This Community will address questions and discussions on all forms of Cancer. We will support each other - patients and caregivers in their journey
Mrs Hsu*, age 47 has been a caregiver for 12 years to her husband Mr. Hsu, diagnosed with rare neuroendocrine cancer. Read how they both took control of his cancer journey and became a firm believer that with good knowledge and support, we can help a patient survive more than 4-6 months. I am caregiver to my husband Henry*. Some 12 years ago, he was diagnosed with a rare cancer, a pancreatic gastrinoma neuroendocrine tumour (NET). He was 50 at that time. His symptoms started with severe…
PatientsEngage supports a Journey of Hope, a seminar highlighting new directions in Cancer Care. Find out how new therapy areas like nuclear medicine therapy and targeted radiotherapy are useful for treating prostate, neuroendocrine and potentially other cancers. Also learn about the role of patient groups in supporting patient and caregiver journeys. Join us on Sat 5 Nov at Academia Bldg, Singapore General Hospital Campus, or via YouTube Register here to get the links: https://…
Breast Cancer Survivor of more than 25 years, Farida Rizwan talks about her journey of living beyond breast cancer. How she strove for financial independence and navigated the challenges of parenting of two young children including one with Cerebral Palsy and Intellectual Disability and what kept her going. "I wanted Quantity of Life rather than Quality. I had to be there for my children" Farida Rizwan is a senior curriculum developer for a Learning app, Founder & Administrator of a…
Ramendra Kumar has fought colon cancer with all its adversities, and continues to do so. His story, together with his daughter’s version, puts together the rollercoaster ride that he and family went through the last few months. He shares what keeps him going. Read the first part of his cancer journey here. Could you take us through the past few months which have been very difficult for you? I am a cancer warrior having battled 4 septic shocks, 4 major surgeries, 4 rounds of radiation, 4…
When a patient is diagnosed with cancer, they and their family caregivers need to suddenly learn a new vocabulary of terms. It can be overwhelming to look at various reports and make sense of what it means. PatientsEngage has put together a glossary of various cancer related terms. Bookmark this for easy reference. If you don't find the term you are looking for leave a comment below or send us a note through contact us and we will update the content. …
Author and writer Usha Jesudasan illustrates, with a parable of Chicken Little who believes the world is coming to an end, how illness related anxiety can get difficult. Here she offers some tried and tested tips that have worked for her to come out of this way of thinking. A visiting friend sneezed and coughed around me. No, he wasn’t wearing a mask. I was a bit cross. I had kept myself safe through the two Covid waves and strictly followed safety measures. I live alone, and…
Lung Cancer is often diagnosed at an advanced stage. This has a significant impact on the patient and their family. ALK+ Lung Cancer Survivor Shiba Suresh from Kochi, Kerala joins us on 14th August 3pm IST to talk about her journey of diagnosis and navigating metastatic lung cancer, the challenges she faces and what helps her stay strong. Co-moderated by Urvi Sabnis, cancer survivor and caregiver and Aparna Mittal, founder PatientsEngage On Zoom Webinar ID: 814 7175 5331 Passcode: 458173 Or you…
When Mr. Sudhir Waghmare, 58, PhD, entrepreneur and innovator, was diagnosed with esophageal cancer he took it in his stride quite stolidly. What broke him down was the loss during chemotherapy of his luscious hair which he dearly cherished. He shares his personal narrative. My background I am an entrepreneur and innovator of a company engaged in manufacturing new born life saving devices since the last 31 years. I have a PhD degree in Neonatal Intensive care equipment. I am married to…
मुंबई की 56 वर्षीय रश्मि सचदे को 15 साल पहले गैस्ट्रोइंटेस्टाइनल स्ट्रोमल ट्यूमर (जीआईएसटी) का निदान मिला था। वे कैंसर को एक पेइंग गेस्ट की तरह मानती हैं और अपनी कैंसर यात्रा को अपनी आस्था और हँसते रहने की प्रवृत्ति के सहारे संभालती हैं। 2004 की बात है।, मैंने देखा कि मेरा पेट फूलने लगा था और जब मैं सोने के लिए लेटती तो विशेष रूप से एक तरफ बहुत सख्त लगता। मुझे उस समय फूले हुए पेट के अलावा कोई अन्य स्वास्थ्य संबंधी शिकायत नहीं थी – पर पेट इतना फूला रहता कि लोग पूछने लगे कि क्या मैं गर्भवती हूं।…
Uday Kerwar, survivor of stage 4 bladder cancer and currently Chairman of Ostomy Association of India (OAI) talks about his journey with bladder cancer, urostomy bags, its many challenges and plenty of adjustments before it becomes a part of you. Please tell us a little about yourself. I am 62 and retired. Since 2016 I am continuously associated with Ostomy Association of India (OAI), a Charitable Trust providing rehabilitative support to people who have undergone Ostomy (life-saving…
Hello,
My name is Hiba Siddiqui and I am currently working as a Senior Psycho-oncologist at Max
Institute of Cancer Care at Max Healthcare (Delhi-NCR, India). I have been practicing as a
psychologist, with a specialization in Psycho-oncology for 12…
My name is Sanjeev k & requesting you to review & suggest the Biospy report of my Mother who has lung cancer
Your expertise would be a great benefit for us to get the best suitable treatment for my mother.
1. Chemotharapy
2. Immuniotherapy
3…
Hello! My name is Sarayu Narayan, and I am a student of Master's of Applied Psychology (Clinical and Counselling Practice) at the Tata Institute of Social Sciences, Mumbai. As part of my curriculum, I am conducting a study on Resilience, Body image…
Losing a mother is the deepest sorrows a heart can know. Nothing on this earth can ever replace the love and care of a parent. It was that fateful day 8th Nov,2020 that within minutes our lives were shattered and everything changed forever. Mom was…
82 year old elderly woman diagnosed with advanced lung cancer. Lives with elderly husband in Bangalore. Need for good nurse and home set up for palliative care. Looking for options other than Portea.
Resources suggested by Pallium India…
Background:
Although advancements in systemic therapy have improved the outlook for pancreatic adenocarcinoma, it is not known if patients get access to these therapies. We aimed to examine the patterns and factors associated with access to…
Here are a few things wrong with a mainstream media article like this
https://health.economictimes.indiatimes.com/news/diagnostics/can-neem-h…
It confuses prevention with cure
It mentions various studies with no link to any study
Is neem a…
What can the doctor, a friend or a family member say to help the cancer patient feel better?
What would you like to hear?
This blog on the cancer research UK site addresses the concern around sugar and cancer.
Does sugar cause cancer?
Does sugar feed cancer cells, making them grow more aggressively?
The origins of this linkage and the role of a scientist called…
An extremely heart warming story on two childhood cancer survivors falling in love and getting married
https://www.nytimes.com/2018/09/07/fashion/weddings/love-not-lost-two-c…
Latest Communities
A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are…-
A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are…
-
A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are…
