Pallavi Mehta, 42 talks about the trials and triumphs of taking care of her 11 year old son Divyam who has Fragile X Syndrome, a genetic condition.
Please tell us a bit about your son’s condition
My son Divyam is 11 years old and is suffering from…
Tahira Tahir from Pune is the Regional Coordinator of Cure SMA Foundation of India and a passionate parent advocate for access to the treatment options for Spinal Muscular Atrophy Type 1, despite losing her son to this rare disease.
It’s been less…
In a free wheeling live conversation, PatientsEngage spoke with Pranav Bakhshy, India's model on the autism spectrum and his mother Anupama on the journey to his goal. Great parenting insights. Now available as a video recording.
It all started in…
At 20, Ishita Biswas, a Lupus patient, has been through a lot of pain and medication. She has also had to battle the ignorance of people around her. But she has learnt to come to terms with her condition and even wants to reach out to others in…
Sharad Kumar Tekalkote, who lost his ability to speak after a severe stroke, had to undergo intense rehabilitation and speech therapy exercises, to resume normalcy. Today, he is a motivational speaker. Here, he shares ten tips on how to live a full…
An insightful panel discussion with persons with Parkinson's Disease and the Head of therapy and research at PDMDS on the early stages of Parkinson;s Disease with in our ‘Living Better’ series. In partnership with PDMDS.
This session focussed how…
Ameet Bhadrapur, 30 from Bengaluru suffers from 70 per cent hearing loss. But despite his lack of confidence over interaction with people, he is a working professional.
I am partially hearing impaired with 70% hearing loss. I can hear some low…
Jassu Sekhon. 40 from Mumbai delivered a pre-term baby of 1.1Kg at 30 weeks. She shares her experience of what her baby had to go through and what she as a mother did to make her prematurely born baby stronger.
Please tell us about your delivery and…
Rohan Kapoor*, 42 from Delhi has been dealing with Obstructive Sleep Apnea disorder for last fifteen years, and uses a CPAP machine to get undisturbed sleep.
Please tell us a bit about your condition
I have been living with Obstructive Sleep Apnea (…
