitchen or the bathroom to reduce confusion for the patient.  Regular exercise: This has known benefits for heart health…
  • A good death
    You’ve been asked to take a terminally ill loved one home. Are you ready for this? Dr. R. Akhileswaran, Medical Director, HCA Hospice Care, Singapore tells you how to make the last days as comfortable as possible in this interview with PatientsEngage.  Plus, talking about death and other questions we are too afraid to ask. 1.   Patients in their last stage of life are often advised by doctors to take the patient home but family members are often afraid to do so. …
  • Caregiver Training Video - Touch Therapy
    This is a caregiver training video resource from HCA Hospice Care, Singapore.  It shows how you can gently massage to soothe an elderly person or a patient.   
  • Back of a person carrying a basket of fruits and vegetables in the shopping aisle
    Tips for Caring for a GERD Patient
    Caring for a GERD Patient Heartburn is the most common symptom of this condition, although some GERD sufferers don't feel heartburn but instead experience chest pains and difficulty swallowing. Fortunately, with proper treatment and monitoring of the patient, the onset of more serious conditions can be prevented. Use the following suggestions to help comfort your family member or patient and ease the painful symptoms of GERD. Follow Up  After the initial GERD diagnosis, a follow-up doctor'…
  • 13 Steps To Better Sleep
    By family practitioner and paediatrician Dr Gita Mathai. How much sleep we need, the best time to go to bed, effects of sleep deprivation and how to improve your sleep practice.  How much sleep do we really need? We actually sleep away one third of our lifetimes. In infancy, a baby may sleep anywhere from 14-17 hours a day. Their sleep requirements are not controlled by outside forces like light, sound or work. So, babies sleep as much as their body needs. As age increases, the number of…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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