Namitha A Kumar, living with thalassemia intermedia, points out that thalassemia is more burdensome for girls and women because of additional hormonal disruptions, chronic pain and issues like amenorrhea, hypogonadism, osteopenia and osteoporosis.…
An inspiring and heart rending account of a 58-year-old man's ongoing fitness journey, despite experiencing monumental setbacks such as a near fatal accident and the loss of his teenage son in successive years. GB Dutt, former research scientist…
Annie Verghese, 53 has been fighting Sjogren’s Syndrome for 10 years now, along with a host of other issues. She talks about her difficult health journey, being a patient and a caregiver and the effect of her health on her life.
EARLY HISTORY
I was…
Devika Phukan, currently a professor in Guwahati, not only battled Sjogren’s but also the trauma caused due to lack of understanding of her condition by medical practitioners (in far flung areas) and the social taboos and ostracization by loved ones…
Veena Sheel Bhatnagar, 80, a former lecturer of Economics, has been a non-stop caregiver for over five decades to her family members, the last being her late husband Vijay Sheel Bhatnagar who had Parkinson’s Disease. Here she recounts her long…
Dr Kavery Nambisan, eminent surgeon and novelist, in her latest book ‘A Luxury Called Health’ writes about her compelling medical experiences in rural Indian communities and talks of the key tenets of doctor-patient relationship. She dwells on…
Rekha Khanduri, 73 from Mumbai has diabetes for a while and lost her eyesight due to diabetic retinopathy, a diabetes related complication. She talks about how she has since learnt to live with such an irreparable loss.
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The UN Convention on the Rights of Persons with Disabilities (UN CRPD) calls for “full and effective participation and inclusion in society”. In line with this, the campaign for World Down Syndrome Day 2022 focusses on understanding what "Inclusion…
Despite a family history of Ankylosing Spondylitis, it took 2 years for Amit Choudhari to get a diagnosis of Ankylosing Spondylitis (AS). Luckily despite experiencing pain and attacks, the treatment and medication prevented joint fusions. He talks…
