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  • Stem cell transplant is feasible for leukemia and more
    Texan Chuck Dandridge became the first adult in the U.S. to receive a newly modified stem cell transplant that uses genetically engineered blood cells from a family member. This was announced by researchers at UT Southwestern Medical Center’s Harold C. Simmons Comprehensive Cancer Center where the procedure was performed. PatientsEngage interviewed Dr. Madhuri Vusirikala, Director of UT Southwestern’s National Marrow Donor Program, part of the stem cell transplant program.    1.…
  • How I Live with My Thalassaemia
    World Thalassaemia Day 2016 Thirty-year-old Imran, born with Thalassaemia Major, does not see himself as a tragic victim at the mercy of his illness, but leads a high-spirited life with friends, food and music and a job at a leading software firm in Mumbai. My name is Imran Mohammad Ali. I was born with Thalassaemia Major, an inherited blood disorder which causes the body to produce abnormal haemoglobin red blood cells. I need to get blood transfusion regularly to keep me…
  • Stock image of blood drop against a red background and text overlay on blue strip How to prevent thalassemia
    How to prevent Thalassaemia
    A simple health check up for Thalassaemia carrier status before starting a family can save your child from becoming a patient of Thalassaemia Major, unending cycle of injections, suffering and misery, says haematologist Dr Mamta Manglani. What is Thalassaemia? Thalassemia syndromes are a group of genetic haemoglobin disorders. The haemoglobin molecule is abnormal and therefore, does not allow the red blood cell to survive for its life span, leading to anemia in these…
  • Multiple Sclerosis Society of India Chennai Chapter.
    The Multiple Sclerosis Society of India was established in 1985 at Mumbai. Mrs. Rehmat Fazelboy, a social worker and Mr.Tobaccowalla (Chairman, Voltas Ltd, Mumbai) are the founding members. Presently there are 9 chapters with 2 support groups.  The Chennai Chapter was inaugurated on September 1997. Our patron doctor is Prof.Dr.G.Arjundas. Mrs.Ann Gonsalvez is the Chairperson of the Chennai Chapter. We have about 210 patients on our rolls in Chennai.  Our Vision: Create awareness of…
  • 6 Key Facts on Zika Virus
    1. What is Zika virus disease and what are the symptoms? Zika is a disease caused by Zika virus that is spread to people primarily through the bite of an infected Aedes species mosquito. The most common symptoms of Zika are fever, rash, joint pain, and conjunctivitis (red eyes). The illness is usually mild with symptoms lasting for several days to a week. Zika virus is not a new virus and has existed in South East Asia, Africa and the Pacific Islands. 2. How is Zika transmitted? Zika is…
  • Graves' Disease
    What is Graves' disease? Graves' disease is an autoimmune disorder that causes the thyroid gland to become overactive. This is one kind of hyperthyroidism. An autoimmune disorder causes the body’s immune system to mistakenly attack the body’s own cells instead of protecting them from outside invaders. In Graves’ disease, the body’s immune system secretes immunoglobulins (autoantibodies) against the thyroid gland. These immunoglobulins irritate the thyroid gland and make it produce more thyroid…
  • Graves' Disease Management
    Managing Graves’ disease: The most important thing is to receive the necessary medical care. After you and your doctor have decided on a course of action, there are some things you can do that will help you cope with the condition and support your body during its healing process. Get regular exercise: Exercise in general will help you feel better and improve your muscle tone and cardiovascular system. Brittle bones can occur with Graves' disease and weight-bearing exercises help maintain bone…
  • Graves' Disease Treatment
    Treatment of Graves' Disease is aimed at controlling your overactive thyroid. Medicines called beta-blockers are often used to treat symptoms of rapid heart rate, sweating, and anxiety until the hyperthyroidism is controlled. Hyperthyroidism is treated with one or more of the following: Anti-thyroid medications Radioactive iodine Surgery If you have had radioactive iodine treatment or surgery, you will need to take replacement thyroid hormones for the rest of your life. This is because these…
  • Causes and Risk Factors of Graves' Disease
    What causes Graves' disease? The precise cause of Grave's disease is still unknown. The following risk factors are linked to a higher probability of developing Graves' disease: Genetics (people with a family history of Graves' disease are more likely to develop it). Gender Stress Pregnancy Infection (Bacterial or viral)
  • Graves' Disease Signs and Symptoms
    What are the symptoms of Graves’ disease? The early symptoms of Graves’ disease include: Weight loss (despite increased appetite) Anxiety, irritability, difficulty sleeping (insomnia) Heat intolerance, sweating Shortness of breath, difficulty breathing Increased stool frequency (with or without diarrhoea) Irregular menstrual periods in women Goiter Prominent, bulging eyes If Graves’ disease goes untreated, physical signs and symptoms may develop: Goiter: A goiter is an enlarged thyroid gland…
This is an autoimmune disease. Please add this also.
I have a auto immune disease known as Phemphegus vulgaris
Scientists have successfully treated a patient with disfiguring sarcoidosis, a chronic disease that can affect multiple organs, with tofacitinib. a drug approved for rheumatoid arthritis. Sarcoidosis is an inflammatory…
Research shows that Iron deficiency, measured through the size variation of red blood cells, is correlated with increased fatigue in systemic lupus erythematosus (SLE) patients,. The association seems to be independent of age, ethnicity,…
Chandra Mohan, a Houston based Indian origin professor and his colleagues have received a private grant of USD 600,000 for their brilliant and pathbreaking research to develop a new…
what meds are good I'm looking into armour cause the synthetic ones don't do anything for me? also stem cell trails in the us, do anyone knows any?
diet for health
arthritis friendly kitchen ebook download
Hello Friends I am Pankaj Sethi Co-Founder of Y.T.A (Youth Thalassemic Alliance), I would like to Thanks to the team of Patient Engage to support us and give this platform, where we can be connected globally with all patients, parents, doctors and…
There is an increase in diagnosis of auto immune conditions in India -  Rheumatoid arthritis, Ankylosing spondylitis, Lupus, Thyroiditis (Hashimoto’s disease), Inflammatory bowel disease There was an article in…
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