Diversity and Disability

  • Diversity and Disability
    Diversity and Disability
    75 member(s)

    Celebrate Life; Celebrate Diversity

    We welcome you to the community page "Celebrating Disability", an online discussion forum where we introduce, discuss, debate as well as campaign and advocate various concepts, perspectives, paradigm shift, models and legal provisions that concern and impact persons with disabilities. The title Celebrating Disability emerges from one of the ideologies of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) to celebrate human diversity and that Disability is a part of human diversity. 

    This online community page aims at demystifying the stigma associated with disability and reinforces the paradigm shift experienced by persons with disabilities from the charity and medical model to the social and developmental model, a holistic development of the society where persons with disabilities are an integral and contributing part and not apart. It will also focus on discussions and debates with regard to legal frameworks that impact persons with disabilities rightfully as well as adversely. The context and connect of UNCRPD with most terminologies & concepts to be discussed in the forum goes without saying. The perspectives of different professionals and their work with persons with disabilities are to be dealt as well. Any requirement for a larger campaign or advocacy may also be analysed in due course of a discussion. 

    This community page "Diversity and Disability" will provide motivational stories and achievements by persons with disabilities on an equal  basis with others, articles by expert persons with disabilities as well as professionals without disabilities on their work and perspective, the gaps in the legal framework and way forward to harmonise the same, strategies/models to implement UNCRPD at every level and a lot more, by way of public discussions, debates and other creative methodology on each article/story. In addition a webinar will be organised every quarterly to discuss the topic of the term. The topics may widely range from different provisions of the Rights of Persons with Disabilities and its connect with UNCRPD & vice versa, evolving concepts on disability, innovations pertaining to products, designs, services, infrastructure, information, communication and technology etc. 

    Supported by Vidya Sagar, Chennai

     

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  • Evolving Personalities of Persons with Disabilities: Webinar Tomorrow
    Join us tomorrow Friday 30th August 2019 for an insightful session where we discuss the role of self advocacy and self determination among persons with disabilities. How did they push the barriers to become independent and create possibilities? Topic People tend to develop their personalities from the different things that they get to know and do in their lives, which may also have an impact from time to time. People develop their personalities at all ages and it is a constant shift for…
  • Jal Mahal in the backdrop of the Aravalli mountain range
    He Frames Photographs Using Sound
    Meet Pranav Lal, a self-taught programmer and an avid photographer with congenital blindness, who uses the vOICe, a computer software that works on the system of a vision to sound map, to commune with nature and sharing that joy with the rest of the world. Could you give us a little background about yourself? I am Pranav Lal. I am congenitally blind due to retinopathy of prematurity. Technology has played a big role in getting me where I am today. I keep exploring and experimenting a lot. I am…
  • "Believe In Your Child"
    In our conversation with Anupama Bakhshy, mother of Pranav Bakhshy, a budding model and a young man on the autism spectrum, we gleaned a few insightful learnings based on her experience. Key take aways for parents of children with special needs, particularly Autism: 1. Keep the child or the young adult at the centre and not his/her disability. 2. Believe in the child. Just because its not been done before, it does not mean it can't be done 3. Follow the child. Align to the child's inclinations…
  • A young man in a black blazer and blue shirt
    "Lack Of Accessibility At The Ground Level Is The Most Challenging Part"
    Zoyeb Zia, now an assistant professor of Zoology, has a rare condition called Ataxia. Zoyeb talks here about how he coped with the condition after he was diagnosed with Ataxia at the age of 16. Ataxia is a neurological disorder, which means ‘without order’ in Greek, affects a person’s balance, and it causes poor coordination of the limbs, poor gait movement, slurs the speech and affects the eye movement etc. Ataxia is classified as a rare disease.There are many variants of this disorder,…
  • A picture of a tree taken by a person with visual impairment
    Photography For Therapy And Self Esteem
    On World Photography Day, we share how photography has provided therapeutic benefit to cancer patients of all ages, helped increased self esteem and self confidence and stimulated emotions and intellect of the visually impaired.  Geetha Paniker, a breast cancer survivor, shares her views on how various forms of creating art, and even photography, can heal both the mind and the body. I truly believe that photography is an incredibly powerful therapy to heal oneself. It is a passion that…
  • Ignorance Is Not Bliss In Our Condition!
    Priti Shetty, 33 from Mumbai was diagnosed with type III Spinal Muscular Atrophy at age 2 and is a strong proponent of using whatever skills and intellect you have to learn all about your condition and achieve your dreams. Please tell us a bit about your condition I have type III Spinal Muscular Atrophy or SMA. SMA is a genetic disease that causes loss of voluntary muscle movement as the motor nerves get affected. Type III is also known as Kugelberg-Welander disease. What were the early…
  • A young woman in a blue dress standing next to the open car door with a car key in her hand
    Driving Cars As A Way to Independence For Disabled Persons
    Anita Sharma from Jaipur, who has a 70% disability due to Polio, did a PhD from IIM Indore in Disability and Entrepreneurship. Driven by her own passion to drive modified cars and to enable persons with disabilities to be independent, she started a driving school. Anita Sharma on her personal journey and initiative. Your background of polio from a young age, surgeries, calipers. I contracted Polio at a very tender age. When I was just six months old my parents realized something was wrong as I…
  • A woman in a yellow kurta standing with her young son in a white shirt in front of a shop window. Both wear spectacles.
    "It Is Important To Believe In Our Children"
    Pallavi Mehta, 42 talks about the trials and triumphs of taking care of her 11 year old son Divyam who has Fragile X Syndrome, a genetic condition. Please tell us a bit about your son’s condition My son Divyam is 11 years old and is suffering from the Fragile X condition. Fragile X syndrome is a genetic condition that causes a range of developmental problems including learning disabilities and cognitive impairment. He was diagnosed when he was just a year old. What were the early symptoms?…
  • Autism - My Super Power For Modeling: A Live Conversation
    In a free wheeling live conversation, PatientsEngage spoke with Pranav Bakhshy, India's model on the autism spectrum and his mother Anupama on the journey to his goal. Great parenting insights. Now available as a video recording. It all started in 2017 when Pranav Bakhshy expressed a desire to be a model after attending the Velvi Art For Autism Festival. His mother Anupama and sister Nikita guided his journey to support his endeavour to be a model, bringing together his love for dancing, music…
  • A man with black hair and moustache and white tshirt
    Parents Should Always Try And Bring Children With Disabilities Into The Mainstream
    Ameet Bhadrapur, 30 from Bengaluru suffers from 70 per cent hearing loss. But despite his lack of confidence over interaction with people, he is a working professional. I am partially hearing impaired with 70% hearing loss. I can hear some low frequency sounds. I am using behind the ear hearing aids for both the ears. With this I am able to hear most of the sounds. However my speech and pronunciation are not clear. Hence I lack confidence in interacting with others. When were you diagnosed? I…
Support and Occupational Therapist in Patiala
Received a request for an OT in Patiala for a 2 year old child with Cerebral Palsy. Any suggestions, recommendations would be welcome Family currently going to PGI Chandigarh for doctor visits thanks 
Evolving personalities by Persons with Disabilities
People tend to develop their personalities from the different things that they get to know and do in their lives, which may also have an impact from time to time. People develop their personalities at all ages and it is a constant shift for every…
Please support VaccesS, a 2 Day Expo at Vidya Sagar, Chennai
Vidya Sagar (Formerly, The Spastics Society of India), a 30 year old non-profit organisation working with  persons  with disabilities , is conducting a 2 Day Expo titled "VaccesS" @ Vidya Sagar, #1, Ranjith Road, Kotturpuram, Chennai - 600…
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